Please i need advise

Hi all, i really need your advise. Specially from those living in the uk and progressing.

i am reaching cracking point. I had the occupational therapist i have phoned the council but i seem not to get good advise.

from the services you can get buy or pay ,.... which one is the one you value the most? Eg cleaner, someone to look after children take them to school,  carer. I have the help of my husband but he is reaching a point where all this is too much,  keeping his work, looking after children, cooking, shoping.... all too intense because of his demanding job. And he travels a lot too.

Pulse #31

Hi everyone, Terri starts pulse #31 next week and is still experiencing slow steady improvements and ample evidence that the anti’s are still doing their job.

We got to three week pulses but found them too onerous with not enough recovery time between pulses and so we reverted back to four week pulses.

Diferent antibiotics

The capsules consist of 95 mg of clarithromycin, 45 mg of rifabutin, and 10 mg of clofazimine. RHB-104 From Readhill. Interesting.<

5 year and 5 month update

This may be a long read – so probably best to settle down with a nice cup of herbal tea first!

I think it must be true that time really does fly when you’re having fun, as I really can’t believe I’ve been taking antibioticsi for 5 years and 5 months now.  Not exactly sure I can describe the whole adventure as ‘fun’, but it certainly continues to be both fascinating and bewildering. 

I had a really positive appointment with my neurologist yesterday – he’s been supportive all along and, whilst I’m quite happy to ‘go it alone’ with all of this, which I have to do most of the time, it’s still great to have the chance to impress a doctor with the improvements so far!

Recent update minocycline

 Hi all,

yesterday i came across with a talk from a canadian university were they talked about what is promising in MSi for the future. Thay talked about ocrelizumab for ppmsi , stem cells and minocycline .<

Pendant alarm

sorry, this is not cpni related. But i was wondering if any of you that lives in the UK has a pendant alarm that works well and could recommend. I am struggling since i have so many to choose from and they lack of info some of theM. Please help......

Buhner Update

I am still faithfully doing the Buhner Protocol, taking the herbs he recommends 6x per day. I also started the protocol for Lyme and the co-infectionsi. After starting the co-infection herbs, I had some really rough days. They were as bad as I ever was on flagyli. I almost cut back but instead I upped cat's claw and started ibuprofen (both for their effect on inflammationi) and upped my chlorella intake. Whether the herx passed or those three things helped, or a combination, I'm not 100% sure but I did start feeling better soon thereafter.

21st pulse 17th full 5 day pulse

Forgot to post this - ooops...

Back October 1st to 5th I did this pulse...

Still feel at my worst immediately before a pulse...

Still taking pyruvate most days - skip it some days as I sleep late and do not want to wait 1 hour for breakfast and antibioticsi...

What I've been up to

Hi Everybody.

I've had to take a small break from to deal with a number of personal issues. Pulses were put on hold as well. I've been looking for a new job, had to file bankruptcy, and this summer my health took a slight turn for the worse because of some abscesses.

I felt it was time I gave you all an update.

Pulse #36 and 1st ever metronidazole pulse

I finished the last of my 5-day tinidazole pulse last Wednesday morning. Later on, I started my 1st ever metronidazolei pulse. In theory, the very last occasion that anyone would want to start taking metronidazole would be half way through their holiday. The tinidazole tablets that I had been taking had barely been - if that - keeping my dental pain at bay. Metronidazole seemed to have stamped on it. I shall continue taking this Spanish-bought metro until I have seen the dentist on Monday afternoon.

To Londoners!

Here is a message that I received from Terry Wahls.  Maybe this will interest some of you Brits.

HEALTH Unplugged is back for a special one-off event on October 29, 2016 from
12:00 to 16:45pm St Paul's Centre, Hammersmith, London.

I will be discussing:

Buhner Protocol after relapse

I haven't posted anything in a while. I thought I had got on top of CPni and that I just needed to build up stamina. Unfortunately, a few months ago, I had to face the fact that my post-exertion malaise was getting worse. I tried 600 mg of NACi and had a reaction. It took me a couple of weeks to get back up to 2400 mg per day. 

I am in a transition period with this. I was a patient of Michael and Dr. P and with the closing of their office I had to decide where I was going next. After reading about the Buhner protocol, particularly in the 2nd edition of Healing Lyme, and being a believer in herbs, I decided to give it a try.

Pulse #35

Yes, I have been through the wars recently.  Through most of August and nearly all of September, I was not well at all.  I had a little theory that running out of probiotic capsules allowed some sort of fungal overgrowth. All just a theory.

I feel young(ish) again

I have now run out of antibioticsi and I consider myself cured of MSi. I still have some tinizadrole and will keep pulsing every 4 weeks unttil they run out I have done 31 pulses since I started on the protocol. I have gained stength, balance, stamina and my thinking is clearer .

Self help news - Gluten sensitivity and Probiotics

"Our study demonstrated that the use of probiotic capsule for 12 weeks among subjects with MSi had favorable effects on EDSSi, parameters of mental health, inflammatory factors, markers of insulin resistance, HDL-, total-/HDL-cholesteroli and MDA levels."

"In a cross-over trial of subjects with suspected NCGS, the severity of overall symptoms increased significantly during 1 week of intake of small amounts of gluten, compared with placebo. Clinical trial no: ISRCTN72857280."

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