Diag W/COPD any suggestions?

Hi,  Im new here and went for a ct scan today.  I was diagnoised with copd about 2yrs ago.  I had Chlamydia positive in 1990.  I'm thinking all my health problems are related.  Will only antibioticsi cure this diease?Where do I find a doctor if this pulmonary doc wont treat me.  This is all to confusing.   Thanks for all your help on many posts and thoughtful people wanting to help each other.

I have alot of mucus and a cough from this lung problem.  Will this cpni get worse if I still have it?  Does the test for cpn, is it pretty accurate?Which is the best test to take?  Thanks many times again  Chipper

How do I put my symptoms in the post so others can review?

Only the right antibioticsi will cure chlamydia pneumoniae.  They might help chronic obstructive pulmonary disease, but it depends what caused it.  Did you smoke a lot? 

You can make a signature in your account, to list your symptoms, but don't make it too long, or the end will get chopped off.................Sarah  

An Itinerary in Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Chipper

We are gathering information here, and have had so many surprises that not much surprises us.  Why not COPD?  What your pattern says to me (I am not a doctor) is that a year or two on this protocol may very well give you not only an answer but better health. 

Five years ago minus a month, I began this adventure, not having anything but hope and here I am walking around breathing after expecting a decline in both.

Rica   

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

chipper         

I have heard of the implications of chlamydia pneumonia (CPni) in that disease.  I'm familiar with it as my mother had it for about 5 years prior to her passing from it.  I found out about this protocol and the possible role that this bacteria plays in COPD 2 months after her passing.  I was not pleased to find out about that, knowing that the doctor never discussed antibioticsi with her, ever, to my knowledge.  Yes, I still harbor ill will about it. 

I think you're quite fortunate that you have found out about it and can act on it now.  I hope you do.

The tests for this are NOT very accurate yet.  They have far more accurate tests but I haven't heard whether they are now available to the public via hospitals, yet.  There are a number of retail testing labs around that may be able to handle this sort of test and give you accurate results.  I urge you to keep an eye on this discussion as someone will post a link to a good lab for you to use.

There are doctors around who will help you.  Please also post the part of the country where you are located and someone will contact you with a doctor in that area, if we know of one.

best, John

RRMSi/EDSSi was 4.5, 5, 6, 6.5, 6.9999, 6.5 on Wheldon/Stratton Protocol beginning 04/12/2006
naci 4x600 mg/day
doxycycline 2x100mg/day
azithromycin 3x250mg/day MWF
metronidazolei 3x400mg/day then 3x500mg/day

Thank you John,    For the reply of concern.  I will pray for your recovery in this diagnosis you have going on.  Do you live here in the U.S.?  I'm pretty new to this site, and alot of the people seem to live in other areas.  I deepest sympathy goes out to you about your mom.  I hope you have other people that are around you that are supportive.   Well I have to get ready for work.  I will continue prayers God Bless.  Nadine  

CFSi,COPD, asthmai,IBSi, no abs, looking for Doc,vitaminsi, NACi,1200 dy, alpha lopic, iodine 50mg.

 

Nadine       

Thank you for the kind words.  My mom passed 4 years ago this December.  It was right before I found out about the role Cpni may plan in COPD.  Do not let the doctor you have tell you that it appears in only certain areas of the body, that's plain hogwash and demonstrates a lack of understanding on your doctor's part.  If you have the infection, it's a good expectation that it has traveled everywhere in your body, to some degree, so treating the infection is systemtic in approach.

I saw the reply to your blog question about the labs and Quest is one of them that I knew about but have never used myself.  I believe there is one or two other labs but those I know much less about then Quest so can't offer an guidance in that area.

On thing that I haven't seen mentioned so I'll go ahead and mention it is that you can do an empirical test yourself using NACi.  I did this myself before I found a doctor and started the CAPi.  My results were so dramatic there was no convincing me otherwise, I have the infection.

If you haven't read about the NAC test, you do it by taking NAC, slowly, far a few days or week, to see what sort of reaction you have to it.  NAC is made by your body in smaller quantities as a precursor to glutothione (I believe, if memory serves).  I has the characteristic of breaking sulphuric bonds on the surface of the extra-cellular stage of the bacteria (EBi stage), killing it.  So, if you're infected, you'll notice a reaction to the NAC that should be a res;onse to the die off of the bacteria as they release something called endo-toxin into the blood when they die.

You might want to read the information Dr. David Wheldoni has on his website about infection with Chlamydia Pneumonia, found at:

http://www.davidwheldon.co.uk/ms-treatment.html<

Much of the above information is also found on CPNHelp at:

http://www.cpnhelp.org/cpn_and_cap_overview<

I found out about the NAC test at Dr. Wheldons site but his site has changed a lot over time and I now longer know where to find the page describing what I mentioned above.  I have given you the bulk of it and other will likely chime in if I've left out anything important about it.

I will say to take it slowly.  Don't go overboard, the reaction can be severe if you're carrying a heavy load.

Also.  Michèle< is someone here who manages to keep a list of everyone we know who treat this.  She may know of a doctor for you to contact in Wyoming so try sending her an email and ask if you haven't already.

 

best, John

RRMSi/EDSSi was 4.5, 5, 6, 6.5, 6.9999, 6.5 on Wheldon/Stratton Protocol beginning 04/12/2006
naci 4x600 mg/day
doxycycline 2x100mg/day
azithromycin 3x250mg/day MWF
metronidazolei 3x400mg/day then 3x500mg/day

John,        Thank you for all your information.  I'm learning more and more everyday about this infection.  Everyone here seems to be very kind and helpful.  I will keep you and others in my prayer book.  I have a cousin and her daughter has Ms.  I was wondering if I should send her to this site.  She is like 24yrs old and had it for 3yrs.  I heard lately that she is getting worse.  She has like a limp with one of her legs and other things going on.  What do you think John should I send her to this site to talk about what she's on and the protocol? 

Many thanks.... Nadine.

CFSi,COPD, asthmai,IBSi, no abs, looking for Doc,vitaminsi, NACi,1200 dy, alpha lopic, iodine 50mg.

 

You should tell your cousin's daughter about this site so that she can make her own mind up, but one thing is certain and that is starting to take her health into her own hands is a good thing. She may decide that antibioticsi are not for her, or her neuroi will  dismiss it as snake oil. Emphasise that she must look at the Getting Started pages because this treatment is complicated enough without the brain fog that accompanies most MSi people. However the sooner a person starts the better the outcome is likely to be.

I reckon that I have had this infection at least 30 years and it was silently damaging me all that time until about 10 years ago when MS symptoms appeared and stayed. So I plod on knowing that it is not an overnight cure, but at least I am not worsening and the drugs used are safe.

speedbird

Nadine

Speedbird is "right on" - I approach people everywhere (I say I am going to get shot one day!) - in wheelchairs, limping, on canes - I am nondiscriminating - to tell them about our unique site.  Every single one of us should have the opportunity to decide for him/herself to do this or not.

It is beyond my comprehension when a "victim" decides not to take this on - the evidence increases every day.  "Docs in the box" are doing us a major disservice with their smirks and contempt.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Hi Nadine    

Speedbird and Katman's reply to you was much of what I would suggest.  The only thing I might add is that this site can be overwhelming to people when they first start reading it.  It's usually difficult to do as people don't think that there's any help and don't want to believe that they can get anything they're not already getting from their doctor.  It's a tough sell, unless they want to know and are eager to find out.

There's something that Katman (I believe) or someone else here came up with as a phrase to describe what we're doing when we try to convince someone that there's something here that might help.  It's a phrase.  The phrase is Inflicting Help.

Why do we call it that?  Because unless someone wants the help, no amount of talking to them or telling them the information here is going to convince them that they should try, in many cases.

So even though your heart is in the right place, do not take it personally if your cousin's daughter does not respond eagerly to the news you've given her.  She may in time but don't be surprised if she doesn't at first.  I've met other people with MSi and told them about this site and the CAPi, and it was like they thought I was selling them snake oil.  They didn't want to hear about it.  So be prepared.

best, John

RRMSi/EDSSi was 4.5, 5, 6, 6.5, 6.9999, 6.5 on Wheldon/Stratton Protocol beginning 04/12/2006
naci 4x600 mg/day
doxycycline 2x100mg/day
azithromycin 3x250mg/day MWF
metronidazolei 3x400mg/day then 3x500mg/day

Where do you live?  People will send you dr info if you tell us.

I live in Wisconsin!!!   Thank You Chipper

CFSi,COPD, asthmai,IBSi, no abs, looking for Doc,vitaminsi, NACi,1200 dy, alpha lopic, iodine 50mg.

 

Check your inbox. I will send you doctor info for Chicago.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Hi,

IMOi you should do the CAPi treatment. I had COPD (among other things) and cured it. IMO COPD is caused by C. Pneumonia. Do not expect this to be quick or easy though. if you have COPD chances are you have a pretty significant systemic infection and as many people on this board will attest each step can be challenging.

- Paul

Comment viewing options

Select your preferred way to display the comments and click "Save settings" to activate your changes.