The clifftop walk Rotherslade Bay

The clifftop walk Rotherslade Bay

Here's a picture taken on the clifftop walk from Limeslade Bay by Mumbles, Swansea to Rotherslade Bay.  After I got MS, I sort of packed in the coarse angling that I used to do and started to do a bit of walking.  I figured that it'd work out for my legs a bit like my company's holiday allocation: "Use 'em or loose 'em!"  I had the boots, the breathable waterproofs, the hat, the lot.  I did walks like that and varrious others many times.

A couple of months back I met up with some colleagues who were sitting about 8 yards away from where I was standing outside a McDonald's.  The youngest of them wayved a voucher for a free coffee.  At this stage of my disability, I weighed up whether the 8 yard walk over to him was worth the money to be saved: it wasn't ... and I shuffled over to the serving counter.  Those with MS know what fatigue is.

It is important before setting out on a journey to plan where you are going.  Before one can do that, you have to know where you are / where you are starting from.  That sounds so very obvious, it it stupid.  Nevertheless, the are many people that embark on much longer journeys than the one in the picture (which is only a couple of miles) and yet they seem to forget where they started from ... and somethimes much of what they encountered along the way.

At this moment in time, that same clifftop walk is beyond my safe capacity (as Dirty Harry famously said, "Every man should know his limitations!").  I am hopeful of regaining enough muscle and endurance to do The Coastal Path again within the next few months.

It is a lovely walk.  There are some awsome views.  One can look out across The Bristol Channel ... where a neat little story teller spent happy times and where, I believe, the love of his life was born.  Here is an essential piece of reading by that said writer; essential for anyone embarking on a journey.

http://www.cpnhelp.org/a_good_forgettory<

Read. Enjoy. Remember where you came from.

G

Comments

Hi there,

 

It looks gorgeous!!!

I have added this to my list of walks to take when I am able.

Here's hoping we are all able to walk a path like this one day....

Hey, who knows whether you'll do this particular walk.  There a better walks than this and better views than this in Wales.  What I am sure of is that you will indeed do a walk like this in the future.  Why do I say that?  I'll tell you why.  As Tom Clark points out, this site is full of some very brave and feisty people.  After what you put yourself through at the start of your marathon, nobody deserves to be rewarded with success more than you.

Hey, send me a picture from your next walk.

(and don't forget where you started from)

G

“Don't believe everything you read on the internet.”

―    Abraham Lincoln<

My memory of 'where I came from' occasionally suffers from that good forgettery.  At my worst, in the summer of 2005, I felt dizzy and faint walking through department stores, I slammed into display racks because optic neuritis had blocked out 70% of my vision, I was afraid to drive because my response time was so slow and my brain, leg and arm wouldn't coordinate enough to drive my stick-shift car. 

I've always been a more than competent driver; I was asked to race cars when I was seventeen (probably because I was fearless and female, not because I was an exceptional driver).  So, it was a real step down to realize I might never drive my beloved Swedish coupe ever again.

ALong came the protocol and the generous doctor who prescribed for me on Sarah's recommendation.  I got better.  I continued to work full time.  I drove.  My vision returned, fully.   I got dismissive.  Once again, I got impatient with those who drove too slowly in front of me.  I navigated the racks and mannequins in the stores just fine, thank you very much.  I forgot how it felt to be 'disabled'.  And when I realized that, I sat myself down and had a chat with me.

We don't just owe ourselves the memory of how bad we were.  We owe it to OTHERS, as well.  I find I'm now much more generous of spirit to those in wheelchairs, using walkers, parking in handicapped spaces, moving 'too slowly', driving 'too carefully', leaning in to read something, whatever.  First off, that could so easily be ME.  It's where I was headed.  I remember the look of shock and pity on a young couple's faces the day I tripped over NOTHING in the middle of a very busy downtown CHicago street.  While I was crashing to the pavement, sprawled face first, purse emptying contents all over the street, cars swerving to avoid me,  I clearly remember them looking at me like I WAS DISABLED and I was shocked.  (What?  Who, me?)

I am a much humbler person, thanks to both the rapid decline I experienced with this rotten disease and then, to my recovery.  I empathize more and I slow down to help more often.  And I really, really appreciate not needing the handicapped placard for my car and being able to spend two hours putting up Christmas decorations in the frigid temperatures (and snow!) and to be able to make plans with friends in the evening and not beg off, or fall asleep in my soup at the table.  I'm very aware my life could have been so drastically different and I'm grateful I got it back, so I could do better the 'second half' of it. 

 

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Hi SupaGuy -

That is indeed another beautiful looking walk!  It reminds me a bit of parts of Point Lobos south of Monterey in Northern California.  I would post some pictures - but it's pretty popular and lots can be found with an internet search.  My Fiance' and I have taken many gorgeous walks at Point Lobos over the last 7 years or so.

Regarding "a good forgettery" by DW - interesting essay.  I for one would love to forget all of the nastiness of this illness for Rick!  And of course as I mentioned - to take a walk in the forest or at a park - somewhere like this would be nice.  Even 100 yards would be awesome - though Rick is as Fiesty and Brave as any one I've met.  I'm his Dad - so I am a bit biased, but I believe his friends would say the same thing about him.

Rick and Jamie are keeping a very complete journal - so he won't forget where he started from - as far as his recovery is concerned.  They may even keep some videos of where he is and how completely he recovers over time.

Best & Highest Regards to all you Brave, Determined & Fiesty folk here - and may your recovery be as smooth and complete as possible, and in your darker moments - may you find the love and support of others, and the internal courage - to soldier on and preservere...

Tom

Proud Parent of Rick - R started CAPi in Nov. 13. Small measurable improvements as of 7/14, more by 10/14.  Holding Steady in early 2017.  "I will leave no stone unturned, no theory unexamined, to help my son." Tommi

Thanks Supaguy!

I hope that you are right! 

I am prepared to give this my all -- but I suspect that the results of CAPi are only partly related to effort.  I think that there are other factors involved.

Right now I am in worse shape than when I started  the CAP -- so I don't like to think about that too much -- but who knows where I'll be this time next year? Maybe going for a nature walk?  I live in hope!

MacKintosh - always so inspiring to read a bit about your progress.  I certainly feel inspired and hopeful.  I am currently not driving but decided to not sell my car because I started CAPi.   However it is not a Swedish Coupe.  But I anticipate driving it and also taking nature walks with my friends again!

Supa Guy lovely photo of a beautiful spot.  I can certainly relate to taking the shortest steps as not even being certain I could make those and now that has been awhile.  But I am making plans for 2014.  There are several flower gardens I want to walk through with my friends. Who have been gracious enough to take me and the cane, walker, scooter or whatever I needed to get closer to the beautiful plants. 

Thank you also for posting a link to the good forgettery.  I do remember a bit getting well after a bout of something and forgetting how bad it was at the time.  Is it possible to regain enough mobility to forget the fear of not being able to walk the few steps necessary to reach the bathroom? Or forgetting that doing one thing means not being able to do the 2nd due to extreme fatigue? 

So grateful for the pioneers, postings along the way and the amazing successes. 

Signing off with much gratitude!

Louise_C

03-23-2013
PPMSi  - May 2009, working with Naturopath since 2009, taking listed supplement_s, plus LDNi 4.5 and

L-Arginine Plus.
[had CCSVI in 2011 - helped a little]
Doxyi 200 mg, Azithromycin 250 M - W - F and NACi 600 mg.
Tinidazole #2 - 1000 mg 11-10 thru 11-14-2013

PS - there is a small Nature Park with a variety of walking trails in the middle of the city.  One of the trails winds to the top of the hill and overs great views.  This is one of the views in the Spring from several years ago.

view of the trail spring 2008

LouiseC,  All I ever did was put my head into the wind and push forward, like so many people here, but thank you.  I know it embarrasses them a little, but I also bow in the direction of Sarah and David if someone says something nice to me, because, without David's determination and fearlessness and Sarah's inner strength and willingness to share, most of us would never have KNOWN there was a treatment that could save us.

 We are an unusual bunch, and I don't mean that frivolously. It takes a certain mindset to dive nose first into this treatment and trust that it will work, despite the naysaying doctors and the hysterical arm waving of the pharmaceutical industry.  It takes tremendous determination to accept on faith that you're still killing the disease when things slide sideways during treatment.   Yet we do it.  And, while it seems to take forever, we are ultimately rewarded. No quick fixes, no headline-provoking miracles.  We just get better and get on with our lives.  There are no wimps here.

p.s.  A twelve year old saab two-door isn't nearly as romantic as it sounds! Wink

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

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