Folic acid

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One of the B vitamins. Important for cellular rebuilding.

Came to a Fork in the Road - and Took it

Four years and four months is the time I have spent on the road from There to Here. I like Here lots better.

My thoughts for this - to me - momentous blog have vacillated between listing the myriad symptoms that have gone and just making my little announcement.  I decided on the latter: I am in my fourth day of no antibioticsi.  In a couple of months I will begin intermittent therapy.  At the moment I feel really good, both about the decision and physically.

For those beginning, I applaud you and say: get your Vit D levels up.  For those in the middle, I say grit your teeth and get your Vit D levels WAY up.  We don't know how much we get till we're done.  For those at the end, I say keep your Vit D levels up and thanks for the good company. 

Rica

All - at least mostly - in my head

Unexpectedly, in my 55th pulse, I got - as Jim K colorfully calls it - slammed.

Last Monday I returned home from an exciting week of over 6000 miles air travel and a wonderful visit in Palm Springs to see my daughter open her beautiful new veterinary clinic. I met some of her clients and patients and told many of them of our own ground-breaking site with its adventures. There is NO litter in Palm Springs. My home-coming was very different from those in the past in that I did not need "recovery days" after landing and then driving 170 miles home after a 15 hour all-day two flight day from coast to coast. Amazing.  Not only is there "one is never so blind as one who will not see", but there is never one as grateful as one who has been to hell and back.

The disappearing lesion

Since the early seventies, I have been able to make my body go numb. The first times I fell because I didn't know what was coming. I have been able to do this at will for many years, but took care not to fall down. Fortunately, the feeling always returned.

As stubbornness is the nature of us on this site, I have only listened to Richard in the last six or so months when he admonished me not to do that! I can also dislocate my hip but he says not to do that either! (Takes all the fun out of life - no?) (No)

So - what IS the point - simply put: the ability is gone. I cannot do it anymore AT ALL. Not even a tingle and certainly no numbness. Yes, the quiet improvements continue - and the energy is very, very nearly back to my norm or 55 years. Keep at it - it pays.

the here & now...is, what it is

 

It has been some time since I have updated my blog so here goes.  What to say???, breath, wind me up &&& …. I have been disengaged on the site as I just haven’t had the mindset to handle the stress.  I apologize for this as I know that my support has made a difference to some.  I found myself reading the posts and was getting stressed out & frustrated with it all.

The Best Day Two

This is a short blog of hope for those of us who are having a hard time seeing far ahead.

Last Sunday night I finished my 53rd pulse of flagyli. After more than three and a half years, I was back on Rifampin. Vertigo had hit me fairly hard as soon as I took my first capsule so I was curious how this pulse would affect me. Last fall and this spring I did extended pulses and was not mightily affected, which was encouraging in itself.

The Unbroken Circle or: It's the Rifampin, Stupid

Last month I added Rifampin to my arsenal again, after taking it twice a day for sixteen months and stopping it in Jan., 06. A few things have happened since I started Rifampin a few weeks ago. I decided I should set them to paper while I am lucid (so to speak).

Antibiotics to be available without prescription

This is the news:  In England, possible antibioticsi to be sold over the counter, to treat CHLAMYDIA!

This is the story form http://www.guardian.co.uk/society/2008/aug/06/health<

Oral antibiotics are to be made available for the first time without doctor's prescription under guidelines approved yesterday by the medicines regulator.

A pill to treat chlamydia, the most commonly diagnosed sexually transmitted infection, will become available for purchase in pharmacies across England later this year.

The bugs' long-overdue deaths

The title was suggested by a conversation between two of our most battle-hardened warriors, and I couldn't resist it. This has been one of the most eventful years of my life - busy, too. Beginning in January with surgery and moving through kidding season, then a very, very good show season, this last taking a temporary break after the best Nationals in years, then linear classification of our goats, now a break for the really bad August heat (this is AFTER the really bad July heat), then a resumption of show season next month, which wil begin my fifth year of MSi treatment.

Chronicles of a Rifampinaut: Pulse 24

Day 2 of pulse 24.  Nothing remarkable to report, the pulse is going much the same as most of  my prior pulses have gone.  I have a bit of heaviness and burning in my legs but otherwise feel about the same as I did before the pulse.  This being the second day, that could easily change come Monday when the work week begins again, as does my work schedule.

I stopped INHi about three weeks ago and have been having less inflammationi.  What I had before made it really difficult to function on some days, I just wasn't able to get around the way I was before INH and since getting off of it.  I think the combination of abxi was just too much.  I even did two pulses while on continuous INH.  Better to scale back a bit.

An Old-fashioned Pulse

Six days after surgery for double mastectomy in Jan, 08, I "did a pulse", thinking since I would be out of action for a while, I wouldn't waste time doing nothing. Boy, did I get the pot stirred! I think all the flagyli went straight to the surgical site - and I understand that cpni bugs are found in cancer cells. I don't know if this is common, but maybe the experts can comment. In my last blog I mentioned that I am the third known case on our site of this kind of cancer (DCIS or a close cousin), and have since learned of at least three other stage four cancer cases of close friends or relatives of members.

It's a Summerdale Gold Kind of Spring...

With Springtime finally here and things going so well for me I thought it was about time for an update. Since the inclusion of Prilosec OTC and Calcium Pyruvate six weeks ago I have improved tremendously! I also added in Inositol and Ribose, and have doubled the Norwegian fish oil caps to support my nervous system while I discontinue antidepressants. I am still waiting for the other shoe to drop but here are the changes: 1. Able to successfully discontinue Wellbutrin XL 2. Able to tolerate Flagyli pulses now [timely and full dose] 3. Able to tolerate 600mg NACi daily[first time since I began CAP] 4. Beginning to gradually reduce Zoloft and Trazadone 5. No more strep-throat type neck aches, etc 6. Previously chronic low grade temp. is now a RARE event

Calcium Phosphate, Di-Calcium Phosphate, Magnesium Stearate - all in the supplements - ok with abx?

Paula pointed out to me today, that many of the supplementsi she is taking including, Vit C, NACi, Folic Acid, etc contain the above.

I know that you shouldn't take any minerals near to the Antibioticsi, is it ok to have supplementsi with the above in????????

Cheers,

Mark

Chronicles of a Rifampinianaut vol. 5: So Begins the Age of INH

WinkYes, I broke into my stash of INHi from last fall and took my very first dose of INH tonight with my second dose of Rifampin for the day, hence the Rifampinianaut. Isoniazid is the full name of INH and I just couldn't bring myself to label myself the Rifampiniazid. Of course, if one want's to be completely accurate, I would have to also work in Doxycycline, Azithromyocin, N-Acetyl Cysteine, and Metronidazolei. Hmmm....the Metroxyzithricetylfampiniazid, lol!!! O-kee, D'O-kee, I think not, lol

My Dr. Powell Experience...

First off, I want to thank Jim, Raven, Prescansario and anyone else that encouraged me by their kind words for Dr. Powell.  They were all nothing short of true!  The fact that I drove 3 hours each way and got a flat tire I still feel like my consult went exceptionally well.  His office is very modest and is FAR from the ambience of the ‘cash cow’ corporation I was used to (Holtorf Medical Group).   I am in NO way knocking a physician for having a 52 inch plasma on their wall for patients to view, but just stating Dr.

Best pathology

Today I had my post-op checkup - "spectacular", got the drains and the Iron Maiden (my name for the ace bandage) removed, permission to drive (hot dog!), restrictions - don't lift 50# bags of grain for 4 weeks - not even 25# buckets. Will do. The very best part, though all that was pretty good - absolutely clean path report.
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