Chlamydia Pneumoniae, BOPC and Emphysema

Hello everybody.

I have just discovered this website and all it's rich content. Actually, I am Polo, 33 years old man, Ex Smoker, since 2 weeks and my problem is the following: I am sick since 20 May 06. Fever Peaks, Muscular pains and also sweat peaks. It has been pretty difficult to discover it was a Chlamydia Pneumoniae. First, the Pr. at the Hospital thought it was a Lymphom. I had a Ganglionic biopsy. It was negative (lucky !). After that they found Chlamydia antibody in my blood.  Not so much (around 500 antibody in blood). They also found a polipal maxillary sinusitusi. I had to threat it with Sofrasolone and Becconase for one month. For the Chlamydia, I received Fisrtly one week Biclar (Clarithromicyne) and then one month Maclar (Also Clarithromicyne). After that treatment, I had 4 times more antibody in my blood around 2000). They also discovered an heavy Emphysema and BOPC in both longs (pretty advanced state due to tabaccologic sensitivity (Alpha 1 antitripsin OK in blood)). So I saw a Pneumolog and I stopped immediately to smoke. My longs are already heavy been injured. All symptoms were still presents after Biclar and Maclar so I received 50 Days Doxycycline 200. Fever was nearly dissapeared and I felt quite better. But after 8 days of the end of Doxycycline, symptoms slowly started again. On blood side, antibody decreased a bit but not so much (+- 1600). I went yesterday to the Doctor who advised me to stop all treatments right now and wait. But I really feel unconfortable. I should start to work again next monday and I am really sceared about coming back of symptoms and fever which is still present times to times. What should I do? What can I expect for the future. Does someone have any idea of possible or expected threatments? Sorry if my case seems quite common on such forum but I didn't received much answers at hospital.

Thanks in advance for your help, piece of advice and reactions.

Chears,

Polo

CPNi for Chlamydia pneumonia since 05/06. CFSi & FMSi<i<- Currently: 200 Doxycyclinei< 1 x/day + Codein and Paracetamol in case of Fever

Polo- Welcome to Cpnhelp. You are the first person here whose main symptoms are predominantly respiratory. The increase in serum titers as you have started antibiotic treatment is called "seroconversion" which means that as Cpn is killed and proteins from it are exposed more to the immunei system the titers actually increase. This is a good confirming sign of Cpn, and not an indication that the infection is getting worse. There are no quantitative measures of Cpn, and so titers only mean you have more antigens.

I would encourage you not to stop treatment, but rather to bring the information about the CAPi to your doctor so that he or she can understand that monotherapy (using only one antibiotic, even if it is in series) is not desirable. Since your doctor is actively engaged in treating your infection, they might be more open to seeing this as the beginning of a long-term Combination Antibiotic Protocol (CAP), rather than hitting it only with short courses of monotherapy.

The increase of symptoms with Doxyi could be from it's increased tissue penetration and antichlamydial effect, and so increased inflammatory and endotoxini effect. If you can stay with it and ride out this effect, and work towards adding a second antibiotic like roxythromycin or azithromycin, you may find additional improvement. It is hard to know how much functional recovery you will have, as smoking and inflammatory scarring can have permanent effects. But we have good evidence about the association between Cpn and lung cancer, and so you should be making your best step possible for future lung health by getting into the CAP. Let us know how it goes. 

CAP for Chlamydia pneumonia since 11/04. 25yrs CFSi & FMSi- Currently: 150mg INHi, 300mg Rifampin, 200 Doxycycline, 500mg mwf Azithromycin, plus 500mg Tinidazole 2x/day pulses every two weeks. Whew! That's a lot! about 60% recovery. Ohio,

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Hello Jim and thanks for your quick reply.

I forgot to mention something in my diagnostic history:

 I have also CFSi and FMSi. They also found few Antibody anti-cytoplasm of the polynuclear ones in my blood but they exclude them for the following of diagnostic.  Should they reconsider it or not? I will call my Doctor tomorrow morning. Sorry if my english is not so perfect and sometimes a bit poor but i'm nativefrench speaking.

Thanks a lot for your answer and help and Take care !

Chears

Polo

CPNi for Chlamydia pneumonia since 05/06. CFS & FMSi< - Currently: 200 Doxycyclinei< 1 x/day + Codein and Paracetamol in case of Fever

CPNi for Chlamydia pneumonia since 05/06. CFSi & FMSi<i< - Curr

Polo- please put the basics of your diagnosis and treatment in your signature. See: http://www.cpnhelp.org/?q=diagnoses < for more information. 

CAPi for Chlamydia pneumonia since 11/04. 25yrs CFSi & FMSi- Currently: 150mg INHi, 300mg Rifampin, 200 Doxycycline, 500mg mwf Azithromycin, plus 500mg Tinidazole 2x/day pulses every two weeks. Whew! That's a lot! about 60% recovery. Ohio,

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Your case is not uncommon at all, even if people get a diagnosis it is often not realised that Cpni may be the cause of the disease.

The treatment that you have received is not sustained enough to treat Cpn.   We take a combination of two antibioticsi with a third added as a pulse.   The treatment should continue for at least 1 year and possibly longer.  The answer to some of you questions will be found in the Cpn handbook.   Top of the page - second tag - green in colour.

Well done for giving up smoking, that is very hard to do, but hopefully if you are treated for Cpn your lungs will recover.

Michele:  on Wheldon protocol since 1st May 2006 for a variety of long standing ailments, also spokesperson for Ella started Wheldon protocol 17th March 2006 for RRMSi<

Sussex, UK

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Hello Michele,

Actually, I will call my doctor tomorrow morning but a bit scared about his reaction to advice him about my treatment. He's Professor and Infectiolog so specialist. I will suggest him what I learned here and ask him if I am eligible for CAPi. For my long, I have to wait 6 months to see the pneumolog back and to make again all the tests for the next possible steps of treatment. I will check the handbook as you advised me to do it. I 'll keep you informed of the answer of my doctor.

Chears,

Polo

CPNi for Chlamydia pneumonia since 05/06. CFSi & FMSi<i< - Currently: 200 Doxycyclinei<i< 1 x/day + Codein and Paracetamol in case of Fever

CPNi for Chlamydia pneumonia since 05/06. CFSi & FMSi<i< - Curr

Polo.  If your doctor reads English you could direct him to Dr David Wheldoni's website, Doctor Wheldon is the British microbiologist who formulated the protocol that I follow for my treatment.   His website explains the research, the protocol and the supplementsi that should be followed.   Here is a link to his website.

 

http://tinyurl.com/8lq9b< <   David Wheldon

Michele:  on Wheldon protocol since 1st May 2006 for a variety of long standing ailments, also spokesperson for Ella started Wheldon protocol 17th March 2006 for RRMSi<

Sussex, UK

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

BAD NEWS ABOUT WEB ADVICE 

Hello All...

I have just called my doctor. He told me normally Chlamydia has to be treated within 3 weeks so that I received enough treatment; I have to continue to take them and he sent me to a Systemic Deseases Specialist. I have also to do a MRI of the head and see her after that to chech ANCA problem. I told him about website but he told me he doesn't want to follow unvalidate content. :-(( I will try to consult another one but hard to know wjho care about that disease in Belgium. Someone Any idea or piece of advice therefore?

Thanks

Polo

CPNi for Chlamydia pneumonia since 05/06. CFSi & FMSi<i< - Currently: 200 Doxycyclinei< 1 x/day + Codein and Paracetamol in case of Fever

CPNi for Chlamydia pneumonia since 05/06. CFSi & FMSi<i< - Curr

 Welcome to Cpni Polo.

I see it is like by me and most of us.  "He told me normally Chlamydia has to be treated within 3 weeks so that I received enough treatment." Yes, he is a specialist, he can write but he can not read!

Change him for an open-minded physician! I had to do the same! I went through monotherapy many times and no benefit!

Good luck !

Jan 

CR /Prague; On CAPs:12/01/2005; 20 years CFSi, then fibromyalgiai; about 10 years chronic sinusitis, laryngotracheitis, from 2002 hoarseness;  from 2003 - v.s. lumbosacral meningoradiculitis, hypertension">i.  November 06 - big improvement

On CAPs:12/01/2005 till March 2013; 20 years CFSi,IBSi, fibromyalgiai; about 10 years chronic sinusitis, laryngotracheitis, from 2002 hoarseness; from 2003 - v.s. lumbosacral meningoradiculitis, hypertension">i... 

Jan, that is priceless: the ultimate in specialization......Sarah

An Itinerary in Light and Shadow
Wheldon regime since August 2003, for very aggressive SPMSi.  Intermittent therapy after one year. 2006 still take this, now two weeks every three months.  EDSSi was about 7, now 2. United Kingdom.
Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.
Hi Polo, the treatment specified on David's site might not be "validated" by millions of trials but it is done with the total support of all the senior doctors at his hospital, apart from the neurologist, who stormed out of the radiologist's room saying "I can't see that!" when my new, improved scans were offered for him to look at.  If you printed out the following pdf from his website and gave that to your doctor, it might help: http://www.davidwheldon.co.uk/ms-treatment.pdf<

It is an abbreviated version of the website and lists treatment dosages and so on, and explains why three weeks treatment isn't enough to get rid of a chronic infection of chlamydia pneumoniae.  Being in Belgium, you have a big advantage over many people, in that roxithromycin is available.  We can get it in the UK but it isn't on the national list, so the doctor has to agree to get it from France and many won't because of the cost.  It is just as effective as azithromycin, if not more so, plus it is much more tolerable.......Sarah

 

An Itinerary in Light and Shadow
Wheldon regime since August 2003, for very aggressive SPMSi.  Intermittent therapy after one year. 2006 still take this, now two weeks every three months.  EDSSi was about 7, now 2. United Kingdom.
Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hello All,

Thanks for those helps and replies. I already called my Family Doctor and tried to convince him about importance about multi therapy. I also advised him to read some links I sent to him. He seems more opened and I adviced him to read content of this Website. I have to call him back next week about that. I also see the PR next Thurday and also have to visit a System Desease Specialist. Probably about presence of ANCA in my blood. I ll keep you informed about progress. By the way, already thanks for all thos pieces of advice.

Chears...

Polo 

CPNi for Chlamydia pneumonia since 05/06. CFSi & FMSi<i - Currently: 200 Doxycyclinei< 1 x/day + Codein and Paracetamol in case of Fever

CPNi for Chlamydia pneumonia since 05/06. CFSi & FMSi<i< - Curr

Hello again all,

I was wondering if there is a correlation between Anca presence in my blood , System Deseases and CPNi? May be someone can help me on that topic. Thanks

Polo 

CPN for Chlamydia pneumonia since 05/06. CFSi & FMSi<i - Currently: 200 Doxycyclinei< 1 x/day + Codein and Paracetamol in case of Fever

CPNi for Chlamydia pneumonia since 05/06. CFSi & FMSi<i< - Curr

 Anti-neutrophil cytoplasmic antibodies (ANCA<s)

 Cpni - white blood cells - vasculitisi .....

Jan  CR /Prague; On CAPs:12/01/2005; 20 years CFSi, then fibromyalgiai; about 10 years chronic sinusitis, laryngotracheitis, from 2002 hoarseness;  from 2003 - v.s. lumbosacral meningoradiculitis, hypertension">i.  November 06 - big improvement

On CAPs:12/01/2005 till March 2013; 20 years CFSi,IBSi, fibromyalgiai; about 10 years chronic sinusitis, laryngotracheitis, from 2002 hoarseness; from 2003 - v.s. lumbosacral meningoradiculitis, hypertension">i... 

Hello All...

Tomorrow visit to the specialist hoping to convince him of benefit of 3therapy CAPi. Last week I had an IRM of head to chek sweat pbm and probably exclude something else? I still need to wait tomorrow to have more information about future threatments.

I ll keep you posted.

Chears,

Polo

CPNi for Chlamydia pneumonia since 05/06. CFSi & FMSi<i< - Currently: 200 Doxycyclinei< 1 x/day + N-Acetyl Cysteine 3 x/day and Codein and Paracetamol in case of Fever

CPNi for Chlamydia pneumonia since 05/06. CFSi & FMSi<i< - Curr

Good luck.

Michele:  on Wheldon protocol since 1st May 2006 for a variety of long standing ailments including IBSi, sinusitis, alopecia">i, asthmai, peripheral neuropathy, also spokesperson for Ella started Wheldon CAPi 16th March 2006 for RRMSi<

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

I went to Hospital this morning. Actually I got the result of Head IRM. They found little white matter lesions from few millimeters. I have to go to the hospital tomorrow, at Neurological Dpt to make more exams. I absolutely do not know what can I expect. I received a quick invitation from head of Service to do those tests. Do someone have any idea?

Thanks for reply

Polo 

CPNi for Chlamydia pneumonia since 05/06. CFSi & FMSi<i< - Currently: 200 Doxycyclinei< 1 x/day + N-Acetyl Cysteine 3 x/day and Codein and Paracetamol in case of Fever

CPNi for Chlamydia pneumonia since 05/06. CFSi & FMSi<i< - Curr

Hello all,

 I have to make a spinal cord IRM to check if there are also anomalies on it. I 'll keep you posted.

 Chears,

 Emmanuel

 CPNi for Chlamydia pneumonia since 05/06. CFSi & FMSi<i< - Currently: 200 Doxycyclinei< 1 x/day + N-Acetyl Cysteine 3 x/day and Codein and Paracetamol in case of Fever

CPNi for Chlamydia pneumonia since 05/06. CFSi & FMSi<i< - Curr

Hello, Polo: there's quite a long segment on the point-size lesions typical of CFSi/ME in the book Osler's Web. At the time the book was written, they were "defined away" as a symptom, even though they are extremely common in CFS/ME, because similar lesions are sometimes observed in people with no clinical symptoms of CFS/ME.

I don't know the current status, though. Let us know how it comes out! 


Ron

On CAPi for CFS starting 01/06 (NE Ohio, USA)

Currently: doxyi & zithi -- continous; metronidazolei -- 4days on, 7 days off.

Ron

On CAPi for CFSi starting 01/06 (NE Ohio, USA)

Began rifampin trial 1/14/09

Currently: on intermittent

Hello dears,

 Long time ago but I had to wait results of Spinal Cord IRM witch is unfortunately positive. I was been diagnoticated a multiple sclerose last week. I had also to have a break before coming back to absord and admit that news. Actually I had other disorders which are now directly connected to sclerose. But always same answer when I asked if there was connection with CPNi positivity = A big No. So I am bit confused and really have other things in my head like now. For the moment, (before receiving new threatment), I have to wait next push (and step !) of sclerose. I received a  permanent contact person to call in case of new symptoms who can have a quick appointment to my New Professor, within 48 hours. But another question right now for me is to know if it is necessary for me to tell that to my boss, for example. Problem is that I work in shift and because of sclerose, they told me I have to stop that as soon as possible. What do you think? Could someone either help me or give me piece of advice?

 Thanks...

Chears !

Polo 

CPN for Chlamydia pneumonia since 05/06. Threatment Break right now

CPNi for Chlamydia pneumonia since 05/06. CFSi & FMSi<i< - Curr

Polo, mon cher ami, vous savez bien que les docteurs ne savent pas grand chose a propos du Cpni.   Je continue en Anglais pour les autres...

A Belgian doctor Paul Le Gac, started treating MSi patients with antibioticsi in the 1950's.   Here is a link< to Dr D Wheldon's site who first brought his work to our attention.   So if the doctors won't listen to you maybe they will take notice of one of their bretheren.

You will have to bite the bullet and read the basic pages< of the handbook so you can understand it well enough to explain it to your doctors.   I think that one useful analogy is to explain that Cpn is like tuberculosis, difficult to treat and only treatable by the use of a combination of antibiotics taken over months or years rather than days or weeks.  

You are lucky that your MS is not too far advanced and that if you can convince a doctor to prescribe for you it is likely that you will make a good recovery.

We cannot advise you of course about what to do about your work, only you will know how much your shifts take out of you, but stress is not good for people with MS.   When and if you tell your employers about your condition is again up to you.   Once it is out in the open you cannot go back, and if you do get treatment and do not get any more symptoms then maybe you can get away with it.   A lot depends of the kind of work you do as well.   If you are operating dangerous machinery then you have to weigh up the risks seriously. 

Most doctors will not know that MS can be stopped in its track by a CAPi and so they will advise you only from their own experience of MS in their patients.

Please take time to read the information avaiable here.   It is very important that the antibiotics be taken in combination to be effective, so not one after the other, as you describe you have received so far but, doxycycline and azithromycin together and when the reactions to those have become acceptable then you add a 5 day course of Flagyli every three to four weeks.   I would advise you to start taking the supplementsi that the treatment requires, this you can do without the help of a doctor and will stand you in good stead once you start the CAP.   Here is a link to Sarah's list of supplements<. NACi, Vit B12 and Vit D3 are particularly important.

Michele: Wheldon CAP1st May 2006 for ailments including IBSi, sinusitis, alopecia">i, asthmai, peripheral neuropathy. Spokesperson for Ella started Wheldon CAP 16th March 2006 for RRMSi. Sussex UK

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Welcome back, Polo. Glad you are here. We have all had to go through the week of acceptance - not an easy thing. But you got through that. Now to business. If I had been diagnosed 10 years ago when my symptoms were fairly negligible, I could probably live very normally. However, I have accepted also that I am fortunate to have regained as much function as I have and will not waste my time with useless wishing. My feeling is: get on with it! You will be the leader of the early ones.

 

Rica PPMSi  EDSSi 6.7 at beginning - now 2.  Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith,  cont. flagyli  total 39 pulses NC USA

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Hello Polo, I am so sorry to hear this, but from what you said in your first post, I am not surprised.  In addition to what Michele and Rica have already said, if you could please send me your email address by private message, I have a couple of things which you can print out to show your doctors.  This is the only way I can do it, but they have convinced several doctors already to prescribe for their patients.  At present I think this is the best way forward..........Sarah
 
An Itinerary in Light and Shadow
Wheldon regime since August 2003, for very aggressive SPMSi.  Intermittent therapy after one year. 2006 still take this, now two weeks every three months.  EDSS was about 7, now 2. United Kingdom.
Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hello dear all and thank you all for all those piece of advices. Very helpfull for me. About job I am network Engineer but very stressfull job. Actually I am searching something else internal or external to be more able to assume my disease. So I will read this bunch of information this afternoon and will get you posted. Problem is also that I have to call permanent contact in case of peek of symptoms or apparition of new symptoms. But problem is to know if it's one of them or something banal sometimes... I never contacted her yet. But sometimes, I fell bad or have kind of new symptoms (visual for ex or bit depressive and exessfull sensitive)... So if you have again any idea...

Thanks a lot...

Kepp you posted later...

Chears...

Polo

CPNi for Chlamydia pneumonia since 05/06. Threatment Break right now

CPNi for Chlamydia pneumonia since 05/06. CFSi & FMSi<i< - Curr

Polo, as you know the term Multiple Sclerosis is a description of what happens to some of your nerves and parts of your brain, they get multiple scars. What causes these scars in the first place we think here is an attack by your immunei system on an undetected Cpni infection, so the symptoms that you might get will most probably be down to Cpn, not all of them will be recognised by MS specialists as being due to MS. For instance breathing problems, skin rashes, circulation problems may not be seen as MS symptoms particularly at your stage of the disease. However eye problems, numbness and loss of function will. So if you are talking to a MS specialist nurse or support contact, then they will only recognise those as being relevant. We on the other hand find that most of these other symptoms improve when we treat Cpn.

In my case (not an MS patient) I have seen improvements in my hair, asthmai, sinusitis, lower back pain, repetitive stress syndrome in my right hand and tongue numbness/burning. None of these would interest a MS specialist. But I know that you have other symptoms relating to Cpn that are not neurological, they too should get better with the CAPi.

Michele: Wheldon CAP1st May 2006 for ailments including IBSi, sinusitis, alopecia">i, asthma, peripheral neuropathy. Spokesperson for Ella started Wheldon CAP 16th March 2006 for RRMSi. Sussex UK

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Hello dear all.

Appartition of new symptoms (feeling of sleeping from part of rear of head) and contact to link at hospital. Need to have again IRM of spinal cord + taking monster in spinal cord to determine threatment + stage and immediate internment at hospital in case of new symptoms.  I also asked to change my rule at my job to have a more stable job without shift work. So now waiting after hospital...We will see I ll keep you posted. And sorry if i didnt (Sarah ... :-( ) I ll do it soon. I had to manage all those stuffs

Chears,

Emmanuel

CPNi for Chlamydia pneumonia since 05/06. Threatment Break right now

CPNi for Chlamydia pneumonia since 05/06. CFSi & FMSi<i< - Curr

Emmanuel, don't worry at all, you have too much to think of at the moment: the last thing you need at the moment is stress and worry, so try to relax.  It is a good thing that you have tried to change your shift patterns at work: that's a big start.......Sarah
    
An Itinerary in Light and Shadow
Wheldon regime since August 2003, for very aggressive SPMSi.  Intermittent therapy after one year. 2006 still take this, now two weeks every three months.  EDSS was about 7, now 2. United Kingdom.
Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hello Hello...

Yes indeed and the most difficult is to accept the multi sclerose. Some times symptoms dissapear... But the day after, you're waking up, and still in your bed, you feel pain in hands and legs as you jogged all the night, and/or other symptoms telling you it is really present. That is really dissapointing. By the way I have to wait my next hospital internship within 10 days and stay patient. I am getting mareid this year and also have to focus on that thing too ! My biggest allied, chance and joker is my wife ! But I am really wondering what can I expect as threatment. Apparently Cortisone and Interferrons but nothing else exists right now? And about symptoms, the worse i that there si no typical scenario's so that no one can tell me the future to be expected.

Any Idea?

By the Way,  I ll keep you posted

Chears,

Emmanuel

(Sorry if some spelling errors - english not mother tongue)

CPNi for Chlamydia pneumonia since 05/06. Threatment Break right now

CPNi for Chlamydia pneumonia since 05/06. CFSi & FMSi<i< - Curr

Hello again Polo, This protocol is a few months older now, as are those MSi patients who are taking antibiotics. We don't mind at all your "cute" English - it is better than most American's second language. How is your fiancee's English? Please read CPni Simple on this site. I have been on at least 3 of these abxi for 2 1/2 years continuously: Doxycyline, Rifampin, Azithromycin, and Metronidazolei (flagyl). I was on Avonex (interferon) for 1 1/2 years and steroids periodically. They treat only symptoms, and that at best barely; I have been off of those for almost 2 years and have only improved. Please think very hard and seriously about taking this on. If you are like the rest of us with MS, you will only get worse. It is less and less fun.

 

Rica PPMSi  EDSSi 6.7 at beginning - now 2.  Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxy 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith,  cont. flagyl  total 39 pulses NC USA

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Emmanuel, officially, there is no cure for multiple sclerosis, that is true.  The interferons work to lessen the number of relapses with the relapsing remitting stage of the disease and steroids work to lessen the symptoms to some extent, less as time goes on.
 
This site has many people with MS who have completely stopped the progression of their disease and have not had a single relapse since starting treatment.  I stated three and a half years ago and have done nothing but improve since then, as you can see from my signature.  Katman (see above!)and LifeontheIce are two other people who started quite a while ago and have experienced the same or better.
 
The unfortunate thing is that most neurologists just don't believe MS to be caused by an infection, so won't treat it as such.  You are far more likely to find a GP willing to treat you.  I had my husband, so I didn't have to look too far.  He has now treated many people in this country and advised other doctors in other European countries.  Did you get the email I sent you?  Print out what I gave you and take it to your GP if your neurologist won't hear of it.  If your neuro is slightly openminded he might be willing to use at least doxycycline with an interferon.
 
You are very early in the disease so you have a good chance of getting it out of your system very quickly.......Sarah
    
An Itinerary in Light and Shadow
Wheldon regime since August 2003, for very aggressive SPMSi.  Intermittent therapy after one year. 2006 still take this, now two weeks every three months.  EDSS was about 7, now 2. United Kingdom.
Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.
Hello dears, Diagnose confirmed with analyse of my spinal cord monster is MSi positive... Back to neurology next thursday... I ll keep you posted... Not so much enrgy right now and new symptoms on MS side... Cheers, Emmanuel

CPNi for Chlamydia pneumonia since 05/06. CFSi & FMSi<i< - Curr

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