Hypertension

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High blood pressure

Need a Word of Encouragement

A word of encouragement?? I haven't checked in for quite a while. Been doing ok, but have been undergoing Vitamin C IV treatments for 4 weeks followed by Rifampin 150mg twice a day for 4 days.  My energy is zapped and the Rifampin feels like poision to my body.

Hypertension improvement report

Hello, everyone. I 've been experiencing a GREAT improvement in my hypertension and decided it calls for a report here.

For a background info: I've been having high BP for about 10 years. It started around the same time with my hypothyrodism symptoms. I've been taking antihypertensives on a daily basis for the past 5 years. Last fall, prior to starting CAPi in Jan'08 my BP went out hand and even on medications it was often 160/100.

I've been on Cap  since begining of Jan'08. On my current protocol (Rifampin 600mg /day + Doxyi 100 mg x 2/day) since March. At first my BP was spiking a lot. Hypertension crises always were a part of my die-off reactions. My BP became more stable as I was improving in general with arthritis, fatigue, pains.

Antibiotics to be available without prescription

This is the news:  In England, possible antibioticsi to be sold over the counter, to treat CHLAMYDIA!

This is the story form http://www.guardian.co.uk/society/2008/aug/06/health<

Oral antibiotics are to be made available for the first time without doctor's prescription under guidelines approved yesterday by the medicines regulator.

A pill to treat chlamydia, the most commonly diagnosed sexually transmitted infection, will become available for purchase in pharmacies across England later this year.

Searching for years, not giving up !

Hello all! Im Wanda and Im an advocate for my hubby, who went from perfect health to progressive decline starting 2003, we have been married 27 years and still adding on. 3 kids (2 grown) 1 dog, 2 cats.

Im learning how to navigate this site and post, so please forgive me as I learn. Im not sure if I will find hope here, any input is appreciated!

2003 he started with flu like illness extreme fatigue few small bite? on chest, fever, which developed in to what appeared to be hives? Doctor said hive, stress...xanax!, prednisone does pack...Prednisone did nothing, Next doc drew blood for lymes etc. put hubby on Doxyi for 10 days...

5th month on CAP - long overdue update.

I was going to post updates with my progress monthly but having being overwhelmed with trying to keep up with life and treatment, I am way  behind.

Anyway, here I go. I started back in Jan'08 with big doses of CAPi (3 abxi) and after extremely severe die-off reactions and stopping a couple of times, I re-started nice and slow in Feb'08, adding 1 abxi at the time, making small changes and ramping up.  

Finally on full doses of current protocol - Rifampin 600 mg/day and Doxyi 100 mg x 2/day - since mid-March. 

Concerned with the future fate of my CAP

I went to see my Lyme dr for a monthly appt. and came back home all disturbed and worried. This was my 4th appt with this dr and I am still in the beginning phase of the CAPi tx. By this time my dr and I should be developing a working relationship but it's not happening. During appt he asked - Remind me, how long have you been sick? So I told him my story again very briefly. As I mentioned that I saw rheum dr before finding him, he asked - And Rheum didn't find anyhting? That surprised me completely b/c on my 1st appt with this dr I brought to him consult notes from the rheum dr stating the dxi and plan of tx (not CAP, of course but prednisolone & Sulfasalazine). I felt he didn't remember my case at all.

Positive for BB?

When I saw my dr a few days ago we went over my labs results that had come back. The Western Blot for Lyme disease. IgGi was negative. Good news, right? But strangely enough, IgM was positive by both standards - unconventional Igenex (where the labs were actually done) and CDC.

I was floored, I really didn't believe that I may have Lyme.  The dr told there may be a false positive and we ordered a confirmation test with Igenex.

The reason I think it is strange to have IgM (+) b/c my sxi started so long ago and logically it's IgG that should be (+) if I have Lyme.

More on the bitter-sweet pill.

It was only three weeks ago that I wrote about my 30th pulse and how easy and 'pleasant' it had been, so easy in fact that I was able to carry on taking Flagyli for 14 days.   Well it just goes to show that one good pulse does not a pattern make... Day two post pulse 31 and my mouth is still full of bitters, my maxilla still aches, my eyes are itchy, my ankles are swollen, my ears are throbbing and my urine is still dark.   But MIRACLE OF MIRACLES the pain in my gut is hardly there and I have regularly been sleeping 7 or 8 hours a night.

I think that my experience is an example of that Tipping Point that Jim and others talk about.   Enough Cpni cells have died in the cell for apoptosisi to take place... 

Most mild CAP protocol in terms of side effects & die-off?

I started CAPi with Minocycline 100mg x 3 + Rifampin 300/day only to stop it due to huge reaction. My dr was thinking in the lines that's one of the abxi causing side effects, perhaps the Mino. Soon I re-started only with Doxycycline 100 mg x 2/day. At first it was OK but I had abdominal pain, aggravated hypertension">i, hypoglycemia and porphyriasi again and by 10th day it was too severe for me to continue. I mean, I felt like it was life-threatening at the time.

I stopped Doxy a week ago yet still haven't recovered completely. Today I feel that like I was hit very hard on a head but a bit better in general.

Hypoglycemia and how do you manage?

I am on Doxycycline 100 mg x2/day since 01/14/08. Before Doxy I started with Minocycline/Rifampin CAPi but had to stop in a few days due to severe reactions and overwhelming hypoglycemia as well. Now, on Doxy, hypoglycemia continues. I was feeling good for a couple of days earlier this week but on Wed evening relapsed with weakness, tiredness, shaking/shivering due to feeling cold, tachycardia, BP's up, nausea, hunger and so on. Most of the Thu I felt waves of the same effects and had to leave work. Today, Fri, I am feeling much better but I have to eat something every 2 hrs to keep re-occurrence of hypoglycemia away.

Michele 'Fighting' Findlay reaches another milestone...

Another milestone has been reached, I've just finsihed my 30th pulse, and I have a few observations which I think are worth recording and communicating.

From the beginning I have been taking 200mg Doxycycline daily and 250mg Azithromycin MWF continuously and done a 5 day flagyli pulse every three weeks, so I would take 1200mg flagyl on MTWTF of one week and take the following week-end and the next two complete weeks off.

In that time the alopecia">i recovered to so such an extent that I need to go to the hairdresser once more. The hair still goes through phases of falling out, but the balance is on regrowth.

Embarking on CAP - what do you think of this protocol?

Last Fri I saw my new dr who is an integrative MD specializing in Lyme. Very nice, compassionate and down to earth person. The appt was early morning when I am not yet in my best shape. I was so exhausted and brained fogged, my BP was soaring 170/110 so that my hubby had to drive me over and was a big support at the dr's office as well. 

Anyone knows Dr in Maryland or closest states? Dr Carter in Florida?

Hello, everyone,

I had posted once on the forum, including a very brief description of my story. Now it's time to start a blog as I understand, I am here for A LONG HAUL. I am not sure where to start as there is so much to all my illness.

I guess, my arthritis/tendonitis and myalgia would be the main complaint. Then hypertension">i, then sinusitis, hypothyroidism, heart palps, chronic cystitis, PID, hand cysts, mild cough, brain fog and fatigue. All of this started one by one since I was 8 yrs old but only recently after doing a bunch of research and this year being dxi with Reiter's syndrome I put 2 and 2 together and figured out that Cpni infection could cause all or any of my conditions.

I Need a Nail

This is another of those combined blogs, one by author, one by proxy, two by confusion, too confusing? Not for us. We know how to deal with the confusing, the confused, and the unexpected: give flagyli.

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