Central nervous system regeneration - is it possible?

As I am deeply depresed about my condition and the fact what CPNi really did to my nerve tissues, nerve cells, axons, neurons...etc

I would like to get some input from you about the potential for the CNSi regeneration.

 Anyone here is dealing with the peripheral neuropathy caused by CPN. What is the prognosis? Has anyone really got better and regained what he/she lost within these tissues. If anyone really recovered from neurological defficiencies, what would be the time frame to know whether it can still regenerate or not.

Is there any interest in the steem cell therapy over this site. Is there a potential for the nerve regeneration provided with these sophisticated technics.

 I will greatly appreciate your comments.

 

 

 

 

Comments

Go to www.suv.org and find

Go to www.suv.org and find out about the anti-inflammatory benefits of an akaline diet.

I've been on a roller coaster ride with CAPs since 2006- but I think the Wheldon P. plus an akaline diet and thyroid hormone replacement- T3 is finally the answer.

Hope you are finding some answers.

The best protective against

The best protective against peripheral neuropathy is vitamin B6 during pulses (and at other times if you have problems with this).

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Yes. I consider going under

Yes. I consider going under steem cell therapy only when I will remove the stressor. There is a hope in such treatment cause I am really pretty confident to say that my condition is not related to endotoxinsi nor porphiryns. I removed a lot of CPN  from CNSi, but this area is still a pure desert without any neurology in there. The thing that I am really currious about is how I even move or exist.. I do not feel anything in my body. It is almost like touching someone else body, my neck, brain is virtual. On the other hand i can speak, drive my car. This is like I would live inside someone else body and the world around is just the slideshow. My life is a movie. Unbelievable.

This is really devastating.

CFSi, Severe Peripheral neuropathy, Insomnia, Azitromycine/Clarithromycine/Roxytromycine, Doxycycline 2x100mg, Caffeine every day, Tinidazol for pulsing, ACC 2 x 600 mg -  treatment duration: 24 months

Well, I'm afraid that

Well, I'm afraid that dealing with stem cells would be much out of place for CPNHELP.ORG Web Site.

Apart from being just a "field for pioneers", there are so many different treatment options (and techinques) that a discussion would be not much different from "Drugs? Tell me about drugs....".

Stem cells hold great promise for nerve regeneration, but (in my limited experience) stem cells alone have a limited effect if not combined with a suitable supply of neurotrophic nutrients.
The supplementsi mentioned by many people here are thougth to be neurotrophic (or precursor of nerve growh factors): they might work as well with anybody's own stem cells. Receiving some "surplus stem cells" may speed up the regeneration, but only works for a limited amount of time, not for anybody, and along with a lot of additional factors (some of which still unknown).

One fact should be clear: stem cells don't cure from any degenerative illness (they don't addrees the causes of the disease), but rather (may) provide some temporary and marginal improvement.

< SPMSi - EDSSi 7 > < NACi 600mg X 2, Doxyi 100 mg X 2, Azith 250 mg MWF, Flagyli pulses, green tea, curcumin, flavonoids + all the supplementsi listed on Wheldon's Protocol (and possibly more) >

I read today that

I read today that neuropathy can also be triggered by antibioticsi. Metronidazol is very well known for the neuropathy effect. I am also interested if this whole misture of antibiotics is not responsible for the remaining neurological disorder that I am going through. I would like to try to stom CAPi to find it out but on the other hand I am afraid of CPNi load that would come next.

CFSi, Severe Peripheral neuropathy, Insomnia, Azitromycine/Clarithromycine/Roxytromycine, Doxycycline 2x100mg, Caffeine every day, Tinidazol for pulsing, ACC 2 x 600 mg -  treatment duration: 24 months

Steem Cells

Steem Cells treatment??

 

Can you tell me in details about this please.

 

 

CFSi, Severe Peripheral neuropathy, Insomnia, Azitromycine/Clarithromycine/Roxytromycine, Doxycycline 2x100mg, Caffeine every day, Tinidazol for pulsing, ACC 2 x 600 mg -  treatment duration: 24 months

I take alpha lipoic acidi,

I take alpha lipoic acidi, acetyl-carnitine, sublingual methyl-cobalamine, and idebenone (a syntetic form of Q10), and DHEAi. Plus all the common supplementsi (vitaminsi, minerals, oils, etc.).
And I had two stem cells treatments.
Yes, nerve regeneration (to some extent: don't expect miracles) is possible.

< SPMSi - EDSSi 7 > < NACi 600mg X 2, Doxyi 100 mg X 2, Azith 250 mg MWF, Flagyli pulses, green tea, curcumin, flavonoids + all the supplementsi listed on Wheldon's Protocol (and possibly more) >

Michael30, B-12 is poorly

Michael30, B-12 is poorly absorbed through the intestinal track for many people, increasingly as they age because of the necessity of a component that is manufactured by the body called intrinsic factor is deminished or missing.  Sublingual route can now be used but some folks do not get enought from that route.  I personally use sublingual route it is OTC in USofA.  I use a brand called superior Source, No Shot, instant desolve,  methylcombalamine 5000mcg/B-6,2mg/Folic Acidi 800 mcg per tablet.  They have many formulations of SL Sublingual Vitaminsi.  You put them under your tongue on in your cheek and let them disolve and absorb, that is the hard part they are tasty and not to be played with.  I also take 2000mcg cyanocobalamin for extra measure as it is another form of it for the body.

I understand that the injections are not large volumes and are not very uncomfortable and studies suggest that it is the best route to raise levels.    It has been know for many, many years that B-12 defficiency causes neuropathies.   Still few people get the treatment without seeking it.

There is a forumulation by Metagenics that call Intrinsi - B12 or something like that.  It can be had from natural physicians or even located on the internet.   I took it years ago before knowing about my CPni load.  It was helpful even then but not the full answer.

I may ask my MD about injections sometime this year.  Right now I am doing quite alright with my supplementsi and supports.  Please see my signature for more details.

Happy Holiday wishes for you.  I am in appreciation for this site and all the discussions and information that it has provided me.

Holiday Blessings to all,   Louise

  • CAPi(TiniOnly): 06/07-02/09 for CFSi
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

Hi Raven. Thanks for your

Hi Raven. Thanks for your effort. Isn't it possible to use B12 in the pills form. I do not enjoy injections. I know that the absorbtion is better but in a long run it would not make any difference I guess. Bluberries cool, will add it to my everyday regimen just like I use salmon

Recently I bought Thiogamma 600. This is simlpy alpha lipolic acid which also helps to regenerate nerves in the neuropathy.

 

CFSi, Severe Peripheral neuropathy, Insomnia, Azitromycine/Clarithromycine/Roxytromycine, Doxycycline 2x100mg, Caffeine every day, Tinidazol for pulsing, ACC 2 x 600 mg -  treatment duration: 24 months

I take alpha lipoic acidi

I take alpha lipoic acidi 600mg along with Acetyl L-Carnitine HCl 1g from Vitacost because this is on the list of supplementsi to support the Wheldon protocol. You really should take the time to read and understand the CAPi by using the Getting Started pages available from the link above.

speedbird

Hi Michael,I was able to

Hi Michael,I was able to heal with natural foods and supplementsi such as B12. The injectable B12 is best and will assist in nerve regeneration.

In my case, I had a small area of inflammationi in an area of the brain--the Pons from the Cpni infection.

I read about blueberries being beneficial for brain regeneration and began eating 1 cup a day--fresh when I could get them and frozen when they were not available. Within two years there was no trace of the original inflammation on my MRI.

So I would say that injectable B12 for nerve repair is essential. Then foods such as blueberries and wild salmon would be at the top of my list. I also take 1500 mgs of niacinamide that has been shown to repair nerve function in rats. I was taking 3,000 mgs of it my first few years of treatment and found it very helpful. At such high doses it is also anti-Chlamydial.

You might also try some flaxseed oil as it is very good for dampening inflammation.Mix a tablespoon with some plain yogurt as it needs to be taken with protein for good absorbtion. 

Hope this helps,

Raven

 

 

Feeling 98% well-going for 100. Very low test for Cpni. CAPi since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NACi,BHRT, MethyB12 FIRi Sauna. 1-18-11 begin new treatment plan with naturopath

Do a google on

Do a google on Fampridine.  I think it's in phase 3.  It's not ideal, but someone is working on this.  IMOi, I beleive the cnsi can regenerate over time.  Ken

In pursuit of ABX

Don't Allow What You Know To Get In The Way Of What Might Be

Amen Michele, thanks for

Amen Michele, thanks for adding that clear response. 
  • CAPi(TiniOnly): 06/07-02/09 for CFSi
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

Just want to add that these

Just want to add that these cpntoxins and porphyriai are were toxic for your whole body and also very neurotoxic. (As you of course already know). Have you read about that we have antibodies to vitamin b12?

So we need a lot of it. And nervous system also need a lot o it to regenerate. My neuroproblem got much better since I started metyl b 12 injections.

Wish you all the best, Maria

 

Cpni since sep 2006. Autoimmune thyroid,hypofunction.levaxin,b12+folic acidi.All classic cpn,porphyriai and toxinsymtoms.Not able to work.Selftreating cpninfection with AllicinMax(garlic), NACi, high vitamin D3. CAPi for over 3 years. Back to work and life

Michael, most of us are a

Michael, most of us are a work in progress and we cannot give you any guarantees, I've answered your question in your previous blog as best as I can.   There are several people here who have recovered from quite severe MSi symptoms and their stories are in the patient stories tab at the top of the page.

I understand how scarry this is, my daughter has gone through and still goes through these episode but we cannot say how you will recover, we can only say that the outcome is likely to be much better than you would have had without the ABXi.

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.