Chronic Fatigue Syndrome

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Syndrome characterized by viral or chemical onset, unrelenting fatigue, unrefreshing sleep, sleep disorder, immune abnormalities.

Stanford Chronic Fatigue Initiative Website is online

See:  http://chronicfatigue.stanford.edu/<

Info on Cpni and other pathogens is presented in this website.  

Best, Timaca

3 Years, 8 Months, 2 weeks and 2 days.....(Revised 2/14/2011)

It has been 3 years, 8 months, 2 weeks and 2 days since I started CAPi<i<.   I have reached a point, not by choice, but rather by necessity, that I have had to back off the protocol for a while. 

Just starting to have hope.

I am 32 years old and I live in Omaha, Ne.  I have had mono (EBVi) 3 times in my life though Dr's tell me I must be mistaken because that is not possible.  I have also had chronic fatigue since college or prior.  I thought I had it all figured out when I was confirmed to have Elhers Danlos Classic type about 5 years ago. EDS is a genetic syndrome that makes me have really stretchy skin.  I am also loose jointed.  Many people with EDS have chronic fatigue and postural orthostatic tachycardia. 

I thought all of that accounted for many of my symptoms but now I am starting to believe that my symptoms come from Cpni.  More later. 

Am I getting at the cryptic form?

Hello to you all. For almost a year now I have been faithfully taking 100 mg. Doxyi twice daily, Azithromax 250 mg. M-W-F and every 4 weeks Tinidazole 500 mg. twice daily for 5 days. This is after the previous year ramping up finally to do a few pulses, stopping, and starting the protocol again, etc.

Lithium Orotate - Mood Enhancing Mineral

Lithium Orotate, a discussion forum topic relating to supplementation with low dosages of Lithium Orotate, a mineral which is available over the counter for mineral supplementation. 

Please post links to information you find useful for personal investigation of this topic, both the pros and the cons and the cautions in the use of low dose Lithium Orotate mineral supplementation. 

This is the start of a forum topic for the purpose of discussing you personal experiences and/or your personal opinions regarding it's supplemental adjunct use.

Thanks in advance for helping to expand this forum topic by adding the pro, con, and cautionary aspects of the use of Lithium Orotate as an adjunct mineral supplement.

finding a doc

I didn't know where to post this but can someone pm me with a MD in the Omaha, Ne area that does Capi?  I have just found this protocol and I want to get on it asap.  Thank you so much. 

Effie

some questions

Hi There!

My last entry is quite long ago and as i have some questions too its time for an update.

first the good news: my scrotal pain improoved quite well but still gets worse sometimes while pulsing or after walking to much. right after pulses it gets better mostly. 

my older symptoms are more or less the same though (ibsi-b (with sibo and consequently malabsorbption and low weight), cfsi , light fibro,chest pain, very cold limbs ).

the ibs eventhough taking probiotics even got a little worse i think. im a bit affraid the abxi are messing up my gut flora too much.

Interfase therapy

I have been on biofilm therapy for the past 4 weeks including weekly ramping of Interfase/Ther-Biotic Complete/BiotaGen. From the start, I found taking Interfase very difficult. It seemed to cause intermittent pain and 'grinding' in my gut. At week 3, my esonophils were elevated suggesting allergy. At the end of week 4 I was violently ill, throwing up and had enormous epigastric pain. I sat on my bed and panted so I could focus on my breath and not the pain.

I have given up the therapy as certainly my blood tests indicated that I was experiencing allergy. I may restart the Ther-Biotic and Biotagen at some time in the future but I am not planning on that for a few weeks yet!

Hopefully by posting my experience it may be helpful to others.

Who out there is functional? (Non-Ms'ers)

For the benefit of perspective......I am curious.  We get varied responses on physical reactions to pulses, ABXi, etc.; BUT,  in the big picture, how many of you ( on a day-to-day basis), are still functioning below normal.... or non-functional?   How many are unable to work, drive, take care of the home, cook, etc.?

Some of you speak of your pulses taking you down, but yet have the physical capabilities of going to the gym, carrying out day-to-day activities and working.  (Which, by the way, is fantastic)  This query is in no way meant as an offense to anyone.  

 Since I am unable to do a poll, is anyone willing to share?

 

How long on CAP:

Working:

Driving:

Physical levels of endurance: 

 

 

Time to Add Rifampin?

What started as a severe sinus problem is now in my chest (again).  I am still having debilitating malaise, deep chest coughing, running a low grade fever off and on.  I have been taking Tinii continuously now for a little over a month (as well as Doxyi and Roxi).  I am still doing the neti pot, Mucinex (seems to help), nasal sprays, etc.   I still have what appears to be swelling in the mandibular area of my face.

.

Newby needs help! Need MD in New England

Hi you all,

US Blood Banks warned against CFS donors due to XMRV

I finally upgraded this topic from the "Back Porch." The AABB, formerly the American Association of Blood Banks, has joined the Canadians in recognizing the risk from XMRV transmission< through the blood supply.

Unlike CPni, which is fairly common in the general population, XMRV is relatively uncommon in people without CFS. 

 The AABB notification is apparently in response to the rumored release of NIH and FDA findings confirming the original Whittemore-Peterson Institute findings published in September, 2009.

Thought all the people with CFS/CFIDSi/ME  ought to know.

 

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