Chronic Fatigue Syndrome

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Syndrome characterized by viral or chemical onset, unrelenting fatigue, unrefreshing sleep, sleep disorder, immune abnormalities.

Jim’s Story- Chlamydia Pneumoniae and Chronic Fatigue/Fibromyalgia

The Tunnel of Illness

I want to update my story on the front end so readers know even before reading the "agony post" how much benefit I've gotten from the treatment. It is August 26th, 2006. Coming up on two years I've been on the Combined Antibiotic Protocol (CAPi) for Chlamydia pneumoniae (Cpni). A recent forum poster asked if anyone with CFSi has improved on the CAP. My response:

Damned right I'm getting better!When I started the CAP I was in a 2 year slide after 25 years of CFS, then added FMSi. For many years I'd struggled and somehow maintained a semblance of a life. Then over 2 years my pain, brain fog, restricted functioning, etc. slid to a point where I had to stop traveling and could for the first time see the possibility that I would become bedridden eventually.

Raven: a conference on biotoxin illness/mold in CA - Drs. Shoemaker&Nathan

Hi Raven (and perhaps other interested members here). Saw Rich Van K posted this at ProHealth board, Raven, and thought of you. Be well. Avoid mold. Thumbs up!   MM

Hi, all.

Gordon Medical Associates is sponsoring a seminar by Dr. Ritchie Shoemaker and Dr. Neil Nathan on biotoxin illnesses, including mold illness. It will be held in Santa Rosa, CA, on October 22 and 23, 2011. The flyer with more information is here:

http://events.r20.constantcontact.com/register/event?llr=ie78sucab&oeidk...<


Rich

The Elephant(s) in My Room – Blog Update

I haven't posted much and my last blog update was in May of this year. I wish the reasons were because I was enjoying a recovery and had my health back, but it's not.   I now join the ranks of some of the others here who came to this site about the time I did.  

 

Last week I had Bioenergetic Testing done which indicated I have:  Bartonella Henselae, Babesia Nosodes, Mycoplasma Fermentes, Borrelia Burgdorferi and high levels of systemic yeast (as well as EBVi, HHV-6 and CPNi) -- "my elephants" and reasons for not recovering. 

 

My first pulse of Metro

At last I have taken my first dose of Metroi having started Doxyi 200 mg in April and Azithro MWF from end of May.  I had to wait a month for the Metro to arrive.

side effects question

My 17 year old daughter has had chronic fatigue for about 6 months everyday. We are considering the CPni treatment. Will the side effects cause her to miss school (its already hard for her to get through the school week)? Or can we go carefully enough so that it won't be so bad for her?  Also, has anyone heard of problems after treatment is done from so much antibioticsi?

Feeling terribly sick after napping

Hello everyone, I'm newly registered to this site although I've received much helpful information as an observer for several months. I often feel terribly sick after waking up from a nap. Does anyone else have this experience? Any ideas as to why this happens and any effective ways to relieve this?

Thanks so much,

Doug

IGG titer keeps increasing.

I received lab results in the mail today and it turns out that my IGGi for cpni is now 1:512.  I see the doc that I am trying to get to script antibioticsi for me tomorrow.  I have my fingers crossed.  I hope you will cross your fingers for me too. 

I am currently taking NACi 600mg and all the supps.  I have had some relief of my fatigue but it still waxes and wains.  

I am hoping the NAC is helping to increase my antibodies. 

Fingers crossed.  

 

Decorum on a Forum

 

Decorum on a Forum

I have been reflecting on this topic for some time as I participate on this site. (I have been a member here since 2007.)  Some activity over the last several months, and as of late, prompts me to express my feelings here in my blog

We are a diverse group and come here to participate for many different reasons - some out fear, some to confirm their sanity, others frustration with doctors, others to find support, and to ask questions.  This IS the ONLY dedicated CPNi support site.   It was my lifeline when I was so very, very ill and still is one of the few places one can go to have comrades who understand what this process is about.   

Checking in

Hello to all here at Cpnhelp-

I have not updated in quite a long time, nor been in touch much with the site. Life has been busy and good, and all the energy I have turned to living it, and seeing to my career and personal development. Had to get off the intense focus on illness and it's constant shadow. So a brief update.

Married my amor a year ago Valentine's Day! This was the culmination of a number of years of long-distance relationship and a life before lived too much alone. It's been a year of bliss and continuing. I am very grateful.

I've been doing a bit of writing again for my professional websites and blogs, as well as to develop some book projects. It comes in fits and starts.

methylation testing

Could someone please provide the link for a site that does the methylation testing and could someone please tell me if they know of a good brand of non yeast related b6

Thanks

Diagnosed with PFO during Echocardiogram - Please Help!

I have been treating Lyme/Cpni for years now and almost had a full recovery. Recently I was under alot of stress and was exercising vigorously with no apparent problems. Recently however I have been having episodes of weakness (spells) where I get weak, nauseous, pale, shaky, a strong pain in the head, confusion and mild stroke symptoms: word recall, mild speech problems, confusion. Also mild chest pain, elevated BP, and feel very anxious and sweaty. This happens when doing nothing, sometimes after a walk or walking upstairs, or lifting groceries etc... I went to cardio and had full workup (have had numerous workups in past, all good). He did a treadmill which went fine.

Lab Test results

I am  new here, and I have been dealing with low energy, lightheadedness and high blood pressure">i for several years.  Although I have been able to manage my symptoms, they became worse over the last year to include difficulty concentrating/fogginess, low exercise tolerance, excessive sleepiness, and weak limbs. Very recently I convinced my doctor to test for several causes for fatigue with a diagnosis of low testosterone and chl pneumoniae. I have been having difficulty even getting someone to explain my test results and whether or not cpni<i< is a concern or not.

My 2007 (pretreatment) Chlamydia Pneumoniae Differentiation Antibody Panel (IgM, IgG, IgA) results

From the initial May 2007 lab report of my                                                                   Chlamydia pneumoniae Differentiation Antibody Panel (IgMi.

Chronic Fatigue Treatment - Article link

Chronic Fatigue Sydrome Article ;  Chlamydia Pneumoniae in Chronic Fatigue Syndromei< and Fibromyalgiai<i<

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