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Russ Farris: russ@PotbellySyndrome.com
http://www.PotbellySyndrome.com
CAP costs
Submitted by Russ on Sun, 2008-04-27 17:32. I'm a coauthor of The Potbelly Syndrome, a book that is largely about health problems caused by CPNi. Within the next few days I plan to start approaching large companies with the argument that they could save millions of dollars on employee healthcare programs if they would start paying attention to low-level chronic infectionsi.
I'd like to know what it costs to implement a CAPi. Ten years ago, I estimated that implementing the Vanderbilt protocoli would cost less than a thousand dollars a year. Today, I'm sure it costs several times that much, but I don't know how much more. I'd appreciate your input on this.
I'd also like to know how long it takes to irradicate a CPN infection. Thanks.
Russ http://www.PotbellySyndrome.com
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Are you talking of he
Are you talking of he Antibioticsi only, or are you thinking about the cost of both the antibiotics and the supplementsi we take?
It would not be difficult to work out the antibiotics. The supplementsi might take longer.
Some people get their antibiotics from this site www.edrugnet.com. The protocolsi can be found here.
Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMS, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMS, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
I'd like to know the
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Russ Farris: russ@PotbellySyndrome.com http://www.PotbellySyndrome.com
Russ, We're all big fans of
Russ, We're all big fans of your book and it's a pleasure to see you here. (I discovered the book shortly before I discovered I had cpni, and was especially appreciative of the chapter for professionals/scientists. I know few authors would have the good sense to preface a chapter with 'you don't have to read this, it's pretty detailed stuff'. Thanks for being honest with your readers.)
Actually, you do need a pretty comprehensive breakdown of costs, unless this question is just for curiosity's sake, which I sort of doubt.
The reason is, there's 'retail' and there's 'other'. It's kind of a worst case vs. best case thing. For those of us with great insurance, the cost of the meds is thirty dollars a month. For those with no insurance, or those who have to buy antibioticsi through the internet, costs escalate dramatically.
I'm on the ridiculously low end, but I don't have to fly to see a doctor and I have Blue Cross medical insurance. Out of pocket, I spend around thirty dollars a month on vitaminsi and supplementsi, thirty on meds and ten a month on doctor visits. It sure beats the $1500/month Copaxone would have cost and the $175 every three months for the neuroi visits. Others will be by shortly to give you the high end numbers, I'm sure.
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Thanks for the kind words
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Russ Farris: russ@PotbellySyndrome.com http://www.PotbellySyndrome.com
Russ - Really like your
Russ -
Really like your book and have recommended it to several people.
Based on drug prices at chain pharmacies - here's your approximate range:
Doxycycline
100mg taken twice daily, Dispense 60 $ 39 to $ 46 per month
Azithromycin
250mg taken once daily M-W-F, Disp 12 $70 to $88 per month
Flagyli
500 mg taken 3 times per day for 5 days $10 per pulse
pulsed once per month
Amoxicillini
500mg taken 2 times per day $ 21 to 26 per month
Treatment cost for one year (sans labs, supplements, endotoxini, porphyriai measures) $ 1356 to $ 2160 per year at retail pharmacy prices.
Employer health plans would of course pay lower than these retail prices.
Daisy - Husband on CAPi 5/07. Roxyi, Diflucan round three 4-4, Rifampin, Bactrim DS, Mepron 4-6,
Prednisone,Novantrone, Doxy, Azithromycin, Flagyl, Minoi___________________________________________________________
Daisy - Husband on CAPi 5/07. Roxithromycin, Rifampin, Bactrim DS, Tindamax 6-23, Tetracycline 7-3,
azithromycin, doxyi, minocycline, diflucan, mepron, prednisoneThanks for the kind words
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Russ Farris: russ@PotbellySyndrome.com http://www.PotbellySyndrome.com
Costco.com is likely the
As for how long treatment takes: how long is a piece of string?
I'll check Costco's
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Russ Farris: russ@PotbellySyndrome.com http://www.PotbellySyndrome.com
Re how long it takes to
Re how long it takes to eradicate Cpni? Dr Stratton suggests 3 to 5 years. Still a lot less expensive and of shorter duration than continuous treatment with some of these expensive MS drugs...
Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMS, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMS, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
Thanks for relaying Dr.
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Russ Farris: russ@PotbellySyndrome.com http://www.PotbellySyndrome.com
Russ, What are your plans
Russ, What are your plans for overcoming the anti-antibiotic hysteria out there?
Joyce~caregiver-advocate in Dallas for Steve J (SPMS). CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity.
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Joyce~caregiver-advocate in Dallas for Steve J (SPMS). CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity.
I don't have a good answer
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Russ Farris: russ@PotbellySyndrome.com http://www.PotbellySyndrome.com
Russ, A word, please, on
Russ, A word, please, on site usage.
After reading your several responses, not having addressed them to anyone, I think I figured out what you were doing. I might be wrong, but I think YOU think, by 'replying' to a specific post, your response will attach itself to that post? Actually, responses post on the site chronologically, by time submitted.
I read your replies, then realized they were addressed to each of us who posted, in order. It will be less confusing to the reader (especially those with major brain fog) if you preface your posts with the name of the poster you're actually directing your comment to. Now, stepping off one soapbox onto another...
I think hammering the insurance providers is the most profound method of getting the word out that I could ever imagine. What can we do to help? Oh, and if you decide to follow that one up, it should probably have its own individual thread. I have a feeling it could generate huge response.
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Russ/MacK While it may be
Russ/MacK
While it may be true that hammering the insurance companies might help; I am not so sure. LTD insurers & country's own disability benefits are very hard to get approved. Insurers are still running around denying coverage & leaving the sick & disabled to fend for themselves during the long road to PROVE they are in fact sick. At this time, most doctors don't know squat about CPni.
Having said that, we should press on. This is an upward battle & immediate rewards will not be realized. We know that!
CFIDSi/ME 26yrs, FMSi,
IBSi, EBVi, CMV, Cpn, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#9 750mg 5.5 day, 4-25-8___________________________________________________________
CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#12 2 gm oops then 1250 mg 4 days 6-14-08I KNEW this should have its
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Russ, That paper is one of
Russ, That paper is one of my favorite tools to combat the bias against antibiotics too. When conversing on the subject of abxi with people who mention antibiotics like they were the vilest poison on earth, I generally ask them what type of treatment they would want if they had an infected wound, TB, infection with a flesh-eating bacteria, or syphilis. Then I agree with them that antibiotics are overprescribed and overused, thereby contributing to the development of bacterial resistance. From there I go on to relate that another significant part of the problem is in underprescribing antibiotics---too low a dose, too short a course, bacteriostatic instead of bacteriocidal agents...leaving the more resistant bacteria to thrive. Patients often make matters worse by not finishing the entire prescription. That's when I start referring to the ideas in Dr. Stratton's paper and to the strategies in a well planned CAPi. The words "Dead Bugs Don't Mutate" are a perfect summary.
Joyce~caregiver-advocate in Dallas for Steve J (SPMS). CAP since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity.
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Joyce~caregiver-advocate in Dallas for Steve J (SPMS). CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity.
Joyce,thanks for this
Joyce,thanks for this suggestion. Great approach as I been asked about aren't you concerned about resistance all to often.
Louise
CFSi/ME.CPnPositive.BbPositive.WheldonCAPbegan6/24/07. NowNAC,Doxyi, Roxi, Full TiniPulse#5 pulse day 10 in process. Ended2/3/08. Cholestyramine at BedtimeforPhorphoria&liposacarideEndotoxinDie-OffExperiences.
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Louise CFSi Began Wheldon CAPi 6/07, Occ. Cholestyramine1-2packets HS/forporphoria&endotoxini sx, S.O.D.3TID(KAL Brand),VitD34000IU, MagnascentIodine 8gtts 1-2x/d, Doxy100BID,Roxi150BID,Tini500mg BIDpulses,CPnPos,BbPos.Summer2008signature.
Thanks, MacKintosh, for the
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Russ Farris: russ@PotbellySyndrome.com http://www.PotbellySyndrome.com
You're right, Ruthless1,
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Russ Farris: russ@PotbellySyndrome.com http://www.PotbellySyndrome.com
Russ, You could always try
Russ, You could always try Michael Moore for a documentary approach
Louise
CFSi/ME.CPnPositive.BbPositive.WheldonCAPbegan6/24/07. NowNAC,Doxyi, Roxi, Full TiniPulse#5 pulse cycle day 10 today. Cholestyramine at BedtimeforPhorphoria&liposacarideEndotoxinDie-OffExperiences.
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Louise CFSi Began Wheldon CAPi 6/07, Occ. Cholestyramine1-2packets HS/forporphoria&endotoxini sx, S.O.D.3TID(KAL Brand),VitD34000IU, MagnascentIodine 8gtts 1-2x/d, Doxy100BID,Roxi150BID,Tini500mg BIDpulses,CPnPos,BbPos.Summer2008signature.
Hi Louise--Good idea. I
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Russ Farris: russ@PotbellySyndrome.com http://www.PotbellySyndrome.com
Russ & everybody, some good
Russ & everybody, some good ideas.
The attack on insurers must be relentless. Perhaps it would be easier to convert the patient disability advocates & start from that angle?
I agree that it could go any which way with Michael Moore. I wonder about the respect it would garner coming from his cutting room.
CFIDSi/ME 26yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#9 750mg 5.5 day, 4-25-8___________________________________________________________
CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#12 2 gm oops then 1250 mg 4 days 6-14-08Okay Norman, I'll give:
Okay Norman, I'll give: how long is a piece of string? I know, I know, long enough to hang...
CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 300mg Roxithromycin, Tinii 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3
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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
Hi Ruthless1. I had never
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Russ Farris: russ@PotbellySyndrome.com http://www.PotbellySyndrome.com