I've not been posting much, and I am very puzzled, so a bit of a recap may be appropriate. I am still fooling around with the gray skin problem. When I'm fatigued, the skin around my eyes goes charcoal. With increasing exertion, it starts showing up other places.

In order of increasing severity, they are: my cheeks and nose, my hands, my groin, my forehead, my shoulders. If I hyperventilate, the grayness dissipates, in roughly reverse order. This, coupled with its distribution, indicates it's not just lack of sleep or allergic shiners.

Is it mandatory to take 2400mg of NACi a day. I was wondering if I could take 1200 a day?

Anyone know where I can get some cheap NACi. currently I get mine fro GNC but its very expensive. I dont want to stop taking NAC becuase I know its very essential

We got our FIRi sauna set up last weekend and I have been eagerly but cautiously using it for 10 min. at the start of my day after drinking water to hydrate first thing. Probably the most interesting result thus far is it restarted the eye burning, sneezing, bronchial irritation with resulting cough. These are all at minor degrees but nevertheless it is a direct response to using the sauna I believe as nothing else has changed in  my environment. The heat from the sauna feels soothing on my sore back and shoulders but causes some itching and then later in the day they ache again especially at night. But less so than on the MPi and prior to starting the NACi, supplementsi, etc.

Paula has had a pretty bad week where hockle is concerned.  Her mucal discharge seems to be never ending.  She doesn't seem to have had a break from it for about a week now.  When I say a break, I mean even an hour or so!

Most of this week, it has been constant hockling up into a tissue every few seconds.  At best, she may get a break for about a minute, then it starts again every few seconds.  As the day goes on, it may subside to a hockle per minute.

To re-iterate, this mucas seems to come down the back of her throat from either her left ear, or from her nose - we are unsure of this.

I've been told that if one takes NACi and has CPNi, they will have a reaction, thereby, indicating they have CPN.  Is this true? 

Also does anyone know if taking NAC at higher doses will cause a reaction even if one does not have CPN?

Day 2 of pulse 24.  Nothing remarkable to report, the pulse is going much the same as most of  my prior pulses have gone.  I have a bit of heaviness and burning in my legs but otherwise feel about the same as I did before the pulse.  This being the second day, that could easily change come Monday when the work week begins again, as does my work schedule.

I stopped INHi about three weeks ago and have been having less inflammationi.  What I had before made it really difficult to function on some days, I just wasn't able to get around the way I was before INH and since getting off of it.  I think the combination of abxi was just too much.  I even did two pulses while on continuous INH.  Better to scale back a bit.

Paula has been on the full dose of Roxyi for nearly 2 months now.

Her "hockling" continues - some days not so much and some days quite a bit, but I feel and hope that in general it has slowed these past couple of weeks - here's hoping!

She continues to build up on the D-ribose - still 3/4 teaspoon of the stuff in a 75cl bottle of water.

She does seem to "crash" a lot more lately.  She would only crash when not pacing enough, but she is pacing as well as she used to, but still crashing - meaning that the time that I see her and can talk to her these past couple of weeks has reduced a lot - I hope that this is die-off, as there doesn't seem to be any other reason why her fatigue would increase so much lately.

Paula has been on the CAPi for about 6 months now.

She started on the NACi November 28th 2007, added Doxyi in Jan and has been on the full 300mg daily dose of Roxyi for 5 weeks now.

Not many improvements in her condition to speak of as yet, but as she is so severely effected we are taking this protocol very slowly.

As she is tollerating the Doxy, Roxy and NAC so well, we plan to start the next stage of the protocol  (Tinidazole) towards the end of July as it is said to give the Roxy 2-3 months before adding Tini.

My first double dose of NACi. Oh boy. The day after. I was feeling quite cocky as I was managing one 600 mg. of NAC daily without too much trouble. But then my brain began to feel that most unwelcome feeling ... like beginning to puff up which leads to feeling poisoned. So remembering when I began NAC it helped a great deal with relieving that awful symptom  .... so yes ... why not?

Yes, it has been seven months since I began taking Rifampin although it seems more like eight.  It's entirely possible my count is off, it's not terribly important that it would be off by one.  In any case, I'm now on the most intensive CAPi I've ever been on.  I'm now taking Doxyi, Azi, INHi, Flagyli, and Rifampin, along with NACi all at the same time this week.  I started my 23rd pulse on Sunday night, a day and a half later then I generally try to schedule the start day/time (Saturday mornings).

Hi Everyone

I'm new here and I've joined to help my partner as he is not always well enough to post himself, especially when on ABXi.

To cut a long story short, he has both Lyme Garinii and CPNi. He has been given ABXi by a private doctor in the North of England as follows:

150 mg/day Rifampicin

250 mg, 3 x per week, Azithromycin

40 mg/day Omeprazole

600 mg/day NACi (rising to 1200 mg/day after week 1)

Metronidazolei to be pulsed in, in week 4.

In the first week, he only did the first 3 (no NAC) and it was going ok. Then in week 2 he added in the 600 mg of NAC and by the third day he started what I would normally refer to as a herx - but I understand can be called a 'NAC flu'.

Third + week on NACi

5/04/08 - Sun. (600 mg. NAC x1)

Please forgive me if this has been discussed before. I have been through many of the archives and haven't found the answer to my question yet! Perhaps I'm not very good at searching.

I have been taking NACi for two days now (600mg) and the first night I had a definite reaction- feverish, muscle aches, burning skin, sinus issues. However, as I have looked around the web, NAC is recommended for chronic fatigue to boost glutathione levels, to improve immunei function and as a liver support. My question is then, how do I know that the reaction I am getting is due to cpni die off and not a more general "die off"/detox/cleansing effect? I am so sensitive to any sort of medication that I think I would react to just about anything. 

Second week on NACi -

Other supplementsi = Methyl B12, calcium, magnesium, selenium, Vit. C & Liv-Gall Cleanse (milk thistle, silymarin, tumeric, curcumin, dandelion,inulin & artichoke) - the rest are on order and I will add them one by one when I receive them.

4/27/08 - Sun. (600 mg. NAC x1)