I think this is the most on-topic diagnosis tool I've seen.
Diminished Cardiopulmonary Capacity During Post-Exertional Malaise
and here's a nice summary of the legal implications of the test
Legal and Scientific Considerations of the Exercise Stress Test
There is a disease characterized by protracted recovery from exertion. It doesn't have a name. It used to be what was meant by "CFS", then by "CFIDSi".
There is a continuous push by the CDC and others to widen -- and thereby dilute -- the definition of CFIDSi. They've proved repeatedly that if you throw "anyone with protracted fatigue" into the definition of the term, then you can "cure" most of the (added) sufferers with Graded Exercise and CBT. It is a scam, but what's new in that?
However, this back-to-back test of cardiopulmonary capacity gets right at the heart of the problem -- protracted recovery from exertion -- measures that, and provides pretty tough-to-fake documentation of the symptom.
I am going to ask my doctor to perform this measurement. I don't want or need disability compensation, thank God. I could have, though, if I hadn't found an effective treatment. I want him to measure this so that I can measure my progress.
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Ron
On CAPi for CFSi starting 01/06 (NE Ohio, USA)
Currently: doxyii & zithii -- continuous; metronidazoleii -- 5 days on, 9 days off.
Get the research results you paid for: support Open Access
Oooh, found a full-text on
Oooh, found a full-text on the legal issues!
Ron
On CAPi for CFSi starting 01/06 (NE Ohio, USA)
Currently: doxyi & zithi -- continuous; metronidazolei -- 5 days on, 7 days off.
Get the research results you paid for: support Open Access
___________________________________________________________
Ron
On CAPi for CFSi starting 01/06 (NE Ohio, USA)
Currently: doxyi & zithi -- continuous; metronidazolei -- 5 days on, 9 days off.
Get the research results you paid for: support Open Access
If anyone happens to live
If anyone happens to live near Calgary, there's a study underway to put some additional rigor behind this diagnostic technique.
Brian MacIntosh normally works with high-performance athletes, but the means of measuring O2 consumption, lactic acid buildup, etc. are the same. It will be great to have objective proof of the effects of CFSi/CFIDSi/ME.
Ron
On CAPi for CFS starting 01/06 (NE Ohio, USA)
Currently: doxyi & zithi -- continuous; metronidazolei -- 5 days on, 9 days off.
Get the research results you paid for: support Open Access
___________________________________________________________
Ron
On CAPi for CFSi starting 01/06 (NE Ohio, USA)
Currently: doxyi & zithi -- continuous; metronidazolei -- 5 days on, 9 days off.
Get the research results you paid for: support Open Access
Thanks Ron, the first
Thanks Ron,
the first notable "outbreak" of ME symptoms occurred about 1975 in Lake Tahoe. The CDC rolled in, said poppycock & covered it up. They decided to call it Chronic "Fatigue" to further minimize the illness. At that time people were going down with unrelieved exhaustion all over the resort town. Some died, some by their own hand, due to the lack of help & psycho babble labels they received.
We have come along way since then; though, it is amazing, there are many who don't believe this to be an illness! I would like them to walk in my shoes for a day or two & see what they "think".
Happy Easter everyone.
CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 8th Pulse 2 X 375 mg 3day,375 2 d
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CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#13 1240 mg X 3 days 8-7-08