Chlamydia Pneumonia for CFS and fibromyalgia: 6 Month Recovery

TO: ANYONE LIKE ME!

I write this post not long after finishing the antibiotic routine. I am writing this for other people who are perhaps like me. When I first came here I could see there were many very sick people on this site and although I was quite unwell, I was not in the extreme category. So, this may be worth reading for other people who feel they are in a similar situation to me. 

SYMPTOMS BEFORE BEGINNING TREATMENT (JAN 2016)

Chronic fatigue and fibromyalgiai (muscular pain especially in my upper back and neck). I've always been a healthy, balanced, "normal", energetic person but I had been on a bit of a downhill slide for about 2 - 3 years (little by little) although  I was able to function sufficiently - and could somehow present myself as a normal person even if when I felt pretty awful. The thing is, I knew that I was struggling and getting worse. By Christmas 2015, i finally fell apart and I told my husband and kids i was feeling in pain and felt terrible all the time. I just couldn't hide it anymore. I had tried everything you would expect -  I completely gave up alcohol (not that i ever drank much), imrpoved my already very good diet, got lots of sleep, had almost stopped exerising (as it wiped me out for days), but i still felt terrible. I wondered each morning how I could get through the day. I realised I was sick and it was not because of my lifestyle (how could it be?). For all the measures I had taken, I should have felt amazing. 

I had this odd chest squeezing and fatigue feeling, which I had never really understood. My neck was sore and felt sort of puffy and swollen to me (although not extremely obvious to others). I also had a lot of pain in my muscles (despite using magnesium). I had terrible brain fog and was constantly tired and exhausted and this had become worse and worse over 6 - 12 months. I found this made me feel irritated agitated and it was difficult to ever feel mentally alert. 

So, my symptoms were serious enough for me to seek answers. I saw many doctors who said I was fine and I just needed to "get a massage"/"get used to it because it was probably hormonal" or told me i was imagining things. I cannot tell you how upsetting that was. 

THE TREATMENT - STARTED IN FEB 2016

I did exactly what this website suggests. Doxyi, Zithro and pulsed very carefully with Flagyli. I read everything over and over, startign with the simple information first, and progressing through many of the scientific artiles (as my brain fog lifted!). 

I experienced the endotoxini die off effects such as (pain, tingling, aching, terrible headaches) which were often awful, but i felt okay because I was expecting them and I understood what was happening.

I experienced very definite apoptosisi (in my view), whereby, with introduction of a new antibiotic, I would first get endoxotin effect, followed by extreme and very specific fatigue in my chest about 5 days later. It was quite a strong feeling of exhaustion which scared me a bit. Again, i understood what was happening so  I was okay. I was just very gentle with myself and took great care. 

I have never had any "gut" or tummy problems in my life so i never had any gut difficulty with the antibioticsi in that sense. (I had originally worried a lot about destroying my gut with antibiotics). Although I have also been very careful to take great care by using supplementsi and very good foods using bone broth, organic foods, lots of leafy greens and gave up gluten 2 months ago.  

I took all the recommended supplementsi and particularly took moppers to help with what may have been porphyriai (althoguh I am not sure). I also took NACi (of course), D3, K2, Zinc, Selinium, Vit C, Olive Leaf Extract, Quercitain, chlorella, magnesium, garlic, echinacea. A lot of tablets, but all important. 

I continued with the antibiotics untill all the reactions stopped. 

So, everyone is different, but I just wanted to let other people out there that my journey was 6 months. I remember hoping at the beginning it would take me only 4 weeks (like I would somehow be special or lucky!!), but that's just not realistic - you are kidding yourself it you think that. 

HOW I FEEL NOW - AUGUST 2016

I am better! I feel normal, with my energy back, brain fog completely gone, muscular pain gone. I will continue with NAC and supplements. I may do intermittent pulses of antibiotics just to check and make sure it has gone. 

I am so extremely grateful for this website. The explanations and information on this website enabled me to learn and understand and continually build on my understanding over the 6 months. It is true that you cannot understand it all in one hit. I just came back here every time I needed to learn more. 

Thank you to David Wheldoni, to Sarah, to Mackintosh and Jim K. Thank you, thank you, thank you so much. I am forever in your debt. 

Today, is inded a "Sunny Day"

SD

Comments

Thanks SunnyDay for posting

Thanks SunnyDay for posting this summary of your situation up to this point.

I would second your thoughts about going intermittent.  There have been several over the years that seemed to have been "cured" and stopped abruptly because they felt so good only to start a slippery sloap again after a period of time.  

I believe that intermittent is where you allow the well entrenced bacteria to come to the surface and the intermittent knocks them out periodically.  Study how others have done their intermittent phase and plan to be as methodical with this phase as you were with your first phase.

I am here on the site looking at what is going on now as I recently caught Bartonella Felis (cat scratch fever) at a Humane Society where I was doing an externship in Vet Tech.  I have been on a Macrolide for 4 months (they wanted me to stop after a Zpack 5 doses of 250mg Azithr taken daily over 5 days only and I knewI was not cured at that time. I asked for more and they Rx me Prednisone.  Which I did not take but started Roxi that I had on hand Thank God.  I still had a walnut sized node under my armpit on affected arm and they wanted to suppress my immunei system.    

Now that I have started Roxi I am considering adding Doxi and Tinii and doing at least 6 months again.    As you get older it is harder to sort out aging from bacterial fatigue. 

Always keep your eye on these chronic bacterial infectionsi so that you can stay ahead of them should they return or reinfect.    I like to keep a small supply of abxi on hand.   If I waste them it is worth the security.   It took me a month to start treatment for Bartonella, fatigue and brainfog was building, even as the scratch was completely healed.

Sorry to say so much about myself.  It was meant to show you that cured is a relative state of the moment.    

So happy you are feeling well and have shared your success.  It is helpful for people to hear about success.

Louise

  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <

You must have not had a very

You must have not had a very severe case

Most people on this froum have been fighting Cpni for years

In my case around  five years

Anyway I am glad you are better 

DAILY:  NACi 2400MG , DHEAi sublingual , vit D3 , multi vits,./ Three times  a week: B12 injections (Hydroxycobalamin). Deer antler./  Once every few months methyl B12 Methyl injections

Congratulations: I am very

Congratulations: I am very happy for you! Sarah Laughing

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Congratulations on a

Congratulations on a fantastic outcome!

Started NACi Sept'14... 100mg Doxyi Dec'14...  Roxi 13Dec '14 Supplementsi...