Chronicles of a Rifampinaut: 29 and 30 down, 31 coming

It's been  while since I've posted or really spent much time here.  I don't know why exactly, just have had other things occupying my mind and time.  Even so, I thought I would post how things have gone these last 2 or 3 months, or some short blurb about it.

Both pulse 29 and 30 went better then earlier pulses.  I suspect the reasons are because I started using a gel capi to enclose the dose of Flagyli and I've been becoming aclimated to the greater dosage amount then I had been last summer.  And of course, each pulse knocks the CB load down more so there's always that.

The lower reactions from the pulses has been a good thing; however, not everything is rosey in the state of Denmark, so to speak.  I increased my dose of vitamin Di in November.  I think it may be responsible for some increase in some of my symptoms.  Nothing major or anything, just more difficult walking around, doing things then before.  Of course, some of that may be due to the fact that it's been over a year since I was a daily gym member too. 

For that reason, I have renewed by gym membership, and have purchased an elliptical trainer to use at home.  I just have to start using it and get back to feeling well enough to walk into the gym.  But I am giving serious though to setting up a mini-gym in my home and have a tv and cable box to set up in it if I do.

Other then that, nothing new to report for the most part.  There have been some seriously bad things in my personal life but I'll leave that out for now.  I'm now thinking about the next pulse, pulse 31.  Holy crap, I've been doing this for a while now!

In early April will be the 3 year anniversary of when I started the CAP.  It's when I started NACi and Doxyi.  I did that for a month then added Azi and on the third month did my first pulse.  Whoah, time flies.  I wish I could go back but then, I think that's not uncommon for people to think about.  I just want to get this over with and get well or better then I am now.  I have never had big improvements in anything.  Just small nibbles along the way.  Nibble nibble nibble nibble.  Maybe I'll nibble enough that it will suddenly be a big improvement?  Only time will tell as that's all I've ever had to go on.  So...nibble nibble nibble...I keep up with everything, taking what I should when I should, nibbling away at it.

Comments

Well Rica, I have taken

Well Rica, I have taken charcoal a few times.  It never seemed to make much difference other then the difference it makes in general, bowel changes.  Maybe I was taking it wrong, maybe I wasn't.  Frankly, at this point in time, I don't have a strong urge to try something else, I've tried so many things.  I'm just going to stick to the basics, what works.  Vitamin C works, to a degree.  I do notice that it takes care of the chill/cold sensation that I sometimes get a bit after taking abxi, which my understanding was due to endotoxinsi.  And yeah, the quantity in 1 dose isn't that much.  Musketball vs. canonball, but I take several doses each day when I do it. 

1 gm which each dose of flagyli and another 1.5 grams when taking my daily vitaminsi.  So, 4.5 gms.  I know I could easily double that but there are reasons why I don't.  First and foremost is the counteractive effect it may have on the abxi.  I have never forgotten the article that I saw posted here eons ago, the one that said that vitamin C counteracted some efficacy of flagyl.  I've never been able to find it in order to re-read and maybe correct myself if I misread it but based on my recollection of what it said, I don't want to go overboad with the C.

The important thing is that I'm sticking to the protocol, have stuck to it, in and out of everything, always.  Time will tell if there will ever be any real recovery for me but so far, it's not looking good, and given I'm at almost 3 years, I need something to look good.

best, John

RRMSi/EDSSi was 4.5, 5, 6, 6.5, 6.9999, 6.5 on Wheldon/Stratton Protocol beginning 04/12/2006
naci 4x600 mg/day
doxycycline 2x100mg/day
azithromycin 3x250mg/day MWF
metronidazolei 3x400mg/day then 3x500mg/day

Keep on "nibbling" John!

Keep on "nibbling" John!

Treatment for Rosaceai<

  • CAPi:  01/06-07/07
  • High-Dose Vit D3, NACi:  07/07-11/08
  • Intermtnt CAP, HDose Vit D3:  11/08-01/09
  • HDose Vit D3, Mg, Zn: 01/09-

John,Depending on the

John,

Depending on the mopper (sorry, Norman - but it so SO right-on descriptive), taking absorbers with your vitaminsi is as good as tossing them out, and I never used Vit C as one, but 1G doesn't sound like much - maybe a musket ball compared to an M16 (I thionk that is the army rifle).  Anyway, when I began to use charcoal, it melted the concrete in my legs.  It took minths, so maybe I am wrong, but I felt much, much better.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Hi RicaI've never been too

Hi Rica

I've never been too good about taking mappers; however, since August of last year, when on a pulse, I usually bump up in intake of vitamin C, taking an additional 1 gram with each dose.  I was also using vitamin C drops more frequently at first but have since scaled that down somewhat.  Each drop was 400 IU, if I recall correctly.  Now, I mainly take one once in the morning, to give me a little boost of energy as I make my way out to my car.  The drops have glucose in them too, so it's likely that the glucose boost is what I'm  getting the energy from.

I have some other moppers but usually only take them with the rest of my vitamin regimen in the morning as my day gets started.  Probably not the best idea, but here I am.  Not sure whether moppers would help that much but maybe I'm missing an opportunity to reduce symptoms and notice more changes?  I can't say that I have high hopes for that idea, but I've been wrong before.

best, John

RRMSi/EDSSi was 4.5, 5, 6, 6.5, 6.9999, 6.5 on Wheldon/Stratton Protocol beginning 04/12/2006
naci 4x600 mg/day
doxycycline 2x100mg/day
azithromycin 3x250mg/day MWF
metronidazolei 3x400mg/day then 3x500mg/day

John,It is so good to hear

John,

It is so good to hear from you.  Last night I even dreamed about you, wondering how you are and if you got an exercise machine. 

The other thing that occurred to me is "mopper status".  Do you attend to the requirements of disposing of the poisons that you are accumulating?  If they sit around in your body they create even more havoc than when they are alive.   At least that is my experience.

The bad parts of your life will improve, too, I hope.  Please keep us posted.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am