What Is A Chronic Illness, Anyway?

A chronic illness is a disease or disorder that a person has to cope with on a continuous basis. Many people become so ill, they are unable to work and are forced to give up activities they have always enjoyed. Often their  illness goes undiagnosed for years, leaving thousands of people frustrated, depressed and without answers to why their bodies will not cooperate with their desires.

The Road Back Foundation is exhibiting again at the American College of Rheumatology's annual meeting in November in Boston. After the meeting, on Sunday, November 11th from 9:00 am to 2:00 pm, a number of Road Back volunteers will be gathering to brain storm about the work of the Foundation. If you are interested in participating (i.e., have some skill and time to contribute to the Foundation), there are two spots open. If interested, please send a brief bio and your experience with AP treatment/the Foundation to info@roadback.org

www.roadback.org

The other day, I received a letter from our Tax Assessment Department.  They have requested my receipts for medical & charitable giving for the past year.  So, no big deal...I go to where I put it & my Tax Return was not there.  I have nicely filed my husbands away, but mine???

Well, I have turned everything upside down & bass ackwards & I cannot find my return, much less the receipts which would have been attached to it!

I have no idea where it could have gotten too, it has seriously vanished.  Talk about brain fog, my word.  I still need to call the accountant but I am sure he doesn't have it anyway.  I recall taking the folder from his house along with my spouses.  I could have sent it out to recycle by error??? 

Several times in the past, yesterday, and today, what looks like a transparent crystalline worm has appeared in my vision. I can't tell which eye it is. Does anyone know what this is? I have had floaters for decades, and this is something different. FMSi minocylcine, azithromycin, metronidazolei

As a part of my annual physical, my blood work came back the best it has in years. My fasting glucose was in the normal range for the first time since '00 or so, and my cholesteroli was low enough that the doctor said that even if I were high-risk, he'd be happy with that number. So, this is very, very good news -- I'd hate to give up using glucose to stop porphyria. No significant weight loss, sadly, although my doctor cited that as the reason for my improved labs (this with a puzzled look, since he could see that the loss was only 5-10 pounds.) Overall improvement remains slow, but mostly positive. We are 3/4 of the way through moving houses, which muddies the water a lot. Stress and exertion galore!

Midsummer's Day saw the end of my twelfth pulse and a new beginning.  Last week I found the diary I started with my first antibioticsi and realised two things, it has taken more than two years of treatment to get to this point and I am on the path to Forgettory.  Dr Wheldon's Forgettory must be Cpni Nirvana, that state of being beyond the bad times and free of the memories so  before I let it all go this is a little account of several false starts and how I came to be diagnosed with a bewildering array of syndromes and disorders.

 

Vitaminsi are ramping up, Niacini 375 mg, NACi for 3 wks now 2gms, D 1600U, along with all the rest of the Wheldon recommended supplementsi & what I normally take.

I'm not sure if this topic is appropriate or if I have posted it in the right place; but, if anyone would be willing to PM me or respond I would greatly appreciate any input.