For the past three weeks I have been trying out Inclined Bed Therapy (IT), it started out as an experiment because I do not like to recommend anything to Ella that I do not understand or experience.  IT does not cost anything, is unlikely to hurt you and may well help MSⁱ symptom, arthritis, oedema and a host of other personal conditions.  

All I can vouch for is that my blood pressure has come down quite dramatically in the past week, from 145/90 with medication, to 120/65 with medication.   If it  continues dropping in the near future I am going to have to go and see my doctor to consult about either coming off it or finding something less potent.

I didn't even notice how time went by. It's been 1 year and 9 months since I started CAPⁱ. When I started, I thought I'd be on it only for a year. Then I hoped to stop at 2 years mark but now I see that I may need a bit more time b/c I still have a few unresolved symptoms.

I am guilty though for taking about 3-4 weeks break from treatment this summer. It happened sponteneously. I ran out of meds, didn't refill on time, we needed to go away for vacation, oh well, many excuses. The truth is that I am burnt out.  I put myself back on track but I can't wait when the treatment will be over. 

I was reading some old posts that some people were able to control some inflammationⁱ issues using Benicar.

Can anyone who is using Benicar give me some feedback on it's effects. I would be very intrested if you had some improvements with inflammation with it's use.

Thanks again.... Bonnie

My previous LLMD who was my CAPⁱ prescriber moved out of state and I transitioned to another dr in the same practice group. Yesterday was my first appt. I was a bit apprehensive to change the dr but I am happy now I must say.

My new dr has a different approach to the disease in terms of that he treats whole body. If my previous provider just gave me CAP rx, this dr wants to address all my conditions - hypoT, hypertensionⁱ, nutritional issues, wants to check heavy metals as well. He even asked if I have a ObGyn and do regular pap smears.

These last few weeks have been pretty tough to say the least. I have had the pleasure of staying in the hospital in the telemetry unit for two days as the doctors scratched their heads not knowing what was causing my hypertension. I was reluctant to go, but had no choice, as my feet were turning cyonotic and my toes swelling like red balloons.

After being placed on high blood pressureⁱ medication and sent home, the problem was still not addressed to the cause. I am keenly aware of cpnⁱ being a vascular problem, but what is going on?

since starting the wheldon protocol I have noticed, like Dr. Wheldon, that many of us experience hypertension. Maybe due to high volume of toxins within the body or some vasculitisⁱ during treatment.

  My general pc doctor wants to start me on high blood pressureⁱ medication, called Diovan. I did take two days worth and wow! no more headaches, flushing feeling, chest pressure or brain fog. My concern here is because cpnⁱ is so tricky and certain medications may be causing more problems. Has anyone besides myself know what would be recommended for cpn issues?

 I would like to know how Dr. Wheldon handled his hypertension during his treatment or what is recommended as safe.

         Bonnie

Yesterday I took my first Flagylⁱ 250 mg, no reaction. Today took 2 x 250 mg and started to wonder, is it possible to develop resistance to Flagyl if taken in small doses? I'll be increasing the dose in future pulses if tolerated. My dr wants me to take 500 mg x 2/day for 14 days a month eventually.

Dianna did a one-year CAPⁱ for GERDⁱ, rosaceaⁱ, high blood pressureⁱ and several other complaints, all of which started approximately simultaneously. This CAP ended nearly a year ago at this writing.

The GERD and high blood pressure are still gone. Today, after walking from the parking deck into the clinic, it was 113/75. The GERD returned briefly after she had general anesthetic for an unrelated condition, but went away after about two weeks.

The rosaceaⁱ was completely gone at the end of her CAP, however, it has rebounded slightly. A doctor involved in the treatment of the unrelated condition took her off "all that funky stuff," including NACⁱ, so. . .

It's hard to believe but I am on 13th month of CAPⁱ treatment. I started on January 02, 2008, twicked my protocol a little for a couple of months. Since March'08 I settled on Doxyⁱ 200 mg/day and Rifampin 600 mg/day. In Nov'08 Bactrim was added twice a day. 2 weeks ago I switched from Doxy to Minocycline. So, right now I am on Mino + Rif + Bactrim.

Hello everyone just wanted to give a update. I am geting better and the symptoms I do have are very mild when I do have them.  I still have reactions to the Flagylⁱ so im still going to be on this protocol for at least a year. The only big concern I have is that for the last 2 week I been having chest pain. Im 29 years old so I am concerned. Its off and on. sometimes when im resting and sometimeswhen im going for a run sometimes not at all. I think its angina. Also this all started when I stoped taking magnesium and my Co-q-10. and I know people have used these to get rid of angina. I think maybe I might off had it but the supplemements where working and when I got off of them it started back up again.

I have been researching this issue of hypertension and tachycardia issues with cpnⁱ as it effects the vascular system. My doctor wants to put me on high blood pressureⁱ medication and I'm concerned going to statin medications. I was reading Dr. Wheldon's story and found myself going through the same symptoms. Could the high blood pressure be related to severe inflammationⁱ do to cpn die off? OR something I need to address with blood pressure meds.

My pressures are around 140/96.

anyone else going through something similar?

Bonnie

I've written about my sister before.  She asked to be tested for CPnⁱ at Cleveland clinic and came back positive, something like 1/125 or close to that.  Cleveland Clinic asked her if she wanted to be treated with 1 abxⁱ for a few weeks. 

She has lung and sinus problemsⁱ, fibromyalgiaⁱ, fatigue and serious heart and vein problems and inflammationⁱ.  Basically the falling apart syndrome.  I tried to get her started on CAPⁱ, but she didn't follow through, claiming she didn't have time to get sick.  She did take NACⁱ for awhile.  Now she is really sick, with pretty bad heart problems.  She has been diagnosed with everything under the sun over the years, but then they always end up changing their minds and saying it probably isn't what they thought it was.

A word of encouragement?? I haven't checked in for quite a while. Been doing ok, but have been undergoing Vitamin C IV treatments for 4 weeks followed by Rifampin 150mg twice a day for 4 days.  My energy is zapped and the Rifampin feels like poision to my body.

Hello, everyone. I 've been experiencing a GREAT improvement in my hypertensionⁱ and decided it calls for a report here.

For a background info: I've been having high BP for about 10 years. It started around the same time with my hypothyrodism symptoms. I've been taking antihypertensives on a daily basis for the past 5 years. Last fall, prior to starting CAPⁱ in Jan'08 my BP went out hand and even on medications it was often 160/100.

I've been on Cap  since begining of Jan'08. On my current protocol (Rifampin 600mg /day + Doxyⁱ 100 mg x 2/day) since March. At first my BP was spiking a lot. Hypertension crises always were a part of my die-off reactions. My BP became more stable as I was improving in general with arthritis, fatigue, pains.