Most of the Doctors just look at a symptom and treat it the way they think;  - they know it all.  Then, the diagnose comes, like an etiquette of a product. Does someone looks what is behind the symptom?  Which is the cause, and the cause of this cause?

One Doctor -cardiologist-  saw me and when he found out I was multisymtomatic gave me some pills for the anxiety, nothing else. 

My Dr. thinks I have a subclinical thyroid problem along with my infectionsi that has never been treated. I have had a few instances of Shortness of breath when laying down and sweats, flushing to chills, constipation, itchy scalp and weight fluctuation from 165pds to 190 pds (though I look much healthier now). The only tests that were abnormal a while back were my reverse T3 tests which were low I believe. She thinks I have a "variable thyroid" that swings both ways. Has anyone else had this? I know many with Lyme, Cpni, Mycoplasma, have thyroid problems but how do you tell the difference between the two? Do they improve with just abxi treatment over time?

Paula takes about 5 grams of activated charcoal twice per day.  She always ensures that she takes it about 2 1/2 hours away from anything else.

As she is bedridden, which may mean digestion takes longer for her than for people who are mobile (a gravity thing), she wonders if it is possible for her to take her charcoal dose all in one go and the end of the day?

Presumably if she did this, any porphryins in her gut earlier in the day would be re-absorbed into the blood stream if she didn't take an earlier dose of charcoal?

She definately has increased secondary porphyriai if she only takes one 5 gram dose.

Thanks for the advice.

Mark

I am about to add Rifampin to my MWF 250mg of Zithi and am doing away with the doxyi. Eventually will add Flagyli in again. I would love to hear from Rifampin users and those who are on Dr. Siriam's Rifampin, Zith, Flagyl CAPi to see how they are responding. Thanks! Chris

Saying as CPni continually creates antibodies that attach to B12 meaning your body can't utilise all the B12 that is stored, why after 3 months should the 4000mcg dosage of B12 be reduced to taking once per day?  Will it harm continuing to take 3 times daily, even though it seems to have made no difference to Paula's fatigue?

Thanks,

Mark

My doctor has instructed me to take Transfer Factor to build up my immunei system enough that it would subdue the CPNi. Is this the case or are antibioticsi imperative? Thanks for any feedback as I am new to all of this and quite overwhelmed! Creekside

I have been noticing that when I start to feel run down I develop a white coating on my tongue and also a line of what looks like fungus in the middle of my tongue. It is raised and I can feel it on my tongue. I noticed this in my 20's when I first had episodes of minor fatigue and thought it might be thrush. Always a small line that came and went within a week or so. Could this be a yeast problem? I am about to add Rifampin to the the mix and was curious if anyone else out there gets episodes of white coating on tongue and a raised line in the middle. Thanks for any input! Chris

Getting near 8 month mark of CAPi.  I am doing this blog mid-pulse for a change, perhaps for some balance.  I usually only blog when I feel awful.

So, where was I?  Not feeling so bad is about what I can come up with.  Sleep (generally) well now at night, not needing naps during day since my last-but-one flagyli pulse.  Still need my sleep desperately - often manage 9 hours straight through.  Occasionally nap in day but usually short, sometimes only 20 mins.  Though I still often wake in a slightly paralysed state, which feels weird.

I look kinda well ATM, I get very depressed when I look sick.

Paula has had a pretty bad week where hockle is concerned.  Her mucal discharge seems to be never ending.  She doesn't seem to have had a break from it for about a week now.  When I say a break, I mean even an hour or so!

Most of this week, it has been constant hockling up into a tissue every few seconds.  At best, she may get a break for about a minute, then it starts again every few seconds.  As the day goes on, it may subside to a hockle per minute.

To re-iterate, this mucas seems to come down the back of her throat from either her left ear, or from her nose - we are unsure of this.

you could add achey, tired ones too. 

I have been doing CAPi (Wheldon Protocol) now for well over 6 months.   I have found the whole CPNorg website immensely illuminating on so many subjects, but it is inevitable around this point that I question how I am progressing, especially in light of some continued difficulties.

Hello fellow sufferers!

 

I have one question about the apoptosisi. When is the start/beginning of apoptosis usually expected during capi treatment? After 3 months approximately? Or later ? Or after a few couple of pulses?

 

Warmest regards

 

Cesare

Paula has been on the full dose of Roxyi for nearly 2 months now.

Her "hockling" continues - some days not so much and some days quite a bit, but I feel and hope that in general it has slowed these past couple of weeks - here's hoping!

She continues to build up on the D-ribose - still 3/4 teaspoon of the stuff in a 75cl bottle of water.

She does seem to "crash" a lot more lately.  She would only crash when not pacing enough, but she is pacing as well as she used to, but still crashing - meaning that the time that I see her and can talk to her these past couple of weeks has reduced a lot - I hope that this is die-off, as there doesn't seem to be any other reason why her fatigue would increase so much lately.

Hi everyone - I just wanted to check in and let you know I'm stll working at this!  Here's what I've done with the Flagyli so far:

Pulse 1 – 3/28 (one tablet) 

Pulse 2 – 4/18 & 4/19 (1 tablet per day for 2 days) 

Pulse 3 – 5/9 to 5/11 (1 tablet per day for 3 days) 

In the abscence of blood tests or a diagnosing Doctor, has anyone here done the NACi test to see if you have a reaction which suggests the Cpni?

I was reading through David's excelent website and came across this test but have some questions:

1) Does it cause unecessary suffering? In other words should one just try the antibiotic protocol first rather than go through weeks or months of suffering from the NAC?

2) Do you have to take the vitamin Di as well?

3) Can you just try the NAC/vitamin D for a few days and stop as soon as you get a reaction?

4) Once a reaction occurs should you just carry on with the NAC/vit D until symptoms subside and then start the full protocol?

Kittykins