History :
Following inhalation of particles in a tunnel in 2003-july (transport of several trucks of cattle preceded my car) I had a feverish state (starting same day) which lasted 4 days (no temperature, just important cold sweat) + drip syndrome (started not more than 1hour after exposure).
Before all this happened, I had an episode of strong coughing for a 3 months period which was probably due to exposure to bordetella pertusis (whooping cough) as titer showed quite high still 1 year later.
Appearance of headaches (sinusite), nausea, symptoms of oppression at upper respiratory tract + disconfort, vertigo, etc. I made several radiography which showed nothing.
Symptoms over time :Drip syndrom lasted at least for 1 year (it was reduced with local cortison treatment).Symptoms of feeling of burns (comparable at the pain one can feel when receiving an injection, needle penetrating) to foots, chest (level diaphragm both side), hands, arm, legs, occasional ocular pains.Also to note that in March 2004, I had a vein/blood vessel (located in left area chest at the top of the heart) which strongly inflated over a 15 cm length, I could not move the arm up. The symptoms regressed after 20 days of aspirin at a dosage of 3 grams/ day.Antibiotherapy :I had several antibiotherapies with :
1) Rulid - macrolid (5days) in august 2003 / result : no effect
2) Augmentin for 2 weeks end of september, improvement was clear but not complete and symptoms reappeared after one week cessation. Apparently (quite surprisingly) this antibio is known by experience to have an effect against those strains which have no pecto-glycan membrane !
Nasonex (nasal cortisone) which appeared to have helped to reduce the drip-syndrom). I also had an antibio with another macrolide (clarithromycin, 2 X 500 Mg/ day in july 2004) for 2 weeks. Do not seem fully active however has most probably got an effect.
I took it later a 2d and 3rd time, however it did show reduced benefit for me (strain resistance to this antibio is apparently common).
I then took doxycicline 2x 100mg / day (did not seem very effective although in some articles it appears to be one of the antibio of choice against Chl. pn.) for a 2 week periods.I took it again with higher dosage (double) and it showed better effect the first time we used that protocol with higher dosage.
Symptoms which have always be present and still are :
Rhinitis, fatigue, headache, itching of skin and eyes, tingling and numb of extremitiesness (they spread indifferent part of the e.g. bodies, thorax),
--> impressionn of being shooted violently with a needle !
dizziness states, upper respiratory tract pains (burning), bronchitis state (a lot of secretion), etc.
Lab Diagnostic :
Lab Serologyi june 2004 Chlamidia pneumonia IgGi to 160 (cut off with 40) IgA with 80 (cut off with 20) Comment Laboratory: IgA positive in the presence of moderate rates of IgG.
Results compatible with an active infection.
At that time Bordetella pertussis (whooping cough) showed very high titer : around 3000 (it decreased a few months later by a factor of 4. In september 2004, a new serologyi for chl. pneumoniae has been performed. IgG (anti chl. pneumoniae)increased x 4 (at 640) + appearance of IgM.
Questions :
Chl. pneumoniae can it be transmitted by the cattle (sheep, bovines, others)?Is it possible with a PCRi to identify the strain with which I may be still infected, what protocol to use ?Is there a contact (Doctor / Lab) you know in the area of Geneva – Switzerland ? A serology for fever Q indicated a titer of less than 80 (for the laboratory = negative). Shall I repeat that test ?
Possible antibio against Chl pn. as per litterature are per order of efficacy : doxycicline , tetracycline, then erythromycine, and little ciproflaxacin. In addition it seems that antibiotherapy protocolsi to fight this type of microorganism shall have a quite long duration and be repeated several times. What is your advice (possible antibioth., test to be performed, duration of antibiotherapy, etc.) ?
Thank you in advance for your assistance,
D. R.
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Hello D. I've no idea if it
Hello D.
I've no idea if it can be transmitted by animals or not but you do say that prior to that incident you had a pronlonged period of coughing and that may have been the start of it. I'm sure one of the experts will come along soon who may be able to answer that question.
Can I suggest you start by looking at the Getting Started section if you haven't already done so. We normally test for cpn by starting on NACi at 600mg a day and slowly ramping it up to 2400 a day. In fact the Wheldon Protocol recommends doing that for 2 weeks prior to starting abxi although it's not mandatory.
Yes this is long term treatment, you can't just take a few abxi for a couple of months. You're probably looking at 2 years or more as you need to hit the stuff that's hiding deep within your body. Some of the people on here with high cpn loads have been taking it for 4 years but many are showing remarkable improvements. The Patient stories will give you a better idea.
Berkshire, UK. Diagnosed RRMS Feb 4th 2008.
NAC 2400mg. All supplementsi. Doxyi 200mg. Zithi 250mg M/W/F.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAP 20th April 2008.
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Berkshire, UK. Diagnosed RRMS Feb 4th 2008.
NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008. First pulse June 2008
Hi Andesine, I am living
Hi Andesine,
I am living in Geneva (Switzerland), could you please provide me with a Doctor name who could help me with management of such protocol.
Txs
Daniel R.
Daniel, I can't find one in
Daniel,
I can't find one in the UK! Have you tried your own Doctor? Some of them can be responsive if you give them the right information up front.
I have no idea of any Swiss kindred spirits but someone else on here may know of one or be able to advise. Hang on in there.
I have to self medicate as my GP and Neuroi won't support me.
Berkshire, UK. Diagnosed RRMS Feb 4th 2008.
NACi 2400mg. All supplementsi. Doxyi 200mg. Zithi 250mg M/W/F.
No GP/Neuro support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008.
___________________________________________________________
Berkshire, UK. Diagnosed RRMS Feb 4th 2008.
NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008. First pulse June 2008
Hi there, OK, I will try wit
Hi there,
OK, I will try wit my Dr.
Txs
Cheers,
DR
Don't take mountains of
Don't take mountains of paperwork along with you as you'll probably send him into meltdown.
Berkshire, UK. Diagnosed RRMS Feb 4th 2008.
NACi 2400mg. All supplementsi. Doxyi 200mg. Zithi 250mg M/W/F.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008.
___________________________________________________________
Berkshire, UK. Diagnosed RRMS Feb 4th 2008.
NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008. First pulse June 2008
dxrinaldi, You most
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Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.
The following is a summary
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Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.
Good Heavens! My aunt spent
Good Heavens! My aunt spent almost all her life working with animals, mostly pigs and poultry. She is now almost completely crippled with Rheumatoid Arthritis.Sadly I suspect she is now beyond the point of return and CAPi wouldn't help her.
Berkshire, UK. Diagnosed RRMS Feb 4th 2008.
NACi 2400mg. All supplementsi. Doxyi 200mg. Zithi 250mg M/W/F.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAP 20th April 2008.
___________________________________________________________
Berkshire, UK. Diagnosed RRMS Feb 4th 2008.
NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008. First pulse June 2008
Janice C - thanks for precis
Janice C - thanks for precis article. Fascinating. Not something I've ever thought about really, but makes sense. It is also a good description for general 'infection' and C. Pneumonia issues (that have, over the years, been attributed to something else. I have copied it for myself and also to give to my doctor here in the UK. I am sure she will find it interesting.
M.E./CFSi 20 years, intermittent. Wheldon Protocol - Started NACi and supplementsi Sept 2007. Doxyi and Roxy full dose by Dec '07. First Flagyli pulse January 2008.
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M.E./CFSi 20 years, intermittent. Wheldon Protocol - Started NACi and supplementsi Sept 2007. Doxyi and Roxy full dose by Dec '07. First Flagyli pulse January 2008.
Lala found the original
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Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.
well, i for one, am dead
well, i for one, am dead impressed, even without the translation (you'd have to be Superwoman then
.
I will give it to my GP and anyone else who is interested, but mostly for myself. Since no-one seems to take any notice of my illness or dealing with this protocol (though I tell them it goes through them like a dose). As you can see Janice I am in an irate mood due to a 'friend' telling me earlier on the phone I should just get out of bed and stop lying around and being negative, and should I be on this protocol anyway, its news to her, though I told her about it months ago (is anybody out there???). I told her if she didn't believe i was ill that was her problem, blah blah blah. We don't talk much about our illnesses on this website, I guess we take it as read, but I am sick of the whole darn thing, the sickness, the disbelief, the isolation, even the trawling through the medical stuff sometimes (I mean I'm the one thats ill, shouldn't a doctor be doing this for me?).
M.E./CFSi 20 years, intermittent. Wheldon Protocol - Started NACi and supplementsi Sept 2007. Doxyi and Roxy full dose by Dec '07. First Flagyli pulse January 2008.
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M.E./CFSi 20 years, intermittent. Wheldon Protocol - Started NACi and supplementsi Sept 2007. Doxyi and Roxy full dose by Dec '07. First Flagyli pulse January 2008.
Blackfoot, Here's an old
Blackfoot, Here's an old thread for your mood.
Joyce~caregiver-advocate in Dallas for Steve J (SPMS). CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity.
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Joyce~caregiver-advocate in Dallas for Steve J (SPMS). CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity.
Read thread, thanks
Read thread, thanks Cypriane. Its hard, many difficult things at once.
M.E./CFSi 20 years, intermittent. Wheldon Protocol - Started NACi and supplementsi Sept 2007. Doxyi and Roxy full dose by Dec '07. First Flagyli pulse January 2008.
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M.E./CFSi 20 years, intermittent. Wheldon Protocol - Started NACi and supplementsi Sept 2007. Doxyi and Roxy full dose by Dec '07. First Flagyli pulse January 2008.
Louise, a long time ago you
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Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.
Interesting article. I grew
Interesting article. I grew up on a farm with lots of animals. We had several barns that I used to play in starting at around 6 years old. I have many problems that are listed. I have major climate change pain and have since I was a young teen. I have had skin exzema as did my dad all our lives. Nervousness and anxiety has kept my nails bit off to the quick at several times in my life. I was very anorexic as and teen as well as suffered with terrible insomnia in my twenties. I had lots of throat infectionsi, appendicitis and gall bladder disease in my twenties. I had mono in my teens and then developed MS in my late twenties. I have various food allergies that manifest themselves with rashes and hives. If this is true, it follows some of what I have experienced in my life. Interesting to say the least.
SPMS< Supplementsi & NACi, Doxyi 100 mg, Azith 250 mg 3X/wk
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SPMS< Supplementsi & NACi, Doxyi 200 mg, Azith 250 mg 3X/wk, starting flagyli slowly
Full length article cited
Full length article cited here above available at this page :
http://www.cpnhelp.org/a_few_articles
very interesting. Though I
very interesting. Though I didn't grow up on a farm I was exposed to my uncles' farm for the summer months. They were mixed farms so there was lots of animals including cattle.
CFIDSi/ME 26yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#9 750mg 5.5 day, 4-25-8___________________________________________________________
CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#11 1000 mg 5 days 6-14-08WOW - are we saying here
WOW - are we saying here that the primary source for transmission of Cpni is livestock? I did not get much exposure to a farm but we did own a couple of horses when I was a child and I went horseback riding at a local stable frequently.
Tina-MSi 37 years;EDSS 4.5 1/1/08 Wheldon CAPi; Azith 250mg 3 x a week; Doxyi 200mg daily, NACi 2000 mg daily, started Flagyli pulse 4/14/08.
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Tina-MSi 37 years;EDSS 4.5 1/1/08 Wheldon CAPi; Azith 250mg 3 x a week; Doxyi 200mg daily, NACi 2000 mg daily, started Flagyli pulse 4/14/08.
Tina, That's just one
Tina, That's just one article. I believe that there probably is significant transmission from livestock to humans, but it probably is far outstripped by the frequency of human to human transmission.
Joyce~caregiver-advocate in Dallas for Steve J (SPMS). CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity.
___________________________________________________________
Joyce~caregiver-advocate in Dallas for Steve J (SPMS). CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity.
The bug load at time of
The bug load at time of infection is the very important factor
+ immmune and genetic condition of the person who get infected
+ virulence (what makes the bug to be virulent, have specific infective properties against specific species, genetic population, etc) of the strain coming into contact with patient (interaction between bug virulent "factors" and subject genetic factors).
A lot of human beings have been in contact with CHL (AND have then produced anti-bodies against CHL) however certainly with low amounts of bacteria which will trigger a normal immunei response which will be sufficient to defeat the bug.
If for any reason (e.g. co-infection, immune depressed subject, "massive"amount of bugs infecting the subject at one time, etc.) the patient cannot respond with strong enough immune answer, the first defenses of the subject are "defeated" and the infection can go to chronic disease.
So what is important is not whether it is spread from human to human or from animal to human, however the "kinetic" of the reaction (taking into account all paramaters : immune function of the subject, virulence of the infective bug strain, quantity of bugs in aerosol which entered subject body(CHL pneum. being mostly spread trough air as main but not single possible vector).