C.Pn. Co-Infection Info

Well many here over the past 7 years or so have discovered that they have more than one chronic persistent bacterial infection.   And like most things there are many ways of thinking about this situation.

What to treat first, how agressive to treat, how consitentently to remail on a particular protocol etc etc etc.  

Early on I was fortunate enough to actually treat for chronic and active C.Pn. and in beginning treatment for than in a much to agressive fashion (before I learned as much as I havce about C.Pn.) I reacted so strongly to the die off that I found this information on this amazing website and tested postitive for Bb (Borellia B or Lyme Disease) which is also very unlikely to give false negative just as C.Pn. often does.  

I chose the longer slower gentler protocol that I found here and do not regret that.  However after a time on the less agressive more continuable protocolsi found here some individuals need to broaden their approach.   There are lots of disagreements about what and how etc.   For me initially I would not have been about to tolerate agressive treatment without a full time nursing care situation.   I am glad that I have done what I have done and have reaped the benefit of the maratahon.

And I continue to want to know more and from that postion I post this line for those interested.

Louise      http://www.lyme-disease-research-database.com/lyme_expert_interview_series.html< 

I suspect that I may have something in addition to Cpni because I have some symptoms that other Cpn sufferers don't have like dizzyness when I try to stand up from the floor

For now I am still focusing on Cpn and still getting good results

 

DAILY:  NACi 2400MG , DHEAi sublingual , vit D3 , multi vits,./ Three times  a week: B12 injections (Hydroxycobalamin). Deer antler./  Once every few months methyl B12 Methyl injections

I for one have long suspected that I have another codition apart from MS i.e. Lymes Desease.  I often believe that if a lymes doctor were to look at me he may well exclaim "Classic!"

Yes, I had the spinal tap (as well as the MRI) and have the classic MS bands.  Notwithstanding that fact, I have put it to my neurology dept that I was never tested for lyme and I feel that I may have that too.  In the UK, if you are Primary Progressive, you don't even get to talk to a neurologist.  Neurologists in the the UK are very, very busy people; they are very busy conducting paid-for drug trials on things like Natalizumab for SPMSi and getting £1000 to £3000 per guinea pig patient.

G

“Don't believe everything you read on the internet.”

―    Abraham Lincoln<

The hopeful thing about  Borellia B. (Lyme Disease) is that the Wheldon Protocol taken over the long haul may well take care of this.   There are several other tick borne diseasesi that require other drugs for treatment and those with these such as babesia and bartonella need to look at those sypmtom patterns and find the treatment that addresses them as well.

Personally I tested postitive for Borellia B. after taking Doxyi at 400 mg per day for a month.  Some folks call this an antibiotic challenge the 200mg twice a day is a bacteriocidal dose and causes massive die off of C.Pn. and Bb which is why it is so hard on people and they often quit treatment because it lays them so low in energy as C.Pn. is an energy parasite in the body. 

So stick with the C.A.P. and look into the other tick borne illness symptoms and decide if they may be possibilities  in your individual situation.   We can all have a number of pathogens.   C.A.P. covers many which is wonderful and it is a moderate approach of a longer duration which is sensible.

Fortunately for me I was negative for the others that can be tested for and had not symptoms that indicated the others except for the Bb and the C.Pn.   C.A.P. for C.Pn. needs to be addressed first in a moderate way so as not to overwhelm and cause people to quit.  Then as progress is made being open to considering more pathogens is something worth considering.    And you need to learn about these things for yourself as depending on docs to sort it out with out being lead by your questions often leads nowhere unfortunately, that is my opinion at any rate.

This website is precious information and those who find it and learn hear are the fortunate ones!

 

 

 

  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <

Thank you for your enlightened and comprehensive response, Louise.

G

“Don't believe everything you read on the internet.”

―    Abraham Lincoln<

As you may have read already, i too am a lymie.  The 6 mth tx i did lasst winter for Cpni/lyme brought out borderline ehrlichia, yersinia and bartonella.  So many of these co-infectionsi are stand alone illnesses, i am realising.  You dont need to have lyme to get yersinia or bart, maybe others , not sure which. 

atm i am trying to tx the bart with rifampicin - crikey, its hard.  I am only managing 1 pd and little else besides.  Knocked for 6 today!  Oh well battle on.... Po - x  PS - clasic bart is painful feet.  Classic babesia is night sweats.  Lyme   sometimes goes in a monthly cycle.  nhs tests fairly    rubbish - gotta  go private when those tests are negative - i suspect you know this, but for all here. Po - x

Female UK. High EBVi, CMV. In winter 12/13 waslow Lyme and Cpni-tx'ed 6mths. Sept 13 -ve lyme, +ve erlichia, bart &Yersinia, starting tx for co-infectionsi also aspergillus

Hi Louise,

Thanks for the heads up on co-infectionsi.  I am guessing that Rick's Doctor is paying attention to stuff like that - thankfully, as his specialty is Lyme / Chronic Fatigue and Fibromyalgiai...

Interesting your mentioning "painful feet" and "night sweats" - I get both, and have Chronic Sinusitis (my Doctor recently corrected me on that - I HAD bronchitis - he treated or is treating that and it's apparently not active now - I have Chronic Sinusitis - also identified as something CPNi may cause, and on the front page, while bronchitis is not mentioned there but later).

My guess is that this stuff "runs" in familes.  After all - who are you most likely to catch something from but someone you live with in close contact for years!

Best & Highest Regards,

Tom

Proud Parent of Rick - R started CAPi in Nov. 13. Small measurable improvements as of 7/14, more by 10/14.  Holding Steady in early 2017.  "I will leave no stone unturned, no theory unexamined, to help my son." Tommi

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