myalgic encephalomyelitis

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British term for Chronic Fatigue (CFS/CFIDS)

Thank You All for Welcome

Thank you for the welcome.  I am so happy to read about people who have similar issues and who don't think I"m crazy for wanting to try and do this protocol. 

Cpni is probably very similar to Lyme's in what kinds of disease states it produces in those unlucky enough to get it and have a weakened immunei system. 

The Lyme's folks all know what I mean when I say "cracking popping in my neck" for example! 

ME Doctor in Australia

I was just wondering if anyone out there knows of an ME Doctor in Australia that treats Chlamydia Pneumoniae or who would be open to researching into the treatment protocol for it?

myalgia new symptom

About a week ago I started getting minor pains in my muscles that would last for a second or so. Now. I feel them more frequently and on different parts of the body. This all started after I took a week of Levaquin. I hope its not from the Levaquin!! Anybody got any information on this Myalgia and what to expect. This is all new to me and its scary.

"Life is a highway & I can't drive 55"

“Life is a highway & I’m gonna ride it all life long”

 

Hello fellow wellness adventurers…… Mad CAPpers

 

I have not been able to post for some time as my life has been…..well, eventful.

Klonopin discipline

Just an observation about Klonopin: I find that I should not take it until I am fully ready to sleep. In other words, if I take it and then stay up and do anything at all, it is ineffective for that night. I lay down, read a bit, spend time with Dianna, etc. until I am ready to sleep, then take the pill, turn out the light, and settle in. If I don't have 8 hours before the alarm goes off, I'll be a little groggy, but if I take the pill 8 hours before the alarm and don't go right to sleep, I apparently "burn off" all the extra GABA or something. Just in case you use it and have wondered why its effectiveness varies so much, maybe this is why.

Doff my CAP to cpnhelp.

 

 

the here & now...is, what it is

 

It has been some time since I have updated my blog so here goes.  What to say???, breath, wind me up &&& …. I have been disengaged on the site as I just haven’t had the mindset to handle the stress.  I apologize for this as I know that my support has made a difference to some.  I found myself reading the posts and was getting stressed out & frustrated with it all.

Antibiotics to be available without prescription

This is the news:  In England, possible antibioticsi to be sold over the counter, to treat CHLAMYDIA!

This is the story form http://www.guardian.co.uk/society/2008/aug/06/health<

Oral antibiotics are to be made available for the first time without doctor's prescription under guidelines approved yesterday by the medicines regulator.

A pill to treat chlamydia, the most commonly diagnosed sexually transmitted infection, will become available for purchase in pharmacies across England later this year.

Could Medicine be catching up? Make it so!

I haven't looked at the eMedicine definition of Chronic Fatigue Syndromei for a while. Low and behold, they actually said this in the first definitional paragraph:

Chronic fatigue syndrome (CFS) is a disorder of unknown etiology, which probably has an infectious basis.<

 Really! Go see for yourself. They even mention Chlamydia pneumoniae in the article. As one of the potential causes for CFS. I just about fell out of my computer chair. eMedicine is considered a "standard of care" reference, so this is a big deal. Their lit review on the immunei and other abnormalities in CFS is also quite good. 

CFIDS/ME diagnosis breakthrough

I think this is the most on-topic diagnosis tool I've seen.

Diminished Cardiopulmonary Capacity During Post-Exertional Malaise<

and here's a nice summary of the legal implications of the test

Legal and Scientific Considerations of the Exercise Stress Test<

 

There is a disease characterized by protracted recovery from exertion. It doesn't have a name. It used to be what was meant by "CFSi", then by "CFIDSi".

Chlamydia Pneumoniae in CFS/ME & Fibromyalgia


Chronic Fatigue Syndromei, Fibromyalgiai & Chlamydia Pneumoniae[1]

Introduction

(Note: the original page for this became non-functional for some reason. This copy is identical except for some minor text layout details)

Epstein-Barr Virus: a prime henchman with C.Pn. in MS and CFS

This abstract caught my eye, given the second-hand knowledge of MSi I have picked up here: Dysregulated Epstein-Barr virus infection in the multiple sclerosis brain<

It is also known that elevated EBVi titres are common in CFIDSi -- so common, in fact, that during the early outbreaks around Incline Village, it was called "Chronic Epstein-Barr" for a while.

  This just struck me as very significant intellectually, but also personally, since it seems likely that there is some problem in my family with the way we handle EBV

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