A Chimera by any other name would still be an illusion

At the start of my MSi odyssey, I was - like many people - diagnosed with a number of different illnesses before the right one was identified.  In the end, the doctors working on my case collectively shrugged their shoulders and sent me (and any potential malpractice liability) to the medical school in Houston, Texas. 

I ultimately received a diagnosis.  I actually received several.  I didn't realize this until I got a complete copy of my medical records.  After the doctors got past Bell's palsy, neurocystercoccus, and brain cancer, the first diagnosis was tumefactive MS.  The next was referred to as both Fulminant or Marburg MS.  This was about the time I started the CAPi and the exacerbations ceased almost immediately.  The diagnosis was ultimately changed to Relapsing-Remitting MS. 

My primary care doctor at the time was not comfortable with my neurologist being six hours away so she urged me to get one locally.  At my last visit with the neurologist at the medical school he even asked if I was taking antibioticsi, but would not accept they had any influence in the fact I was getting better, not worse.  I eveneutally found a neurologist closer to home, but like every other neurologist I have seen, she too was unwilling to accept antibiotics had any role in the patient that was standing (and walking, even dancing) right in front of them. 

Well, that neurologist retired yesterday.

My new primary care doctor - who thinks Dr. Wheldon "may be on to something" because he says he can't ignore the difference between my medical records and what is sitting (and standing - I didn't dance) in front of him, referred me to a new neurologist.  She's not as open-minded as my primary care doctor, but she at least admits she can't explain someone with Relapsing Remitting MS not having any relapses even though she feels  the antibiotics can't have had anything to do with it. 

Well, it seems that once again I have once again failed in my quest to be empirical evidence and am instead merely dismissed as a chimera; an inexplicable outlier in the data set that is present but not actually here.

 

Comments

Hello, a fellow chimera

Hello, a fellow chimera here!  Maybe we should start a Society of Chimeras.  At least you seem to be getting a few docs to notice you though, unlike me, even though I have been on television.  Perhaps it wasn’t me, though.  After all this person was standing to paint and spoke clearly, without slurring.  Also her hair was much longer and more luxuriant than mine when I saw my neuroi, so it must have been someone else.................Sarah

A Journey through Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Chimera

Chimera  ...  didn't they do that great classic trance masterpiece back in the 90s?

 

http://www.youtube.com/watch?v=Cfobb498cog<

 

When you find yourself dancing like the bint in the video ...  you know for sure your MS has taken a good hiding!

G

“Don't believe everything you read on the internet.”

―    Abraham Lincoln<

Knock,knock....who's there?

Knock,knock....who's there? Nobody, just a chimera...Cool

But did you dance for the new neuroi?

It never ceases to amaze me how the establishment contrives to ignore the proof standing/walking before their eyes. Thanks for the update and good story.

speedbird

Your story...

Hi HDWHIT,

Thank you for sharing yor story.  You would think that more folks in the medical profession would be more open minded.  I think that the medical profession has folks that are less open minded for any of a number of reasons - normally skepticism is not unhealthy.  But when it closes your eyes to empirical evidence - and gets folks to forget their real purpose, which is to help people - I believe we end up with "mechanics" at a garage who can only follow written procedures and guidelines - rather than consider something as simple and low risk as an "empirical" test.

I'm thrilled to hear you are doing well - especially given the seious nature of "Marburgs MSi" at least in some cases.

My son - Rick <rickclark86 here> - is starting with an informed Doctor who knows and practices Stratton / Wheldon stuff - this month.  I hope he does as well as you have!  Dancing indeed!!  He is wheelchair bound - and so far continuing to progress. 

Best & Highest Regards,

Tom

Proud Parent of Rick - R started CAPi in Nov. 13. Small measurable improvements as of 7/14, more by 10/14.  Holding Steady in early 2017.  "I will leave no stone unturned, no theory unexamined, to help my son." Tommi

Good luck to you both!

Good luck to you both:  go blaze the trail!

“Don't believe everything you read on the internet.”

―    Abraham Lincoln<