Cpnhelp.org

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Not a suggestion to add some, but I think it'd be worth deleting:

diseasesⁱ

infectionsⁱ

antibioticsⁱ

immuneⁱ

because they are so elementary that someone who shows up not knowing them won't be able to understand anything anyway, and because having a little "i" on each instance of them is annoying.

Actually, looking into it a bit further, those seem to have worked their way into the glossary unintentionally: if one clicks on "glossary" in the bar on the left, one gets a list of four glossaries. The intentional stuff all seems to be in the "Glossary terms" glossary, while the insultingly-basic stuff like "infections" seems to be in the "chlamydia pneumoniae" glossary, which looks to be automatically generated somehow, probably from the list of keywords that you can select from when posting to the forums. For instance, when you click on that glossary, then click on the "detailed definition" for antibiotics, you get something that is not any kind of definition of "antibiotics", but rather an interview with "Dr. A" about which antibiotics are good for Cpnⁱ. So it looks to me like the thing to do would be to remove that glossary from the set of glossaries that produce little "i"s, if that's an option in the software.

Hmmm, if the new upgrade includes that, I'm all for it. I will check after the full upgrade is installed and will delete them if they're not removed in the process. Thanks, Norman!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Don't delete anything! The glossary should only pull from the glossary terms, not from the other taxonomy terms. I'll have to check the settings on the module. 

CAPⁱ for Cpnⁱ 11/04. Dxⁱ: 25yrs CFSⁱ & FMSⁱ. Currently: 300mg BIDⁱ Roxithromycin, Bactrim DS 2x/day, Tiniⁱ 1000mg/day pulses; Vit D2000 units, T4 & T3

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CAPⁱ for Cpnⁱ 11/04. Dxⁱ: 25yrs CFSⁱ & FMSⁱ. Currently: 250 aithromycin mwf, doxycycline 100mg BIDⁱ, Tiniⁱ 1000mg/day pulses; Vit D2000 units, T4 & T3, 12mg Iodoral

 Don't delete them! I'll have to take a look and see if they are needed. The "i's" should only reference the specifically defined "glossary" terms, not the other taxonomy terms. I'll have to take a look at the module to see what the settings are.

CAPⁱ for Cpnⁱ 11/04. Dxⁱ: 25yrs CFSⁱ & FMSⁱ. Currently: 300mg BIDⁱ Roxithromycin, Bactrim DS 2x/day, Tiniⁱ 1000mg/day pulses; Vit D2000 units, T4 & T3

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CAPⁱ for Cpnⁱ 11/04. Dxⁱ: 25yrs CFSⁱ & FMSⁱ. Currently: 250 aithromycin mwf, doxycycline 100mg BIDⁱ, Tiniⁱ 1000mg/day pulses; Vit D2000 units, T4 & T3, 12mg Iodoral

I found the i's quite helpful when I first began as I didn't understand the medical lingo abbreviations. 

Thanks for your hard work peeps

CFIDSⁱ/ME 32 yrs, FMSⁱ, IBSⁱ, EBVⁱ, CMV, Cpnⁱ, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACⁱ 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#10 1000 mg 3 days & 750mg 2 days, 5-17-8

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CFIDSⁱ/ME, FMSⁱ, MCS, IBSⁱ, EBVⁱ, CMV, Cpnⁱ, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsⁱ+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagylⁱ/day-5 days<

Possibly because of the multiple glossaries, we sometimes get more than one little 'i', that may be something we can sort.

Michèle (UK) GFAⁱ: Wheldon CAPⁱ 1st May 2006. Daily Doxyⁱ, Azi MWF, metroⁱ pulse. Zoo keeper for Ella, RRMSⁱ, At worse EDSSⁱ 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Michèle (UK) GFAⁱ: Wheldon CAPⁱ 1st May 2006. Daily Doxyⁱ, Azi MWF, metroⁱ pulse.

I'm holding off touching anything til after the upgrade, then will consult with Jim about duplications/deletions. Still open to suggestions of additions, however...

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

I made a list as I read along with the intention to google what I couldn't figure out. Some seem obvious now but weren't at the beginning. I know you don't want to add tons, so this is just to show what tripped me up when I'd come across them.

coryza
Azith
roxi
moppers
arthralgia
porphyriaⁱ
EDSSⁱ
glucose
RRMSⁱ
Iodoral
Bactrim
FIRⁱ Sauna
Cholestyramine
half life
immunomodulator
HHV6/Epstein Barr
bromine
Valtrex
Methylation
porphyrins
Valcyte
T3 T4
TSH
SSKIS
SP
4ap
Troll Queen 

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Corinna. GFAⁱ. NACx2400mg, D3x5000mg, B12x1000mcg.

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Corinna | GFAⁱ. Wheldon Protocol: 4–8/08. Can't kill the yeast.

Troll Queen! Too funny!

On Combined Antibiotic Protocol for Cpnⁱ in Rosaceaⁱ 01/06 - 07/07, On Vit D3 + NACⁱ since 07/07 and daily FIRⁱ Sauna since 08/07

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Treatment for Rosaceaⁱ

• CAPⁱ:  01/06-07/07
• High-Dose Vit D3, NACⁱ:  07/07-11/08
• Intermtnt CAP, HDose Vit D3:  11/08-01/09
• HDose Vit D3, Mg, Zn: 01/09-

The mental imagery alone...

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Corinna. GFAⁱ. NACx2400mg, D3x5000mg, B12x1000mcg.

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Corinna | GFAⁱ. Wheldon Protocol: 4–8/08. Can't kill the yeast.

I think I'll stick to the medical terms and let the troll queen explain herself to anyone who can't figure it out.

After much personal debate, I've decided not to add 'porPHORia', 'porphiria' or 'porphira', the most common misspellings of PORPHYRIAⁱ. I don't want to reinforce the improper spellings in anyone's minds.  Life is confusing enough and I'm hoping the promised spellchecker in the upgrade will help with that.

Will surely take the others under advisement, as it's much harder for the 'veterans' here to see the forest for the trees and fresh eyes see what we often don't. Thanks, Twickle!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

OMG, I'm so thick. LOL!
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Corinna. GFAⁱ. NACx2400mg, D3x5000mg, B12x1000mcg.

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Corinna | GFAⁱ. Wheldon Protocol: 4–8/08. Can't kill the yeast.

Not at all!!! Thanks for the list, plus you made Red smile...

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Abbreviations and acronyms definitely belong on the list. Some of that stuff, though, needs an essay, not just a sentence, to define it. It wouldn't do any good to just define methylation as "the addition of a methyl group to a molecule", even if you did go on to explain that methyl is CH3.

I don't know what "moppers" are, myself.

From a web Developer point of view, abbreviations and acronyms should be the things that have the little i after them with a short full length name that appears on hovering your mouse over them. HTML code provides for these with the tags abbr and acronym.

To be correctly assigned:

Abbreviations are shortenings of words into their letters which are then spelled out, such as HTML.

Acronyms are a specialized abbreviation where the initial letters are spoken as a word rather than spelled out. An example of an acronym would be RADAR.

In the case of this site, most of ours are shortenings of a single word which I guess would almost all come under abbreviations (and completely break the above rules), usually drug names. I certainly found it useful to have those expanded when I started and in the case of some of the less common ones, still do. For example, abxⁱ. When you first come on here that doesn't necessarily mean much to you. Yes you know what antibiotics are but how often do you see it shortened to abxⁱ? I think if you remove those you'll get a lot more questions along the lines of "sorry but what's abx?"

Berkshire, UK. Diagnosed RRMSⁱ Feb 4th 2008.

NACⁱ 2400mg. All supplementsⁱ. Doxyⁱ 200mg. Zithⁱ 250mg M/W/F.
No GP/Neuroⁱ support. Self medicating with help from David Wheldonⁱ.
Started CAPⁱ 20th April 2008.

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Berkshire, UK. Diagnosed RRMSⁱ Feb 4th 2008.

NACⁱ 2400mg. All supps. Doxyⁱ 200mg. Zithⁱ 250mg. Metroⁱ 400mg.
No GP/Neuroⁱ support. Self medicating with help from David Wheldonⁱ.
Started CAPⁱ 20th April

Dxⁱ Rx, Abxⁱ, and many more, are all proper medical abbreviations along with a very long list.  Some are standard some are hospital specific, designed to help old fashioned hard copy medical note writing by hand in the not so distant past .  I would imagine that there are some hard copy books of such abbreviations and acronyms.  My books are in transit and boxed currently.

Norman, moppers is another Ruthless1ism.  Actually, it is very descriptive when I think about it! Cuts down on typing out the words, activated charcoal, cholestyramine, choleystyramin, Questran, Vitamin C, Emergency-C, etc.   What have I forgotten?

Louise USA.CFSⁱ.CPn Positive.BbPositive.WheldonCAP6/24/07.NACⁱ,Doxyⁱ,Roxi, Tinidazole Pulses. VitD-3,4000IU. Intermittent Cholestyramine 1-2 packets atbedtimewithpulses&asneeded forporphoria&endotoxinsⁱ. 

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6-07WheldonCAP CFS20+yr

(11-29-07 started Cholestyramine HS PRNⁱ x 7d for porphyrin+endotoxinsⁱ removal)

Check out Louise's Blog at; http://www.cpnhelp.org/blog/louise for the details of my treatment adventure!

definition of the Troll Queen (my self description) --    a nasty tongue manner of speaking which may include a turettes like explosion of frustration & anger.  The cause is the poisonous CPnⁱ kiss of the flagylⁱ when not enough moppers have been consumed; & it can make our spouses & friends run for the hills, or the other room with a lock on the door.

Princess Troll is Jeanneroz

CFIDSⁱ/ME 32 yrs, FMSⁱ, IBSⁱ, EBVⁱ, CMV, Cpn, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACⁱ 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#10 1000 mg 3 days & 750mg 2 days, 5-17-8

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CFIDSⁱ/ME, FMSⁱ, MCS, IBSⁱ, EBVⁱ, CMV, Cpnⁱ, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsⁱ+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagylⁱ/day-5 days<

I can't take credit for the moppers.  THough I use the term I believe one of our UK sisters coined it.  I like it & use it. 

I did start the Troll Queen as that is my own nick name though & then I dubbed jeanneroz as Troll Princess as we were having similar poison reactions from the flagylⁱ,

CFIDSⁱ/ME 32 yrs, FMSⁱ, IBSⁱ, EBVⁱ, CMV, Cpnⁱ, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACⁱ 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#10 1000 mg 3 days & 750mg 2 days, 5-17-8

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CFIDSⁱ/ME, FMSⁱ, MCS, IBSⁱ, EBVⁱ, CMV, Cpnⁱ, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsⁱ+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagylⁱ/day-5 days<

I guess I was too brief there. I just meant that terms like "EDSSⁱ" and "abxⁱ" certainly belong in the glossary, when people here are using them, as they are for those two terms.

As for "moppers", it's a vague word, and I don't think anybody knows precisely what it means. Some of the stuff we take to relieve symptoms (e.g. activated charcoal) really does have the action of mopping up toxins, but other stuff has other mechanisms of action. Glucose's mechanism of action is not at all mop-like; vitamin C's is somewhere in between. Besides, there are two causes of distress -- porphyriaⁱ and endotoxinⁱ release -- and they have different remedies.

  LOL!! Ruthless1, thanks for the definition. 

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Corinna. GFAⁱ. NACx2400mg, D3x5000mg, B12x1000mcg.

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Corinna | GFAⁱ. Wheldon Protocol: 4–8/08. Can't kill the yeast.

Norman, Cholestyramine/Cholestyramin, Questran, Welchol are mop like from my proint of view .

Louise USA.CFSⁱ.CPn Positive.BbPositive.WheldonCAP6/24/07.NACⁱ,Doxyⁱ,Roxi, Tinidazole Pulses. VitD-3,4000IU. Intermittent Cholestyramine 1-2 packets atbedtimewithpulses&asneeded forporphoria&endotoxinsⁱ. 

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6-07WheldonCAP CFS20+yr

(11-29-07 started Cholestyramine HS PRNⁱ x 7d for porphyrin+endotoxinsⁱ removal)

Check out Louise's Blog at; http://www.cpnhelp.org/blog/louise for the details of my treatment adventure!

LLMD

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Corinna. GFAⁱ. NACx2400mg, D3x5000mg, B12x1000mcg.

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Corinna | GFAⁱ. Wheldon Protocol: 4–8/08. Can't kill the yeast.

Yes, cholestyramine and Welchol have the same sort of mechanism of action as activated charcoal, and that mechanism can reasonably be described as mopping up toxins from the gut (porphyrins being the main toxins we're concerned with). But I doubt if it's worth trying to enforce that as the meaning of "moppers", because trying to enforce meanings of words is always an unpleasant and tedious task; and in any case you can use "porphyrin adsorbers" to describe that class of medications, without having to impose new definitions on anyone.

moppers :  toxin absorbers, charcoal, glucose, complex carbs, Cholestrymine, Yaeyama Chlorella.....

maybe we need a slang category, lol

CFIDSⁱ/ME 32 yrs, FMSⁱ, IBSⁱ, EBVⁱ, CMV, Cpnⁱ, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACⁱ 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#11 1000 mg 5 days 6-14-08

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CFIDSⁱ/ME, FMSⁱ, MCS, IBSⁱ, EBVⁱ, CMV, Cpnⁱ, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsⁱ+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagylⁱ/day-5 days<

Norman, I would be glad to use the porphyrin/endotoxinⁱ absorbers as a descriptor of action , however many well spoken folks here have been starting to be more generic with the use of moppers, not to name names but those in the know seem to know.  It is those that are not in the know that are the folks that are using the "helps" that describe abreviations, medical terms and yes the slang that is bantered around here commonly.  Moppers It is a word that is finding it's way into common usage here at CPNhelp community.  And therefore, it is a problem for brain foggled folks that need to know what moppers are available to use to be less foggled.  Yes, I know foggled is not a proper term .   And then there is brain foggled which I believe that I have used loosely, although the meaning seems clear to me, particularly when I have been porphoria/endotoxin subdued and unclear.  Just what brain foggled  means for me seems obvious but again, as Ruthless points out, it could be considered slang at best and it is the newbies that are left wondering what is that person trying to say that might be of help to me.

Norman just to be clear here for those who read this in the future, I am enjoying our banter and your critical thinking!

Louise USA. CFSⁱ. CPn Positive. Bb Positive. Wheldon CAPⁱ 6/24/07. NACⁱ, Doxyⁱ, Roxi, Tinidazole Pulses. VitD-3,4000IU. Intermittent Cholestyramine 1-2 packets at bedtime with pulses & as needed for porphoria & endotoxinsⁱ, used as a MOPPER. 

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6-07WheldonCAP CFS20+yr

(11-29-07 started Cholestyramine HS PRNⁱ x 7d for porphyrin+endotoxinsⁱ removal)

Check out Louise's Blog at; http://www.cpnhelp.org/blog/louise for the details of my treatment adventure!

Trust me; I've no plans to add brain foggled to the glossary. The idea is not to have so many of the little i's in one paragraph that it's impossible to read; the idea is to be a bit helpful and get people over the hump so they don't have to leave a post and go to Wikipedia or Google to fathom what's being said.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Exactly the point!  There is a lot of jargon and slang used here by many a good folk.

Louise USA.CFSⁱ.CPn Positive.BbPositive.WheldonCAP6/24/07.NACⁱ,Doxyⁱ,Roxi, Tinidazole Pulses. VitD-3,4000IU. Intermittent Cholestyramine 1-2 packets atbedtimewithpulses&asneeded forporphoria&endotoxinsⁱ. 

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6-07WheldonCAP CFS20+yr

(11-29-07 started Cholestyramine HS PRNⁱ x 7d for porphyrin+endotoxinsⁱ removal)

Check out Louise's Blog at; http://www.cpnhelp.org/blog/louise for the details of my treatment adventure!

Treatment really needs to be more precise, though, than just "shovel on the moppers". If Ruth, for instance, would pay attention to which of these substances is more effective and which is less effective, rather than just lumping them all together as "moppers", she might be able to spare us some of the Troll Queen behavior. This site is about getting better, not about giving each other group hugs and ranting against the world while continuing to sink into disease. It's not necessary to be absolutely precise about everything -- indeed, given the nature of language, it's impossible. But even slang should respect the major distinctions. Glucose is a fuel, not a mop. It doesn't sweep up toxins; it causes them not to be produced in the first place. And it only does that for porphyrins, and only if the porphyriaⁱ is caused by the body being short on glucose. This means that it's best to take it ahead of time, before you get short on glucose, rather than trying to use it as a "mopper" after the fact. It also means that it's not going to stop you from feeling feverish, since that's from endotoxinsⁱ.

The only problem with "foggled" as a word is that it has an extra "l" in it: "fogged" is a perfectly fine word, and in this context ("brain fogged") means about what everyone would expect it to mean.

Norman, you have convinced me to drop the l.  However I still think that we are a community of sorts and there will be group hugs and rants as well as percision leading edge treatment science news. 

Now around these parts (this area of the US), folks say, just a dight (not really sure of the spelling though) and they seem to know what that means.  Took me several year to catch on to quite a few of the local coloquialisms (please do correct me if that is a bit off in meaning or spelling .

Louise USA.CFSⁱ.CPn Positive.BbPositive.WheldonCAP6/24/07.NACⁱ,Doxyⁱ,Roxi, Tinidazole Pulses. VitD-3,4000IU. Intermittent Cholestyramine 1-2 packets atbedtimewithpulses&asneeded forporphoria&endotoxinsⁱ. 

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6-07WheldonCAP CFS20+yr

(11-29-07 started Cholestyramine HS PRNⁱ x 7d for porphyrin+endotoxinsⁱ removal)

Check out Louise's Blog at; http://www.cpnhelp.org/blog/louise for the details of my treatment adventure!