Can anyone tell me if they have been successful in eradicating CPN & how long it was?

Was wondering how difficult a treatment protocol is?  I have CFIDSi/ME & FMSi, Hemochromatosis, IBSi & tested positive last year for CPNi.  Thanks
Not too long, too long, not difficult, too difficult....Depends on the day and your own realization of your future. For me the first 2 1/2 years were the hardest. Being PPMSi and heading very fast to the big black hole, it was an easy choice. Do it and do it well or lose everything - body and mind. There were some very bad times that lasted and lasted but eventually I hit bottom with a squishy plop and began the long adventurous reversal. Like you, I had zero energy and not much more mobility than that. Today I can do more in an hour than I could in a week 2 years ago. If you decide to do this, welcome. I think you won't have to look far for education and entertainment.

 

Rica PPMS  EDSSi 6.7 at beginning - now 2.  Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith,  cont. flagyli  total 41 pulses NC USA

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

The treatment experience is different for everyone, so telling you I've had little to no side effects doesn't mean you will have the same results. But I don't understand. If you have cpni and if you mean to be treated, what's the difference? I was willing to go through hell and back if it meant I came out of it cured. However difficult it may or may not be, there's no way out of this but to bite the bullet and take your medicine.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Not easy, not quick, but certainly the only way out of debilitating illness for most of us. It is difficult to be absolutely sure that Cpni has been eradicated which is why the people who are better continue to follow intermittent treatment.

Everyone's experience is different, much depends on where Cpn has settled in your body. I have neither MS nor CFSi so my experience would be different to yours. The most spectacular aspect of my recovery is the growth of my hair, from being very nearly bald to a full of hair, but that aspect of my treatment was more of less painless. Other aspects of the treatment have caused me more pain and discomfort, especially in my tummy and legs. I'm a long way from being better, but there is progress.

Michele: Wheldon CAP1st May 2006 IBSi, sinusitis, alopecia">i, asthmai, peripheral neuropathy. 26th March 2007 continuous Flagyli at 400mg with 5 day pulses at 1200mg every three weeks. Spokesperson for Ella, RRMSi Cap Started 16 March 2006

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

 Ruthless- As they say, it depends...

The difficulty of it (die off reactions, inflammationi, porphyriai) depend on your overall bacterial load, what organs are infected, how many systems are haywire, how long you've been infected, etc.  Same with length of treatment. The key is that you ramp it up gradually as you tolerate it. Most of us have some rough periods, especially when we try to push the treatment faster than we can tolerate. Are you as impatient as I am? 

Maybe a better question is not "how long until it's gone?", but "do you feel better in the course of treatment?" To that I'd say yes, you will feel better as you knock down the Cpni load some, and increasingly better as that happens. I'm probably one of the more challenging cases: had it for a long, long time and with lot's of tissue loadi. First couple months were misreable for me, then gradually noticed less and less inflammation and pain, then noticeable immunei system improvements. Fatigue has been slower to abate for me, but is improving on continuous protocol. 

Others have had initial improvements in fatigue and concentration, etc, etc, in all the variations. A few have had little initial reaction, just improvement.

I have to say, as a CFSi/FM sufferer for many years, having tried many treatments and therapies, some of which helped but I was going down hill over time none-the-less, it was the severity of my initial reactions to the doxyi that convinced me that my disease was due to Cpn. So strong reactions to starting the CAPi, while really unpleasant, give credence to infection as the problem.

And if you have Cpn, as you've said, really what is the alternative? Without treatment you just get worse and worse. With incorrect treatment (a course of single antibiotic) you feel initially better, and then it springs back worse when you stop.

CAP for Chlamydia pneumonia since 11/04. 25yrs CFS & FMSi- Currently: 150mg INHi, 200 Doxycycline, 500mg MWF Azithromycin, 1000mg Flagyli daily (Continuous protocol)

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Ruth, it took me about a year, but then, apart from having MSi, which in the end affected me very badly, I was always quite healthy, ate good, organic food and started supplementing with vitamin Di before I began abxi<.......Sarah
 
An Itinerary in Light and Shadow
Wheldon regime since August 2003, for very aggressive SPMSi.  Intermittent therapy after one year. 2006 still take this, now two weeks every three months.  EDSS was about 7, now 2. United Kingdom.
Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

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