Vitamin D

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a vitamin found in cod-liver oil, milk, and egg yolk, that is necessary for the growth and health of bones and teeth. Vitamin D prevents rickets. It exists in several related forms, including D-2 (calciferol), D-3, and D-4. Vitamin D is a fat-soluble vitamin, produced by irradiating ergosterol and other sterols.

Ella's Pseudorelapse experience

I was going to write about Ella’s experiences with Flagy after she had complete 10 pulses, but some people have been asking about her and Marie asked me to write about her pseudorelapse so here it is a bit sooner than I anticipated.

At the end of November 2006, Ella completed pulse 4 comprising of 6 tablets of tinidazole. Her first three pulses, had been fairly uneventful although she had noticed some right hand weakness gradually creeping in over a couple of weeks after pulse 3. During the time she was taking the Tinidazole her balance was poor and she got very tired but seemed to recover from these symptoms shortly after the pulse ended.

Striking a Balance in CAP Treatment

My hamstrings, left knee, and glute's are crying out for a Flagyli pulse, but I am afraid of the deficits in my left hand and parasthesias from the last one. I think this is the longest I have ever delayed a pulse and my knee is very sensitized and irritably swollen to show for it, often giving way beneath me whilst attempting to go about my daily business. I have been able to tolerate 600mg NACi daily now for about three weeks and about 1000iu's of D3/day as well. Lots of muscle tightness and pain, which makes me really wonder about the replicants/EB ratio model. It makes sense to me that the increase in aches and pains[which make ambulation nearly impossible]seem to correlate with the image of EB'si spiralling out of control due to many months of taking doxyi and azith. Hmmm..

ruthless1, Canada

Multiple Symptoms, here is my diatribe!!  I was new to the site April 06 & I have Fibromyalgia-FMSi, Chronic Fatigue Immunei Deficiency-CFIDSi/Myalgic Encephalomyelitis">i- ME, Chronic Lyme Diseasewith the usual cornucopia of underlying symptoms, crashes, flu like symptoms, migraines including CPNi, Babesia & recently hereditary genetic Hemochromatosis. 

Lest I forget...

Just a few updates here. Still delaying pulse 16 as I continue to have bothersome parasthesias in my weaker arm/hand. Still cannot cup my left hand very well--almost seems to come and go. As per the trend lately I have increased from 2000 to 3000iu's D3 each day and have noticed much more spasticity--hardly slept last night. Of course, I forgot my cal-mag last evening...oops! The restless leg thing was quite annoying, however I had doctor visit today regarding all of my psych. meds. I know the wellbutrin SR makes me feel drugged and agitated all at once, but it successfully kept me from just wanting to sleep all day. I rarely need a nap anymore so will begin decreasing it very gradually, and the same with zoloft[vitamin "Z", I call it--lol] eventually.

Vitamin D Improves Athletic Performance

Here's some interesting information about Vitamin D and athletic performance:


Hearing loss and vertigo

I haven't posted for awhile but I do come on and read. I am Dr. Powell's patient. I am currently on the Vit D therapy. Have been on antiboitic protocol since April 2004. I have seen some improvements but still have significant problems. Feb. 16 I became very sick with vertigo, vomiting and all over body pain. Over night I lost my hearing on one side. I already had bilateral progressive hearing loss so now I am left with about 50-60% hearing on one side only. After about 3 weeks I was finally able to get into see a specialist who put me on Famvir and prednisone. The famvir has helped.

Going down for the 40th time

Before I submerge too far I thought I would do a short blog on the "feel good" time between my 39th pulse and the one (#40) that I began this morning. The message I want to convey is: it did take the 11 days of recovery but then last Saturday, the 19th day post-pulse, began the best days I have had since 2003 and better than many of 2002. As I hoped for, the rather brutal attack on my hips and knee resolved itself and took that pain and some more brainfog and vanished like morning fog being burned off by the spring sun. It has been a really, really good week with many hours of hard work, which I happily welcome. A second point is that I have been able to extend the time between to 24-25 days. My legs spoke last night but in muted voices - I could barely hear them.

Lots of Changes

I haven't been reading or posting for awhile because my Doctor took me off Flagyli and Zithro because of an extreme reaction to it (slammed & lost 15 lbs in two weeks). Also he put me on Vit D so I assumed I was no longer a CAPi person, but I just remembered I will only be on the D (up to 10,000iu per day now) at the high dose for 4 weeks then I will undergo blood testing and then back to the Flagyl and Zithro. I am having a bad (I was going to say day, but I amend it to year!LOL) I left my husband, moved in with my daughter, was asked to move,moved in with my son, was asked to move, moved in with my friend, was asked to move and moved back in with my daughter who has been begging me to come back since I left!!

2 1/2 years - now this?

For a very long time I have believed that my post-flagyli was a mirror image ot my pulse. This one, number 39, a REALLY good one, made a fibber out of me. Number 38 was abbreviated to 3 days because we had very special company coming from Canada and I sailed right through it. But I think the last two day's targets were saved up and gunned right down at the very beginning of the next pulse. I hereby pull out Jim's old descriptive word - slammed. This pulse took 11 full recovery days during which every step was agony and attacked with real vengeance in addition to my right hip, my left hip and out of absolutely nowhere, my right knee. Suddenly, in a few hours, it vanished. But now my knee bends when I walk!
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