myalgic encephalomyelitis

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British term for Chronic Fatigue (CFS/CFIDS)

P23, P24, Niacin, and Circumin

I am finishing pulse 24-- one more Flagyli to go. Niacin">i and turmeric (herb containing circumin) are definitely kicking it up a notch. No, make that several notches. No real improvement in the gray skin around my eyes and on the backs of my hands; it still reflects my overall energy supply.

I know that I blogged my last pulse as relatively uneventful, but I am getting a longer view now. I have had to lie down twice today because of panted breathing, I can't get warm, the fasciculation is nearly continuous in my thighs, and I am paying the price for my extravagant energy use this morning. (I clipped our Corgi's toenails.)

I am trying to decide whether to back down on the niacin, the turmeric, or the Flagyl. Opinions?

Ron 

CFS/CFIDS/ME -- difficulty breathing & a possible treatment

 Several people have posted that CFSi causes them to have episodes where it is difficult to breathe fluidly (Jim K's phrase, I think.) For me it takes the form of a panting breath, almost a gasping, that would certainly cause hyperoxia in ordinary circumstances.

I go away by myself when I have it, because it's quite embarrasing for me, and a little unnerving for Dianna. I have had two complete cardiology exams, one at the famous Cleveland Clinic, and they are "patient negative," i.e., no changes that indicate I will die of heart diseasei anytime soon. There are the usual changes consistent with CFS, but that's a different department, probably a different clinic!

 When I exert myself past a certain point, I will be more likely to start this breathing pattern for the next 24 hours or so.

Rheumatic fever hx and CFS/ME

I had rheumatic fever as a child. Now I keep hearing about the heart's involvement in CFSi/ME. A connection between CFS/ME and rheumatic fever is the kind of thing that ought to pop right out of the CDC's data mines, so it's probably not connected, but . . .

Just out of curiosity, anyone else here have a history of rheumatic fever?  

 

Ron 

CFS; Stratton protocol from 1/06. 

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