Coming up for the 15th time

The usual blinding fog has not descended and I am in the middle of day 4 of 5,  No.15 Flagyli pulse.  But my walking has held, my mental acuity also, and the worse-every-night unpleasant "shimmering, glowing sense in my legs" is almost gone.  (That is why I began this Flagyl 1 week early)  Today I will go for LFT and will after that take my Avonex which will be 8 days.  In the past I was on an ever-declining slope of physical capabiliy, wishing earlier and earlier that I could have my interferon so that I could be a little less tired and walk a little better (with cane or walker) for a few more hours-  after the reaction of at least 20 hours had passed, of course.

 This morning  I did the test for myself that neurologists love: the shin test.  All of us who can stand are familiar with that: you stand, holding on of course, and run the heel of your bad leg down the other shin.   In the past  I could not get within 3 or 4 inches except when I hit it by accident on the way from here to somewhere else.  As a matter of fact, at some point I could not even lift my foor from the floor.  This morning I ran my right heel (the bad one) down my left shin and then again and again.  Not only could I run it up and down, it goes without saying that I could PICK UP my foot to do this.  I just  now stood up to do it again this minute and did it without holding on to ANYTHING.  Perfect, or close enough!  Where is Marie????  Remember, this is 8 days after weekly Avonex on day 4 of Flagyl!  Stay with it, guys.   Requirements are  lots of patience, choking down lots of pills,  and the knowledge that you may not be what you were before this nightmare but I bet you will be better than your worst!  None of us expected to get better so this is miraculous.   And I have two strikes against me.  I am an "older patient"  (I am 66 going on 35) and I am PPMSi.  We are supposedly limited in our recovery in either case.   If this is "limited" I definitely say "GO FOR IT!

Rica

Comments

I remember doing the shin

I remember doing the shin and stork test myself. I also did "walking straight" test. My bad leg was the left one.

Cured of multiple sclerosisi, stopped the Wheldon's protocol in Nov,2008. Use only LDNi.

KK2 - Plaster away!  I

KK2 - Plaster away!  I should post it for myself, somewhere, as I have those 'is this really working' moments, too. But, when it comes down to it, logically, I know it's the only answer.  It's those pesky, intrusive emotions we have to control while we heal. ;-) 

 

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

HI Rica! I'm here! GOsh,

HI Rica! I'm here! Gosh, what a deal, the shin test. You certainly are an example of how to get better huh? What an inspiration. SO now we have the stork, stand on your bad leg and count the number of seconds on it then compare and measure the good leg. Best of three attempts on each leg give you your score (mine is l=5 r=1.5). Also, hop on one leg test. l=4 r=0 for me. Now we have the shin a simple can you lift your leg and run the heel of each down the shin of the other from knee to ankle. For me l=yes r=sort of with difficulty if you can start halfway down the leg (because I can't lift it to the knee) These are good measurable things that you report that people here can easily do. This is really great stuff. Thank You Rica for making the effort to see how it "measures up"! May your meteoric rise to health be fabulously quick now.
Blessings
Marie

On CAPi since Sept '05 for MSi, RAi, Asthmai, sciatica. EDSSi at start 5.5.(early cane) Now 6 (cane full time) Originally on: Doxyi 200, Azith 3x week, Tinii cont. over summer '07, Revamp of protocol in Summer '08 by Stratton due to functional loss; clarithro

Hi Marie Glad to see

Hi Marie

 Glad to see you're out there still kicking.  Since you are now one of the forerunners in this expanding clan we need to hear your progress or lack of it.  So far, there seems to be not a lack of progress but a matter of speed.  We all (at least I do) need to be reminded that we must doggedly plod along in doing the daily requirements: namely the sometimes hourly schedule of taking pills and getting up out of your self-pitying wallow and moving, though that is certainly not your problem.    I think we are all aware that this attitude does exist, though.  Barbara has added another test that neuros. always do- the walk-straight test.  On a good morning in a good week I can walk "normally" for the distance to the barn (125'), the winter feeding schedule of about 1 hour, and the 125' to the house without a bobble or a stagger.)

When do you do Flagyli for the first time?

Rica                                   

If you come to a fork in the road, take it. Yogi Berra

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Abx is the reverse

Abxi is the reverse progression of MSi or CFSi. At first, a few days of MS/CFS punctuated  all the 'good' days, then declined into most days being 'diseased'.  Now abxi causes a few good days to punctuate the MS/CFS, but, in time, the good days increase to the point they are the majority.  The disease didn't appear full-blown overnight and the cure takes the same path, improving over time.  Hang in there.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Very nicely put,

Very nicely put, Mackintosh!  You are such a comfort.  Do you mind if I plaster a copy of this to my bathroom mirror?  It keeps my spirits up and keeps me keepin' on!

 

KK@  :)

Wheldon Protocol for rrmsi since Oct '05.  Added LDN 4.5mg qhs Oct '07.  All supp's.  Positive IGGi's for Lyme Disease,Babesia, & Erlichiosis Sept. 2008.  Currently:  Mepron 750mg bid and Azithromycin 250mg qdi for Babesia.

Thanks for the

Thanks for the encouragement. It's just what I needed to read right now. I'm about 4 months into the treatment for Cpni and a have had a few good days, lots of crummy ones and some outright screamingly painful days. I admire your courage and spirit, Rica. I am probably RRM but I don't see the rapid improvement that others have had with PPMSi. There is probably a degree of how the infection has influenced the brain. I don't have lots of lesions. Perhaps the recovery outside the brain in muscle and nerve tissues takes longer and is much more painful and slower to reveal itself. I have resolved to stay the course and will stay on the treatment as I know I have tested positive for Cpn and IT is up to no good in any case. Reading your account gives me the courage to keep going. This is not an easy road for any of us.
Many thanks,
Raven
sufficit lumen in tenebris
(Rica,you are the light in my darkness today)

Feeling 98% well-going for 100. Very low test for Cpni. CAPi since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NACi,BHRT, MethyB12 FIRi Sauna. 1-18-11 begin new treatment plan with naturopath

 Thank you, RavenIt is not

 Thank you, Raven

It is not modesty or courage speaking, but sheer terror!  I did not have a choice.  I was really sinking fast and I love my life and was not going to hold it much longer so whatever I had to do I would do.  Wharever it was would be better than where I was.  I have said before that if my improvement stopped here I would be forever grateful.  I think my improvement has been not nessessarily fast (I was in thick  fog for the first 8 mos) as suddenly beoming obvious to my muddied intellect.   It has been almost 15 months on abxi.

Rica 

If you come to a fork in the road, take it. Yogi Berra

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am