CFS sufferer

I tried posting a blog a few days ago but didn't get much response. I figured that being new on here, maybe it was the worng place to start. So I'll try my luck positng in the forum. Hopefully I'll get better ressponse. I explored the site extensively but couldn't find a response to my questions especailly the first 2.

I have been suffering from Chronic Fatigue syndromei<i< since being a teenager in the late 1980’s, but have only been diagnosed in 2011.

In addition to all the symptoms that chronic fatigue encompasses, in time, I have developed an array of other health problems. Just to mention a few: digestive problems (which actually occurred before the fatigue started), chronic rhinitis (partly resolved removing milk from diet), sleep problems, chronic neck pain, chronic endometritis (PID), chronic intimate itching. All these just coming out of the blue where no serious disease was found.

I am seriously thinking of starting the CAPi<i< regime. However I have several questions that I would need answered.

-I read on this site that chronic fatigue patients are slightly different from other diseasesi<i< and that the treatment regimen needs a little tweaking from the standard protocol. However I could not find what exactly needs to be done differently. Could somebody explain?

-Having suffered from chronic endometritis (PID) for about 8 years, doctors have been prescribing repeated short courses of antibioticsi<i< (7 to 14 days) to keep the infection at bay during flare-ups. At the beginning flare-ups occurred every 6 months, while in the last 5 years they occurred almost monthly. This means I have been repeatedly exposed to a wide array of antibiotics, including doxycycline and metronidazolei<i<. Although, I must point out that I haven’t been taking doxy nor metronidazole since 2014. At this point the questions is: Can I still do the CAPs?

-Also due to repeated non-albicans yeast infectionsi<i< and relentless intimate itching I am now on a long-term treatment regimen of diflucan 150 mg every 3 days. My fear is that antibiotics will worsen my candida problems and I may eventually become resistant to yeast medication (which to a certain extent I already am).

-I would like to connect with other chronic fatigue patients on this site to hear about their experiences, successes and failures.

Fighting for almost all my life with so many illnesses and symptoms, is daunting and very exhausting. This website is a renewed hope for me.

Thank you for your help and time.

Hi Canadaontario user,

i actually began to respond to your first post but, as I know so little about CFSi, deleted my response.

all I know is that the protocol will address other pathogens, also So will treat many conditions.I'm sure you will get the responses to help, the community here is wonderful, but, I guess, it's holiday season!

I have MSi, although I only began the protocol four months ago and sometimes feel dreadful just knowing I'm doing something positive is great. There are no mainstream options for MS and I don't believe in miracle cures, but I do believe in this! Give it a go, but read the handbook thoroughly and stick with it, what have you to lose?

MSi symptoms  begin 2001, DXi RRMSi<2008.  take interferons, on and off, until 2012  2010 9-12 monthly chemotherapy pulses to slow MS progression.  CCSVI March 2011. Wheldon protocol since April

Hello Canada,

another non CFSi person, but I just wanted to say that the actual antibioticsi are the same for all the different diseasesi caused by Chlamydia pneumoniae, but different people respond in different ways.  Jane is right about the holiday season, for people north of the  equator at least, but I am sure that a CFS sufferer will be along before too long.  For the moment, read as much as you can and maybe build up on the supplementsi, espeecially antioxidantsi, which should give you a solid base to start from................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

I have CFSi - but cannot speak about your particular situation. We are all so very different. What I can say is that I no longer have asthmai except from pollens, people who swim in perfume, or during infectionsi. I previously was on large doses of regular meds. My brain fog is certainly far less. My muscle pain is less. Yes it did flare up during CAPi

With the digestive and itching issues I'd perhaps check out the histaminosis site.

http://www.histaminintoleranz.ch/en/introduction.html<

 

Started NACi Sept'14... 100mg Doxyi Dec'14...  Roxi 13Dec '14 Supplementsi...

you can also have a look at this protocol

http://www.lassesen.com/cfids/ZeroBasedProtocol.htm<

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