I'm back with a short update after months of silence and relative well-being.
In my previous blog post I was praising a Romanian brand of mustard for its more than positive effects. In the meantime I have been brought down to earth by several mild relapses and the fact that a few of my symptoms refused to go away completely. However, I can say that my general condition has been more than acceptable, allowing me to function almost normally.
Having assumed for a long time that mine is an fungal infection, I decided about 5 weeks ago to embark on a risky experiment by adding oral chlorquinaldol to my daily regimen. To my utmost surprise, I got some significant improvements such as:
- the warming of my hands, which had been ice-cold since the onset of the disease
- the complete disappearance of the chills
- the gradual return to normal of my thermal perception (I used to feel really cold even in the middle of the summer)
- a gradual return to normal of my hands' color. They had been yellowish and of a very light color ever since the disease onset (almost as if the blood wasn't reaching them)
- the gradual disappearance of some small red inflammations I have had on my hands for about 20 years. As a matter of fact, they initially extended to almost all the fingers and the top side of my palm. Usually there had been no more than 1 or 2 present in the spaces between 2 consecutive fingers. A few weeks into the treatment their number increased greatly and they became swollen and extremely itchy (almost to the point of burning). Later on, they started clearing away and the color of the palms turned pinkish (similar to that of my healthy friends)
- the decrease in urinary frequency (it's almost normal most of the time)
- the polyuric episodes are now far between. I finally figured out what had triggered them (antibioticsi, sugars and cereals)
Chlorquinaldol is considered a mild antibacterial and antifungal and was banned almost worldwide around 1970 due to its potential serious side effect (loss of vision or deterioration of vision acuity). Since I have recently started to feel some vision deterioration, I reduced the dose from 3 x 200 mg a day to 2 x 100 mg + 1 x 200 mg (400 in all, versus 600 mg earlier on). This change seems to have brought my vision within normal parameters.
Since taking fluconazole and itraconazole proved pointless and amphotericin B is not commercially available in Romania I might have to push my luck a little longer. I will do some research into anti-fungals hoping to find an effective one that can be purchased online.
I will get back to you with updates when I have anything worth reporting.
I wish you all full and fast recovery.
Tudor
PS. The CAPi failed to bring me any true relief. On the contrary, I would say it had worsened some of my symptoms. Paradoxically, taking minocycline alone seemed to have helped greatly (maybe it has some anti-fungal properties).
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Tudor
On CAPi from June 2008 to October 9, 2008
Reactive Arthritis, polyuria, infertility, CFSii, CPNii (uncertain)
Now taking:
- Quercetine + Bromelain (2 x 800/200 mg daily)
- 2 x 3 teaspoonfuls of mustard(a brand that has
Hi Tudor, Clearly you are
Hi Tudor, Clearly you are self treating. Saying this for the benefit of any newbies that are reading your blog. And self treating is certainly your perogatrive. Also for the newbie I would add that 4 months on CAPi would not be long enough to bring improvement in the experience of most users posting here from the depth of my reading on this site for nearly 2 years now. Your stopping at the point that most on CAP are just getting into the pulsing phase does not demonstrate an adaquate trial of CAP to prove that it would not have brought you improvement. And this is your blog and you are entitled to your opinion and decisions about personal treatment lie with that individual.
I do find reading your process interesting, not the way I would do it but to follow you over time with your ups and down I will likely continue to read and occasionally give comment to alert newbies to your very experimental process. Wishing you and all reading here health. Louise
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6-07WheldonCAP CPnBb FMSi-CFS20+yr, 11-07Cholestyramine HSPRNx7d-porphyrin+endotoxini
3-08Iodoral, 5-08BHRT, 8-08Same+Bs, 10-08D-10,000IU
2-09Intermit-CAPDoxi
RoxiClari,Tinii, 2-09LDN-CFS1-10-IT+Ursodiol300Bid+Lauricidin
Hi Louise.Thanks for your
Hi Louise.
Thanks for your comments.
In my opinion we are all experimenting. You think CAPi is the answer, I look for alternatives since I don't believe it should take years to see improvement. In my case the symptoms have been light years away from those described by MS sufferers, so it's normal to expect some results faster than them.
My downs have been almost imperceptible under mustard alone, while now, only 5 weeks into the chlorquinaldol experiment, I feel really warm for the first time in almost 3 years. A week ago I would have shivered at 21 degrees centigrade (about 70 Fahrenheit) wearing a shirt and a jacket and now I'm sweating only with a t-shirt. I call this spectacular. I wish you could see how fast the color of my palms returns to normal. Changes occur in days, not in months.
I know I'm gambling but I also see results. I have just found we have Casponfungin in Romania, but it's prohibitively expensive. Maybe I can find a way to get it for free in a hospital. This would help with the fungal infection.
The source of my problem might be bacterial since chlorquinaldol has mild antibacterial properties (it seems to be working on chlamydia too), but what I see on the outside is definitely fungal.
I wish I had more time to tell you the whole story (maybe over the weekend). The signs are way too obvious to be ignored.
Good luck to all of you (CAP or NON-CAP supporters, we are all facing real monsters and looking for the most effective weapons).
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Tudor
On CAPi from June 2008 to October 9, 2008
Reactive Arthritis, polyuria, infertility, CFSi, CPNi (uncertain)
Now taking: