Chapped lips and acne

My daughter is quite distressed with what has been going on on her face the last few days!  She has painful chapped lips.  I was worried it was yeast but she does not have cracks in the creases of her lips and there are no other signs of yeast inside her mouth.  The rim between the inside and outside of the lip is dry, cracked  and burning.  She is coating her lips with vaseline and I have bought a couple of other medicated lip balms but the pain continues on.  This started a few days ago.  Now she did spend a couple of hours outside sledding on Tuesday afternoon.  Yes, she felt well enough to go over to a friend's house to sled and hang out -- this was great.  Could being out in the sun while on the abxi have caused this?  She is very fair but her face did not burn.

 The other problem that is distressing to my 15 year old girl is the outbreak of acne.  She was hoping that being on abxi would prevent acne but that does not seem to be the case.  She uses Proactive and it seemed to be working for awhile but now the acne is back.  Is this just a normal teenage thing or maybe related to treatment somehow?

 Of course these are not big problems in the scheme of things but just thought I would see if any one else has dealt with these types of issues.

 Maria

My 15 year old daughter developed a serious case of acne last summer.  It was deemed inflammatory which I was told could lead to scarring.  After several different medications she had to go on Accutane, which cleared it up.  She was on it for 5 months.  I would suggest you take her to a dermatologist right away instead of waiting and trying things by yourself.   Acne can be a real problem for a teenager, especially with their self-esteem.  Accutane worked very well for my daughter but it is not without its risks.  But it is better for your daughter to get some type of treatment earlier rather than later.  (By the way, Proactive worked for my daughter for a while but then stopped working-that was one of the ways the doctor determined that she needed more serious treatment)  Interestingly, one of the side effects of this drug that she experienced was extremely dry lips.  That has since resolved now that she is done with the Accutane.  Knowing what I know now I would not delay in having her looked at.

Lori 

 
Started Vanderbilt protocol 1/9/08  Rifampin once a day, b12 injection monthly , vitamin Di 50,000 IU weekly
I wouldn't argue with Lori (your baby might need a temporary 'fix'), but your daughter is going to have to start getting used to the idea that weird things happen when you're on this treatment. As the bacterial infection is addressed in all of its wonderful little hiding places, stuff erupts. Including skin. Particularly skin, the body's largest organ.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Did these both come on suddenly after the two hours of direct sunlight and the reflected sunlight of the snow?    Another simple question regarding the chapped lips is, is she drinking enough in general?  I had to be sure to make myself drink more in early treatment days. 

If is was suddenly after the extended amount of direct sunlight it is a possibility that it is the photosensitivty reaction that some get (including myself after several hours of high sun through a car window on an auto trip the summer that I started on Doxyi.  Just another point to consider while you sort these things out.  

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Kim has had some red skin bumps for years.  They have gotten better under ABXi (I credit Rifampin, but really don't know), but not completely gone.  I thought for a long time that this was MSi related, but found on various boards that acne wasn't commonly reported in MS.  I think I started a thread here a while ago to ask about this and got very little response.  I think Kim would be interested to hear the outcome from your appointment.  Ken

In pursuit of ABX<

Don't Allow What You Know To Get In The Way Of What Might Be

Thanks for the response!  I think the chapped lips might be a photosenstive reaction to being in the sun for several hours Tuesday.  She started mentioning it Wednesday and it has been a pretty constant complaint ever since. She has been pretty good about staying hydrated but I will continue to encourage her to drink plenty of water. Hopefully, this will resolve itself shortly.

MacIntosh, I agree that she will have to get used to the idea that weird things are going to happen during this treatment.  Given her natural temperament that is not something she likes to hear.  She is not my "go with the flow" child.

I thought about taking her to the dermatologist for the acne but I was a little hesitant to tell him she was on CAPi.  Not sure what the reaction would be.  Thankfully, at this point the acne is not bad....just several pimples scattered on her face.  I think we were both surprised by this recent outbreak because when she first went on the abxi several friends of mine told her that her skin was going to look great because of the abxi.  So I started wondering what the experience of others had been.....I think it is a little more difficult to compare though given the fact that she is a teenager.  We live in a small, rural community and the nearest dermatologist is at least a 45 minute drive.  The wait for appointments is 3 to 4 months!  If the acne persists or worsens then I should probably make an appointment just in case.

Maria

Mother of a teenage daughter with cpni infection. Symptons include migraine, muscle aches, chronic fatigue and brain fog.  Currently taking 1800mg of NACi, 200mg doxycycline, 250mg azithromycin MWF, pulsing flagyli, armour 60mg, 100mg trazodone, iron supplem

Oh, one after thought ......

This isn't an "I know", it's an "I speculate".  Immunology.  Someone else here might know - Is it worth, given the collective issues we deal with here, seeing an immunologist rather than a dermotologist?  It's my sense that an immunologist might be more understanding of the ABXi protocol and may be more prepared to think about the skin issues in light of the ABXi issues in a combined sortof way.  Just wondering out loud.  Ken

In pursuit of ABX<

Don't Allow What You Know To Get In The Way Of What Might Be

Maria

I took from your initial post that her acne was worse than it apparently is at this point.  So it may very well be as a result of the antibioticsi and may subside over time.  However, with that said, since you say it takes 3-4 months to get an appointment with a dermatologist you may want to make the appointment now so that you have it in case the acne worsens.  Also, it is common for dermatologists to put a person on an antibiotic for their acne (often minocycline or something similar) so the antibiotics she is on may end up helping.  But when my daughter's dermatologist put her on minocycline early in her treatment she said that the acne often gets worse before it gets better. That could be what is happening to her currently.  Hopefully she will have success with that!

Lori 

 
Started Vanderbilt protocol 1/9/08  Rifampin once a day, b12 injection monthly , vitamin Di 50,000 IU weekly
Have you phoned her prescribing doctor?

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Yes, I think I will call the doctor on Monday if the chapped/painful lips aren't improved. 

Lori, I am wondering if what your dermatologist said is true that maybe her acne will get a little worse before it gets better.  I will see how she is doing next week and if no improvement  then go ahead and make the appointment.  As you pointed out, I can  cancel if it starts to  get better. 

 For skin, I think I would start with a dermatogolist versus an immunologist.  Years ago, I had a small persistent rash on my face.  I went to my internist a few times over several months and he could not get it to go away.  I finally went to the dermatologist and she was barely in the room and had hardly looked at my face when she was writing out a prescription for tetracycline to treat the perioral dermatitis on my face.  The rash cleared up within a few weeks.  I have had this same experience with a few other skin issues.  Go to my internists, he can't figure it out. Go to the dermatologist and she figures it out and treats immediately.  Dermatologists really know their skin!

Maria

Mother of a teenage daughter with cpni infection. Symptons include migraine, muscle aches, chronic fatigue and brain fog.  Currently taking 1800mg of NACi, 200mg doxycycline, 250mg azithromycin MWF, pulsing flagyli, armour 60mg, 100mg trazodone, iron supplem
Maria-on the chapped lips, I would immediately stop using vaseline. Look on the jar. It is petroleum jelly. "Petroleum" as in gas for your car-not very different molecularly. When you buy chapstick or lotions be sure to look for petrolatum in the ingredients. I have avoided them for a long time. Chapstick makes an all natural chapstick. It is the only one I use and have converted many of my friends to it. It is available at most larger stores. Burts Bees is also all natural. Try these and see is they ake a difference. On the acne issue I can PM you a brand of skin care that is also all natural and has many helpful products. Hope things improve soon.

Mel W.  asthmai for 20 years, PCOSi, insulin resistant, hypothyroid, high cortisol9normal 2/09), low ferritin, low D3--34(2/09).  Recent PCRi-PCN not detected.  Dr. treating empirically.  Doxyi 200mg.  Azith 250mg MWF 11/10.  Flagyli pulse #3

Hi WM, 

I notice more acne after starting capi, especially on my chest. I kind of thought it may be the antibioticsi. Sweating seemed to help when I went to birkarm yoga. I'm going to try and find a sauna to see if that helps.

Mark

CPNi off the charts, EBVi, Chronic fatigue 20+ yrs, , tinittus, Orthostatic intolerance, adrenal fatigue, excitotoxicty, porphyriai, anxiety, depression, doxyi, AMOX, and FLAGYLi since JAN 2009,  

The other possibility, just to add one more thing to the complications (!), is photoreactivity from porphyrins in the skin. Fat soluble porphyrins are often pushed epidermal layers and are highly photoreactive. This is Red's hypothesis about rosaceai and Cpni. At this point in her treatment, it's really hard to know what it is from: antibioticsi, sun sensitivity from doxyi, photoreactivity of porphyrins, other stuff.

I got the dry, cracked burning in the the corners of my lips when first doing pulses, so the description is somewhat familiar. Calendula salve or fresh aloe from my plants were the most helpful, although I used something with benzocaine in it to cut the pain sometimes. When in doubt, see the dermatologist, and as you and your daughter get more familiar with the cycles of these things you won't have to act... rashly.

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Ha, Ha, Ha......Thanks Jim :)!  I was wondering if porphyrins were somehow involed.  It seems these days they always are.  

Mel, please end me the name of the skin care product.

 thanks,

Maria

 

Mother of a teenage daughter with cpni infection. Symptons include migraine, muscle aches, chronic fatigue and brain fog.  Currently taking 1800mg of NACi, 200mg doxycycline, 250mg azithromycin MWF, pulsing flagyli, armour 60mg, 100mg trazodone, iron supplem

Acne can also be a sign that you have a lot of toxins in your body.

 No wonder we have a lot of toxins with this cpni with endotoxinsi and porphyriai!

Moppers, drinking a lot of water, probiotics helps

Best Wishes Maria

Cpni since sep 2006. Autoimmune thyroid,hypofunction.levaxin,b12+folic acid">i.All classic cpn,porphyriai and toxinsymtoms.Not able to work.Selftreating cpninfection with AllicinMax(garlic), NACi, high vitamin D3. CAPi for over 3 years. Back to work and life

Maria,

My 18-year old daughter also experienced significant facial breakouts on her forehead and cheeks approximately 1 1/2 months after starting doxycycline (100mg bidi).  I initially thought it might be some sort of allergic reaction and was quite distressed but then calmed down after consulting a forum member who explained the cpni/skin connection.  So now it's been five months since my daughter started the antibioticsi, and her cheeks have cleared up somewhat but her forehead is still breaking out although not as bad.  She uses concealer make-up and wears bangs so it's not real obvious.  Fortunately, she has not had breakouts elsewhere on her body, and on a positive note, her eczema, which has always been a problem, is healing much, much faster than before.  I fully expect the facial blemishes to recede as she continues on with the CAPi.

I hope this is helpful!

Laurie

I have been an Esthetician for 20 years so the one thing I know is skin...  What I dont know is how these die off reactions manifest in the body.  It seems to be different for everyone.

 First, I wouldnt go NEAR Accutane.  I understand when your are worried about scarring you are willing to do anything but what Accutane does it stop the sebacous glands from working, yep, just shuts them down.  So it is like cutting off your arm because it hurts.  It shuts them down all over the body.  Your skin is one of the main detox organs of your body.  Accutane shuts down the bodies ability to get rid of toxins through the skin.  It may stop acne, but now you have doubled the load that your liver and kidneys werent keeping up with in the first place.  WOW!  That really scares me.

 So, as I tell all my acne patients (never had one on CAPi), acne is bacteria, inflamation and dead skin cell build up. Pro-Active does address all three but the skin can become immunei to a product after awhile.  It is always triggered internally, but this is what is going on externally.  Usually internal antibioticsi can help but not always.  It would make sense to me that if your daughter is processing alot of die off junk, her body has to eliminate it somehow and in her case it may be some acne flares.  My advice is to have her wash twice a day with her anti bacterial wash (needs either Benzoyl Peroxide or Salicylic Acid in it).  It has to be twice a day to keep topical bacteria killed off.  She also needs to think about icing her face.  That is the best topical anti-inflammatory there is and it is free.  She should do it 10 minutes a day.  If this doesnt pass, or gets worse, I can recomend some professional treatments she can have done if you personal message me. (I dont sell anything so dont worry)

 I hope her face clears soon.  There is alot that can be done now and I didnt want you chancing Accutane along with everything else she is dealing with.  Most derms dont even know how bad it is in the long run.  I was shocked when I researched it.  They certainly wont understand the CAP protocol!!

Michelle

 

Laurie, thanks for the information.  It is nice to hear how another teenager reacted to the antibioticsi and it seems my daughter is reacting in a similar way.

Michelle, I never thought about what acne is exactly so your explanation was very helpful.  I know she is processing a lot of junk so the acne makes sense.

The acne  is actually abating.  She told me this afternoon that she stopped using Proactiv a couple days ago and went back to just astringent (has salicylic acid in it).  Over the weekend she probably had around ten large pimples scattered over her face.  Now you can hardly see anything.  I guess the acne might be something she is going to have to deal with off and on.  I really appreciate everyone's feedback.

 The chapped lips continue but she says she keeps them moistened (currently using Blistex Herbal Answer) and it is okay.

 Maria

Mother of a teenage daughter with cpni infection. Symptons include migraine, muscle aches, chronic fatigue and brain fog.  Currently taking 1800mg of NACi, 200mg doxycycline, 250mg azithromycin MWF, pulsing flagyli, armour 60mg, 100mg trazodone, iron supplem

I have a friend with an apiary and he makes wonderful, all natural products. He makes a hand, lip or plain old dry skin cream that is comprised of olive oil, beeswax and vit E. I use it on my lips. My husband used to make it for me, but when I found someone else who makes it almost exactly like he did, I decided to let someone else make it for us. I make my own soap superfatted with Olive Oil, honey, oatmeal and essential oils. My husband and I used to own a coffee shop and so we had an outlet to sell our products. Now that I don't have the shop, I just make it for my family and friends. In Manitoba Canada, we have terrible cold and dry winters so it is essential to be kind to the skin. There is lots of apiaries around so it's easy to get our hands on cheap beeswax.

If you are ever stuck olive oil and honey makes a good lip emolient. I get unpasturized honey so that it has all of it's anti inflammatory qualities etc intact.

 

Lived with MSi since 1991. Completed 16 months of full CAPi plus supplementsi. Currently in full remission. Not on any antiobiotics anymore but taking all supplementsi incl NACi.

My daughter's severely chapped lips cleared up as soon as she stopped taking Tagamet.  Your homemade soap sounds wonderful.  My sister's sister-in-law makes soap.  I will have to ask if she also makes anything for lips.  My daughter still likes to carry a lip balm with her and what you described sounds like something she would like.

Maria

Mother of a teenage daughter with cpni infection. Symptons include migraine, muscle aches, chronic fatigue and brain fog.  Currently taking 1800mg of NACi, 200mg doxycycline, 250mg azithromycin MWF, pulsing flagyli, armour 60mg, 100mg trazodone, iron supplem

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