Cpnhelp.org - Chlamydia Pneumoniae Treatment

I gather that the doctor is the restless sort; not content to stop with merely relieving symptoms. Hurray! 

Now, should we PWC's (Persons With CFSi) take neurontin? I'll pass unless it all just gets too bad while I am killing off the CPni.

 

Ron

On CAPi for CFS starting 01/06 (NE Ohio, USA)

Currently: doxyi & zithi -- continuous; metronidazolei -- 5 days on, 9 days off.

Get the research results you paid for: support Open Access

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Ron

On CAPi for CFSi starting 01/06 (NE Ohio, USA)

Currently: doxyi & zithi -- continuous; metronidazolei -- 5 days on, 9 days off.

Get the research results you paid for: support Open Access

So do you think all that's needed is antibioticsi and the brain will heal itself on it's own?

I've taken neurontin a while back for sleep mostly, as well as a hope it would help with pain. It did initially help with sleep, but I found myself more and more befuddled cognitively. When I couldn't plan an afternoon of a workshop I had conducted many times I finally connected this to the neurontin, which I had tried to increase in dosage as prescribed. This was only 200mg! I stopped the neurontin and my cognitive problems cleared in a few days.

So, my own experience suggests that this is not the thing for everyone. I'm not even sure if I believe the theory here. I've read all sorts of doc's who grabbed hold of a phenomenon that might have been true for one patient, and over-generalized it to "the cause of CFSi." There was one doc who insisted it was all hidden sinus infectionsi: and ENT as you could guess. There is an old saying, "When you have a hammer, everything is a nail." The equivalent, "When you have an MRI, everything is brain injury."

Does the brain heal itself? Mostly. I do believe that modulation of neuronal overstimulation can be helpful in allowing circuitry to reformulate and rebalance. But I don't think Neurontin is by nature a curative agent. It is a palliative agent that may assist dampening over-firing. But if you don't remove the cause of this, brain porphyrins, inflammatory cytokinesi from infectious agents, etc., it's merely palliative. As the man himself says in the article:

Dr. Seastrunk has become very interested in Chlamydia pneumoniae and Mycoplasma fermen-tans (incognitus) and, during a lecture, said, "We see a certain portion of people who have this illness and focal brain dysfunction and they get better, but they continue to have sickness...we begin to look at Mycoplasma incognitus and Chlamydia pneumonia. Chlamydia pneumonia ...could be an explanation of the vascular problems that we see on MRI...they've got these things that look like MS that are vascular...it suggests that there's something actively ongoing that may be infectious that's continuing to injure the brain, and we need to kill that organism to stop the continuing injury."

CAPi for Cpni 11/04. Dx: 25yrs CFS & FMSi. Currently: 300mg BID Roxithromycin, Bactrim DS 2x/day, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

Anyone who googles "morontin" will see that Jim K is very far from being alone in his complaint.

That as well as good nutrition and supplementation.  In my humble opinion of course.

Louise USA.CFSi.CPn Positive.BbPositive.WheldonCAP6/24/07.NACi,Doxyi,Roxi, Tinidazole Pulses. VitD-3,4000IU. Intermittent Cholestyramine 1-2 packets atbedtimewithpulses&asneeded forporphoria&endotoxinsi. 

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Louise-CFSi, CPN+/Bb+ Wheldon CAPi 6/07, Cholestyramine1-2pksHSforPorphoria& Endotoxinsi, Doxy100daily,Roxi300BID,Tini500mgBIDpulses,VitD3-4000IU,MagnascentIodine,{S.O.D.3/QD[KAL Brand],+Pyruvate3.75G+SAM-eForEnergy}

prescanario, I don't know if the brain will heal on its own, nor whether antibioticsi are all that's needed, nor whether neurontin heals the brain.

 Of course, anyone with as little knowledge as I have is naturally ready with lots of opinions!

I don't get the impression that Neurontin 'heals' the brain; if it did, the dosage could be stopped once healing occured. It looks more like a treatment than a cure. He certainly doesn't make any case that the damage to the brain is caused by a "lack of Neurontin."

In fact, he seems to be looking for the cause of the damage, too. I like that.

The brain is capable of generating new cells, and even more capable of "wiring around" damaged areas. So I am inclined to say, inactivate and slowly eliminate the infection by treating with antibiotics, using Neurontin if necessary for palliative care, and let the brain heal itself as far as that is possible.

If the palliative care is needed after the infection is gone, that option is still open. (The brain is notoriously slow-healing.)

It's just my amateur opinion, of course -- testing (if it's ever done) may show that I'm completely wrong.

Ron

On CAP for CFSi starting 01/06 (NE Ohio, USA)

Currently: doxyi & zithi -- continuous; metronidazolei -- 5 days on, 9 days off.

Get the research results you paid for: support Open Access

___________________________________________________________

Ron

On CAPi for CFSi starting 01/06 (NE Ohio, USA)

Currently: doxyi & zithi -- continuous; metronidazolei -- 5 days on, 9 days off.

Get the research results you paid for: support Open Access

'..they've got these things that look like MSi that are vascular...it suggests that there's something actively ongoing that may be infectious that's continuing to injure the brain, and we need to kill that organism to stop the continuing injury." This is exactly what happened to my brain. And it happened in only one area--the pons. Which is why all my MRI reports said "sub acute ischemic attack" The neurologists were befuddled and called it "inflammationi". Neurontin was a disaster for me. More brain fog and problems with blood sugar levels surfaced.I had to stop using it. The best brain repair food is fresh blueberries. And lots of fresh organic fruits and vegetables as well as fish oils.Not drugs like "Morontin". Raven CAPi since 8-05 for Cpni and Mycoplasma P. for MS and/or CFSi

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CAPi since 8-05 for Cpni and Mycoplasma P. for MSi and/or CFSi Also EBVi and HHV6

I was prescibed this at the Pain Clinic long before I knew that I had MSi and my experience was the same as Jim's - zero pain relief and plenty brain fog. I stopped it and still have the pain. But since starting the CAPi I have had brief pain free periods, so fingers crossed on that front.

I don't think that something developed for controlling epilepsy should be used lightly.

New Forest, UK. Progressive MSi dx 12/06 LDNi 3/07 CAP 6/07: Wheldon version. Pulses so far #10

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Progressive MSi dx2006. LDNi & CAPi: Wheldon version. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.Pulses #13...I can because I think I can.

I took Neurontin for years and finally quite altogether because I was losing my words. It creeps on you over time until you are in a drug induced fog. It wasn't worth it for me. 

I just googled "Morontin" -- how appropriate! Guess it's pretty common. I took so much for so long that my head did not clear once I stopped it.

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Corinna. GFAi. NACx2400mg, D3x5000mg, B12x1000mcg.

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Corinna | GFAi. Wheldon Protocol: 4 – 8/08. Stepping back to recoup. Prednisone, Tramadol, Probiotics.

Corinna, CPni was taking my words away, progressively with the brain fog.   Thankfully I have many more words these days.   Still I can always use more words!

Louise USA.CFSi.CPn Positive.BbPositive.WheldonCAP6/24/07.NACi,Doxyi,Roxi, Tinidazole Pulses. VitD-3,4000IU. Intermittent Cholestyramine 1-2 packets atbedtimewithpulses&asneeded forporphoria&endotoxinsi. 

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Louise-CFSi, CPN+/Bb+ Wheldon CAPi 6/07, Cholestyramine1-2pksHSforPorphoria& Endotoxinsi, Doxy100daily,Roxi300BID,Tini500mgBIDpulses,VitD3-4000IU,MagnascentIodine,{S.O.D.3/QD[KAL Brand],+Pyruvate3.75G+SAM-eForEnergy}

Louise, this is encouraging!  My mental abilities have diminished to the point where I've hired a book keeper because when I'd come back to review my figures a week or so later I would be confounded at some of the things I'd done. I've run my own business for over 15 years and am no longer entirely competent to do so. I'm doing the rote stuff now.  My dear Tim has been working so hard to carry the load.  He has affectionately coined the phrase 'Corinna-speak' because half the time I say the wrong word, or my phrases are a mess. He finds it fascinating what my brain picks instead: it can be a parallel or an opposite. Colours I generally go contrast (e.g., orange for green), words are generally parallel. It's embarrassing when it occurs while speaking in public.

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Corinna. GFAi. NACx2400mg, D3x5000mg, B12x1000mcg.

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Corinna | GFAi. Wheldon Protocol: 4 – 8/08. Stepping back to recoup. Prednisone, Tramadol, Probiotics.

For me at that point I would choose not to speak much.  It varied from time to time.  Maybe times of increased prophoria during times of EBi releases?  Just a guess.  Anyway some days were worse than other and more and more days were very challenging.   Peing generally precise I too would marvel when checking back some of the errors that I had made. 

Of course you will take it slowly to start. For me the first 5 - 6 months were the most challenging, getting worse to get better.  Wish I had know about Cholestryamine sooner.   Charcoal was a turn off for me, to hard to fit in and as even supplementsi were a challenge many days I could not gt them all in.  I was doing well to be consitent with Doxyi and NACi, then Roxi and finally tinii.  My first full pulse was started on Thanksgiving day.  First came the energy and then the fever 0f 102 F, likely due to the Bb. At that time it was imported Tini so I know it worked.  And after all that I went to a family wedding and was able to have enough stamina to dance and enjoy myself.

This website was a real help.  Early in treatment I had little energy to do much but sit here and read posts and read information.  Ihad a very high CPni load, It was so helpful to know that others had had a hard time early on and had then begun to improve.   I just kept putting one foot infront of the other. 

I am ever hopeful for more recovery, strength and normalicy.  I road the emotional rollercoaster too, it is good to have a place to be able to expect that someone will understand and cheer you on.

Louise USA.CFSi.CPn Positive.BbPositive.WheldonCAP6/24/07.NAC,Doxy,Roxi, Tinidazole Pulses. VitD-3,4000IU. Intermittent Cholestyramine 1-2 packets atbedtimewithpulses&asneeded forporphoria&endotoxinsi. 

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Louise-CFSi, CPN+/Bb+ Wheldon CAPi 6/07, Cholestyramine1-2pksHSforPorphoria& Endotoxinsi, Doxy100daily,Roxi300BID,Tini500mgBIDpulses,VitD3-4000IU,MagnascentIodine,{S.O.D.3/QD[KAL Brand],+Pyruvate3.75G+SAM-eForEnergy}

Louise, I wish you continued improvement on your path to wellness. It is good to read about the challenges others face(d). I feel less alone, less odd, less of a lemon. For years I've been given different diagnosis which I felt were all wrong. I thought what they were naming was only a symptom of what was wrong, not the root cause. That idea went over well with no one.  Now, I feel I have truly discovered the root of all my ills (barring that I'll still likely have allergies and eczema when this is all over). For the first time it all makes sense to me and I am empowered -- I can DO something about it. And that's great even if I have to feel like crap along the way. At least I'll know why. That means everything.

Best wishes,
Corinna

 

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Corinna. GFAi. NACx2400mg, D3x5000mg, B12x1000mcg.

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Corinna | GFAi. Wheldon Protocol: 4 – 8/08. Stepping back to recoup. Prednisone, Tramadol, Probiotics.

Twickle, we can hope that even the allergies and eczema will clear up. Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

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Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

Janice, that is my deepest hope with this protocol -- to be done with steroids and to enjoy the autumn years of my life with a normalcy that I have only dreamed of. I am so grateful for this site.

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Corinna. GFAi. NACx2400mg, D3x5000mg, B12x1000mcg.

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Corinna | GFAi. Wheldon Protocol: 4 – 8/08. Stepping back to recoup. Prednisone, Tramadol, Probiotics.