Here I am back again with a couple of things I meant to say before.

The first is just a funny coincidence - my blood pressure at my check-up was my weight over my age: 106/70.

The other has nothing to do with our protocol.  It is that next week we are getting solar hot water!  We almost went entirely solar at the beginning but "chickened out" and decided to try this first.  There is a federal tax rebate of 30% and NC has a 35%  tax rebate in addition. 

A few days after our decision, we learned that a very famous dairy goat judge, breeder, and dairy owner is doing the whole thing.   She is in CA and hers is the second largest solar profect in CA.  This is incredibly exciting that all this is happening!

Rica

It appears that living right can do good things.   And the young coyote is alive and well - she was not euthanized, but instead released, due to a catch-and-release program!

Today was my annual physical, and I passed with high flying colors.  Such adjectives as: phenomenal, amazing, beautiful, and several others were used.  I was told again that my doctor has fully realized that there is a Vit D deficiency across the county - he used the word "epidemic" - where have I heard that before?  Incidentally, mine is again down to 65, so I will increase my intake again from 8,000 to 10,000 for a while.  My level seems to go up or down as my diligence - unwitting or not - ebbs and flows.   

Hello all!  I have not yet started the CAPⁱ and am still trying to find a doctor in Ottawa, Ontario, Canada who will work with me to try the CAP empirically for Cpnⁱ (does anybody have any suggestions?).

 

In the meantime, I haven't even started NACⁱ yet until I find a health care provider to support my journey.  But I have read some worrisome posts recently about NAC and negative impact on the heart or other negative effects.

 

Can anyone provide me with more information before I get started so I can make a decision about the NAC as a fundamental part of the protocol?  Are people switching to Amoxicillan and is there some evidence that they are not in fact interchangeable after all?  (Read some post about that...)

 

I decided to try a limited set of the supplementsⁱ: vit E, vit C (+ a couple of oranges, and juice at breakfast), vit D3, ALA, Milk thistle, and melatoninⁱ. I decided to leave B12 and NACⁱ out for now. The reason I leave NAC out is that I want to supplement the others in order to counter any deficiencies there to increase the chance that any reaction is a NAC-flu from action on Clamydia EBs (is it a good idea or unnecessary, well see below, too).

This is a very short blog about a tortoise in the slow lane. For many years (how does this happen? - we shouldn't blink!) I had a solitary discussion about arthritis:

(1) I was getting very old very fast. (I was 55) and everything hurt.

(2) My hips are in agony.

(3) My fingers and shoulders hurt all the time.

(4) My neck is so stiff that I can't turn my head.   It hurts even when I don't try to turn it.

Most of my joint pain went away while I was "sleeping" that first couple of years. Then my hips were incredibly painful during walking - then it went away. My finger joints were worked on one at a time and have slowly stopped hurting, though still have  some residual swelling, probably permanent, which I accept.

I recently came across this article. I think it is warning about the strength of NACⁱ becoming lessened by air oxidizing it. I really do not understand such things so please don't think I am bringing this here to say it is another problem for us to address. But having said that, it got my attention and I do want to find out now if perhaps there is some validness to this issue. Where better to ask than here where there are many brilliant minds to help me discover more truth. You have not steered me wrong yet. My gratitude!

In the meanwhile, I am considering ordering this particular brand of NAC to find out for myself if in fact it feels more effective for me. I will of course eventually get back to you with my findings.

Many times I read for the great pleasure gained and to satisfy my curiousity, but I discovered Greg Mortenson, Three cups of Tea, and now Stones into Schools. Along with wishing the Nobel Prize for Medicine for our cpnⁱ crew, I wish the Nobel Peace Prize for Greg Mortenson. And I am hardly ever much affected by movies, but last night we saw "Seven Pounds", with Will Smith, and will probably be affected for the rest of my life.

As for my own cpn protocol against PPMSⁱ, I still chip away daily with my five abxⁱ plus caffeine. We all tweak and listen and tweak some more, but I seem to have stumbled on a tight turn of the screw, thanks to John (farandwide) and Paul.

What if I'm healing quickly?

I feel like I am living a miracle.  After 25 years of interstitial cystitisⁱ and fibro, the CAPⁱ has me basically well within 4 months. I had the high antibodies for cpnⁱ. I had started Cortef for adrenal exhaustion and thyroid meds for Hasimotos...so I was already about 70% well from tackling those issues.

I contacted Dr. Stratton and he gave me his protocol (doxyⁱ, Biaxon, Flagylⁱ) and I seem to be healing quickly.  I tried stopping after 2 months and the pain came back in 10 days....it was horrible!  I just finished 2 more months and am commited to going at least 6 full months.

We spoke to Dr S just now.  He was approving of my going back on flagylⁱ, and, because of nausea, cutting back on caffeine. 

A couple of interesting and heartening bits came of the conversation.  One is that I will continue with this protocol for another three months and call him again, sooner if there is news either way - worse or better - because I still react.  But... my daily reaction is nowhere near five years and four months ago.  For example, today is Azithromycin day - and Doxyⁱ, Rifampin. Amoxycillin, flagyl, and caffeine. 

On rereading last week's blog, I am amazed at what I wrote about flagylⁱ and not taking it. Sometimes I guess I am not as "with-it" as I believe.

In May, Richard spoke to Dr. S., who put me on the usual: Doxyⁱ, 200mg; Azithromycin, 250MWF; Rifampin, 600mg; flagyl, 1000: (these I had been on till I stopped everything on Jan 11, 2009); and then ADDED Amoxicillinⁱ 1000. I did this without fail for six months and then we called him again. But I was STILL reacting! Aaarrrgg!! He then left all abxⁱ the same, with the exception of flagyl, which he replaced with caffeine pills.

Ok My first Blog post so here goes.

I went & ordered some of the recommended supplementsⁱ (at least the ones that were reasonably priced here in the UK) & started taking them a couple of weeks ago along with the NACⁱ in preperation for starting Antibioticsⁱ.

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