Cpnhelp.org - Chlamydia Pneumoniae Treatment

Ah sweet guinea pig! Keep us apprised, please. I'm thinking of going the same route.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

 Keep tuned to this channel. My enthusiasm may be premature. I'm hoping not, but you never know with Flagyli.

CAPi for Chlamydia pneumonia since 11/04. 25yrs CFSi & FMSi- Currently: 150mg INHi, 200 Doxycycline, 500mg MWF Azithromycin, 1000mg Flagyl daily (Continuous protocol)

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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

Good luck Jim!      Let's hope it's smooth sailing for you from here on...

On Combined Antibiotic Protocol for Cpni in Rosaceai since 01/06

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On Combined Antibiotic Protocol for Cpni in Rosaceai 01/06 - 07/07, On Vit D3 + NACi since 07/07 and daily FIRi Sauna since 08/07

Following your example Jim, I've not stopped taking Metroi since my last pulse, but reducing it to one dose 400mg a day in the intervening time.   I'm just completing the next 'pulse' and it is still a pulse as the dose is 3x400mg.

For me it has been like starting again from the beginning, felt quite ill and all parts aching, even muscle aches this time which is not something I have had before.   More pronounced reactions than when I upped the vitamin Di or when I added Niacini.   BUT I've also felt some activity in the part of my gut which is the most painful, some kind of buzzing and some real activiy in my legs, some burning in what feels like the circulation system in my legs.   That is progress in my eyes, and I will report back later with more effects when the pulsing crest has subsided.

Michele: Wheldon CAP1st May 2006 for ailments including IBSi, sinusitis, alopeciai, asthmai, peripheral neuropathy. Spokesperson for Ella started Wheldon CAP 16th March 2006 for RRMSi. Sussex UK

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michel- That's an interesting approach to grading up to the continuous protocol. Sounds like the constant 400mg flagyli set up the ensuing pulse for greater tissue penetration/tipping point. Please blog on this as you get a sense of the trend. 

CAPi for Chlamydia pneumonia since 11/04. 25yrs CFSi & FMSi- Currently: 150mg INHi, 200 Doxycycline, 500mg MWF Azithromycin, 1000mg Flagyl daily (Continuous protocol)

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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

Ok Jim, just completing pulse 17 so to give it some perspective I'll leave it until pulse 20.

Michele: Wheldon CAP1st May 2006 for ailments including IBSi, sinusitis, alopeciai, asthmai, peripheral neuropathy. As from 26th March 2006 continuous Flagyli at 400mg with 5 day pulses at 1200mg every three weeks. Spokesperson for Ella

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Just shows you how differently we react.   I feel nauseous, feverish, at the end of my tether, in pain and depressed for short periods (20 mins at a time) when on a pulse but I never feel angry...  Even one of such intensity such as the one I finished on Friday which came a the end of a fortnight of daily low dose metroi followed by 5 days at full dose, leaves me longing for the reduction in dose but calm.   In fact my experience on a pulse has been remarkably consistent and has only varied in intensity.   My instinct is to crawl away into a hole and stay there until I feel better.

 

Michele: Wheldon CAP1st May 2006 for ailments including IBSi, sinusitis, alopeciai, asthmai, peripheral neuropathy. As from 26th March 2006 continuous Flagyl at 400mg with 5 day pulses at 1200mg every three weeks. Spokesperson for Ella

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

 That's what is so remarkable about this thus far: six days of continuous flagyli and no nausea, some bouts of aches and fatigue, but on the whole I feel better. Keeping fingers crossed.

CAPi for Chlamydia pneumonia since 11/04. 25yrs CFSi & FMSi- Currently: 150mg INHi, 200 Doxycycline, 500mg MWF Azithromycin, 1000mg Flagyl daily (Continuous protocol)

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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

Jim - I am just thrilled to hear this!! and the dose you are taking is no small feat either. This obviously means something big has occurred in terms of your cPni load and that have successfully brought it way down.  I wonder...what made you decide on a whopping 1000mg daily, rather than trying for a continual , say, 400mg dose?? (maybe I need to go back and look at the protocol as it is written again). 

In any event... even if it goes no further than today, this is still a HUGE leap in your healing process. It seems you really turned the corner this year, in terms of how well you are tolerating the CAPi, didn't you?  I predict that by the end of this year, there will be few if any bad days for you  any more. (maybe a slight exacerbation in august :)

 Diana

 Thanks, Diana. 1000mg is the daily dose on pulse (although some do 1500mg!), so should be what you build up to eventually on a continuous treatment. It has to do with the half life for flagyli--- you want a continuous killing concentration so as to reach tissue saturation. Adequate concentration is what gets it into tissues where it otherwise might not. It helps overcome the efflux pumps in the cells as well. 

I'll take your end of year wishes to heart. May it be so. 

CAPi for Chlamydia pneumonia since 11/04. 25yrs CFSi & FMSi- Currently: 150mg INHi, 200 Doxycycline, 500mg MWF Azithromycin, 1000mg Flagyl daily (Continuous protocol)

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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

Way to go Jim! I'm cheering for you. You have certainly suffered for such a long time with this monster. Showing it the door takes some persistencei but like a big fat ugly drunk guy at a party eventually the host will find a way to send him packing.And everyone will be so relieved. Keep us posted on your progress. You are our Fearless Leader! Raven CAPi since 8-05 for Cpni and Mycoplasma P. for MSi and/or CFSi