NAC

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N-Acetyl-Cysteine.Amino acid used as thiol reducer to burst EB phase of Cpn, and supports liver as glutathione precursor.

Newbie questions

hi..  first off, i REALLY appreciate  any response from current members..  i am new to CAPi.  i just started over a month ago..  though side effects have been a bit harsh, i feel no pain, NO gain mentality .. 

JUST started CPN protocol

wow, i dont know where to really start without saying HELLO first.  its been a LONG 8-10 years of being sick, seeing MANY physicians, and thousands of $$$ later before i really have some what of a guide to getting well.  to just give you a BRIEF summary of my illness, i worked for a poultry processing plant for >10 years and @ the time did NOT think it would cause such heartache, but in a educated hindsight, it created my current condition.  prior to working there i was ENERGETIC and full of life.  well, because it was SUCH a subtle deterioration i didnt put my finger on the enviornmental toxins until 2-3 years ago.  some of the few things i contracted while working there was eczema, asthmai, fatigue, brain fog, dry skin (my skin had always be sooooooo oily) among other things.

nac brands are there differences

I recently upped my nac consumption to5 grams. I usually use pritans pride 600mg capsules which of course have a heavy sulfur odor. I ordered some from vitcost that came in larger jars. I was a bit dismayed to notice that there was no odor on the vitacost nac becase cysteine has a sulfur odor and even your urine smells of it after taking decent doses. Is anyone familar with the vitacost nac? How can they make it odorless (i even opened p the capsules) I am concerned because I am using it as a liver protectant and as part of the protocol. I guess i am wondering if it is ok or not. I emailed the compay no response yet. Barbara

Brenda's Progress

This is for Brenda who finally, after two years of Rifampin and flagyli, got her Doxycycline. She has been on it only for two weeks and today called to say: My grandchildren told me that I am walking better. I can lie on my back and draw my legs up and push them out again without cramps. I can turn over. Today I carried laundry out and hung it on the line. The feeling that I am dirty and have to get in the shower every ten minutes because my legs have movement under the skin, is going away (this was undoubtedly muscle spasms). I have lots more energy. AND .... her grandchildren came home with honor roll report cards.

Best pathology

Today I had my post-op checkup - "spectacular", got the drains and the Iron Maiden (my name for the ace bandage) removed, permission to drive (hot dog!), restrictions - don't lift 50# bags of grain for 4 weeks - not even 25# buckets. Will do. The very best part, though all that was pretty good - absolutely clean path report.

A Committee of One of Three of Many

Today I am eighty days post twenty-six day flagyli pulse and though I have not been around the world, I feel as though I have climbed my share of mountains. I was going to do another long pulse in January but have postponed it for two reasons: the first reason is that I have noticed, as have many of us, that the longer and more intense the pulse, the longer the recovery. It has been no exception with this extended (for me) one. I find this as a signpost for us - don't feel that "this is not working" if you choose to go outside the boundaries of the written protocol. This applies with the regular protocol, also, especially early on when this foe is lining up its defenses. We are writing in blood the new rules.

Who the heck is Pandora?

look inside the box and see what's in there .........

SUPPLEMENTSi!!!

All sorts of pills in different shapes and sizes, and BRANDS.  So here's the question - Does anyone detect differences between one or the other?  Does it matter where we buy them? Is NACi the same regardless of where it's bought?

Amoxicillin & NAC

Hi,

After Paula has taken her 14 days of Ivermectin in the new year, she will start on the Amoxicillini 500mg twice per day.  By then she will also be on 2400mg of NAC.

She has a 2 month supply of Amoxy.  It was suggested in an earlier post that maybe the doc has perscribed Amoxy, knowing she is already taking NAC, to give the EBi's a big kick where it hurts!

Paula would rather not take the Amoxy full time because there will be enough die-off of good bacteria with the other abxi's that she will be taking eventually (even with taking acidofilus).

So I have two questions to ask:-

1) Should we continue the Amoxy after this two month course (We will be taking the 2400mg NAC every day anyway)?

And just when I thought I was cruising through...

Went to my Dr on Monday after six weeks of Doxyi 200mg/MWF of Azith 250..time to add the  bad boy.  Flaygl.  He voted for 250 1x day for 5 days since I had only minor reactions to the other meds.

 Went straight to CVS and took my first dose Monday night.   Tues, Wed, Thursday came and went, I have been working about 50 to 58 hours the past couple of weeks and still doing reasonably well.   Sat in the infrared sauna for 30 mins on Tues evening and got shaky so no more for the week.  

FMS symptoms, besides pain meds??

Good afternoon!

I've been having fibromyalgiai symptoms for the past 4 days- neck, left shoulder, back of head, band across my head from 1 temple to the other, down my spinal cord. I haven't dealt with fibro symptoms in several years and I can't remember what I can do to relieve my pain and stiffness.

I've been taking Lortab (Hydrocodone with acetaminophen) and/or Ultracet, aspirin, using a topical analgesic oil rub and a moist heat wrap. I'm also stretching. I've considered the chiropractor and massage therapist just haven't made appointments yet.

Restless Legs??? Need answers quick please!

Restless legs?? Need answers quick please! I was out last night with my friend when all of a sudden I felt like I was going to have a seizure.  I have felt this way on and off since starting the protocol so I know it's part of the cpni (besides having a hx of these sizures which i now know is Cpn related seizures). Had not had feelings of a seizure in a couple of years before CAPi protocol. Anyway, after that I realized that I felt I could not stand up. My legs were so weak and I started having the sensation that ants were crawing inside legs. Haven't had restless leg syndrome since last winter with EBVi. And it got really bad last night.

Best day yet! Quick update...

Best day yet! Quick update on my health... I'm in 2nd week of NACi 600mg, Doxyi 200mg, and Erythromycin 250mg and I actually had a decent day. Had stamina for about 6 full hours of work today and I've been online a while tonight. I was only nauseated once today and was able to knock it out with some good ole' fashion compazine. I've been stuffy for several days and sneezing, but not so bad that I can't deal with it! Much better than the NAC flu!

I'm tiring now, but actually feel like I can say I felt better today than I have since starting CAPi. I'm trying not to set myself up by reminding myself that tomorrow is a new day, come what may, and not to get discouraged if this doesn't last.

my story...

Ok, my name is john. i'm going to try to write this quick and keep it relatively short because my thoughts come and GO pretty fast. i've gotten used to it and it only irritates me in times like this when it's important for me to get the thoughts on the paper fast. I'm here because of a friend and a discussion that we were having about the length of time someone can have these problems and still be moderately functional as a person. JimK's name was brought up because apparently he had this problem for quite some time. i would have written him directly but i thought it would be more appropriate to do this...

One Week Under my Belt

Happily I can report nothing too dramatic.   Friday evening had some very weird jolts of electic shocks in my left hip and then in my left foot.  Glad I had read on here that was a possibility so the weird stuff doesn't freak me out too bad.  Now it's more of an out of body experience of "Hmmm, that was odd" and keep on going.

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