INH

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Isoniazid- niacin related compound used to treat tuberculosis, found by Stratton et al to have powerful antichlamydial effect.

It turns out the rental place didn't have a tutu in my size...

You have to read the last paragraph of my March 2011 posting for the subject line to make sense.

It was another recordbreaking day in Dallas.  The people who say global warming is a myth had been strangely silent for more than a month as temperatures climbed to levels that even the residents of Phoenix or Tucson would have found uncomfortable.  Worse for the Texans was that the humidity had not dropped to desert levels so being outdoors was like being slow roasted in a convection oven.  The deteriorating asphalt of the parking lot outside his neurologist's office that he had skipped across like a frog jumping between lily pads at the time of his last visit had melted in the heat and looked almost new.   

It was early in the morning...

It was a dark and stormy night....  Well, in this case that's literally true.  We've had no moon, but lightning and thunder with no rain.  It's the kind of weather you would expect at the start of a gothic horror movie. 

Seeing yet not Perceiving

Bulwer-Lytton prize, here I come!

It was unseasonably warm for an early March day, even for a city like Dallas whose inhabitants in July and August considered it to be Hell's waiting room.  He walked across the deteriorating asphalt of the parking lot and into the first-floor office of his neurologist thinking that in a few short weeks, it would be almost warm enough for the parking lot to melt and the chunks of asphalt to fuse together in a new pattern. 

Who out there is functional? (Non-Ms'ers)

For the benefit of perspective......I am curious.  We get varied responses on physical reactions to pulses, ABXi, etc.; BUT,  in the big picture, how many of you ( on a day-to-day basis), are still functioning below normal.... or non-functional?   How many are unable to work, drive, take care of the home, cook, etc.?

Some of you speak of your pulses taking you down, but yet have the physical capabilities of going to the gym, carrying out day-to-day activities and working.  (Which, by the way, is fantastic)  This query is in no way meant as an offense to anyone.  

 Since I am unable to do a poll, is anyone willing to share?

 

How long on CAP:

Working:

Driving:

Physical levels of endurance: 

 

 

I have M.S. but its in remission?

Got the results of my latest MRI today.  The radiologist report said that in comparing with the previous MRI (January 2009) there was no change in the number or size of the lesions and as in 2009, none of them were enhancing.  

Every other person I know with M.S. is deteriorating but I'm getting slightly better and the doctors won't believe me that the antibioticsi had anything to do with it (even - as with my neurologist - they ask me specifically whether I have been taking them).  

If there is any downside to the CAPi, it is that without it I would probably be retired on disability by now (and due to a quirk in the way they changed our retirement plan at work, the disability annuity is slightly more generous than regular retirement).   

What you leave behind

I last completed a maintenance pulse in November 2009. 

I had my annual visit with the neurologist at the medical school in Houston in January 2010.  EDSSi now "about a 2" versus the "about 2.5" it was in January 2009.  As he considered my progression (or lack thereof), he asked whether I was taking antibioticsi.  I told him none since November 2009 which left him scratching his head since he can't account for my "atypical progression".  (For the record, I previously discussed antibiotics with him and he dismissed it since he is of the belief that M.S. is caused by a virus).

Empty Capsules Triple "000" size V-caps or Gelatin Caps can be useful.

Nausea, stomach pain and vomiting from gastric irritation while taking Doxyi, Clarithromycin or metronidazolei(Flagyl) is a topic that has come up over and over again here.  

Empty Capsules Triple "000" size V-caps or Gelatin Caps was suggested several years ago for people who had trouble tacking Flagyl.    I picked up a bag at my local natural foods store.  Some people purchase Vit-C in bulk and fill their own capsules, they are used for other herbs as well.

For those of you who went to Sunday school...

Join with me in singing (to the tune of "Oh, How I Love Jesus"):

Oh, how I hate hydrazine

Oh, how I hate hydrazine

Oh, how I hate hydrazine

Because it upsets my stomach.

First session of intermittent therapy nearly completed.  

I am just going outside and may be some time

My "stash" of antibioticsi is nearly depleted.  I have enough left to do two occasions of intermittent treatment and then that will have to have been sufficient.

I will continue the supplementsi (including NACi).

Those of you who recognize the quote will understand the desperation to find an effective treatment that led me here as well as my fear that I may be stopping just short of the depot with disasterous consequences. I do not in any way seek to connect my present circumstances to the quote's spirit of self-sacrifice.

 

With Apologies to Barbara Streisand

People

People who need Doctors

Are the sickest people in the world...

Now, I'm not trying to start a controversy here about the fact that there sick people who don't have access to medical care, just trying to come up with a subject line based in popular culture that is at least somewhat obliquely related to the subject of the post and might keep me in contention for the Bulwer-Lytton prize.

Anyway, some time ago I went to one of the Lyme disease sites and downloaded the names of some doctors who are willing to treat patients with antibioticsi

Unless All Dream Alike, You Must Not Ask Them to Remember It

I had an MRI in January 2009.  The M.S. specialist ordered it because I have been having mild headaches at the top of my head that precede things "happening". 

  • For example, I had a headache that came on before I temporarily lost my ability to write a cursive "D" (and hence lost the ability to sign my name).
  • I also had a headache come on and when it had passed, my need to get up at 3:00 a.m. to go to the bathroom had all but vanished. 

The MRI was done:

Wanted to get this in before vacation

Well, pulse #19 was so mild that I wanted to get the next one in before starting vacation.  Pulse #20 was completed on 3/12/2009.  I'll be really surprised if the post-pulse reaction sends me to the emergency room in Hot Springs.

I think they may have been right

I recall reading an observation that when people on the CAPi start to feel better, they seem to blog less often.  I guess there must be something to that because I forgot to log on and blog when I completed pulse #19.

The aftermath was not entirely reaction-free as I did have some shortness of breath on the 4th, but more charcoal banished it in short order.  

Blank

Completed pulse #18 tonight. 

My wife is listening to a recording of "Jerusalem" on Youtube.  The music makes typing this whole thing sound more auspicious than it is.

Drying out

I must be drying out from the "intoxication" of the bacterial detritus because I can't come up with a snappy subject line any longer.  I guess this forum may have just lost a promising contender for the Bulwer-Lytton contest. 

Anyway, I just downed the metronidazole to mark the completion of pulse #17.

 

 

 

 

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