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When start with the 3rd Abx?

Hello all of you, I'm writing as I need your advice...I want to start with the 3rd Abxi, but I' m not sure, when there is the right time for it. I started end of April with Doxyi, some weeks later with Azi. Each time I felt a deterioration, so that in the meantime I cannot lift my right foot as is should be, going is very hard.

Now I wonder what will happen, when I start with the 3rd. I decided not to take Metroi, but Tinidazol , here I got the info, that it should be "softer". I read so much in this forum that I sometimes do not know anything.

Desperateůy ůooking for AUREOMYCINE

Hello everybody,

so im still fignting with the intraocular infection by Chlamydophila felis. The quinolons prescribed by czech doctors didnt help at all and im still goinng blind. Im neraly completeůy blind now ?-(((

A biochemist and a catr lady, who has been through this disease, told me that quinolones dont work well inside the eye, either. And the best treatment for tzje feline chlamydia is Aureomycine, but must be used both systeemically (perorally) and topucally as an eye ointment, One without the other doesnt work, either, . Chlamyydophila felis is often laso compltely resistant to Doxycycline, which is probably my case.

Taking a break

Hi there,

After suffering from gastro distress for many months, which has severely impacted my quality of life, I and my doctor have agreed that it is time for me to take a break from antibioticsi.  We will decide if I return to the protocol when my gut heals.  In the meatime I will keep taking NACi and I am doing my best to adopt Terry Wahls' ketogenic diet.

I will still be cheering for everyone on the protocol!  May you have more success and less discomfort than I experienced.

Best wishes to everyone!

cap and h. pylori

After a year on CAPi using flagyli / biaxin/ doxyi I started having seriouse throat issues..Went 9 months like this. I thought the antibioticsi had created chronic gastritis. My throat, heart , chest.. All were burning.

I never checked H. Pylorii as being the cause. After all I was using same antibiotics used for this parasite. Life was hell.

Asthmai was gone but acid was killing me.

Had an endoscope. I had amazingly h pylori infection.

I have been reading that H. pylori can be resistent to flagyl and biaxon.

2 days into amoxycillon and tetracyclin and I am getting ok and much better.

Carefull people. Longterm cap probably kills good flora and allows resistent strains of h pylori to thrive.

keep an open eye to this possibility.

Natural

Hello everybody,

It's been 6 months since I posted. I have chronic active CPNi. Does anyone know of an alternative to Abxi? I am suffering. Every 7 years I get a flare up that leaves me with a new symptom.

Thanks,

Enjoy your day.

20th tini pulse 16th full 5 day

Well just started this morning...

Slightly sore ankles again before starting this pulse... and sore thigh muscles just a bit this last month or so... but in general the leg pains are much less...

Also, when I rmember to take it, the pyruvate does change the quality of pain and generally leave me less "off" feeling but I do get sweats after taking antibioticsi...

Still unsure if I should think about doing antibiotics as 2 weeks on 2 weeks off - I def feel MUCH better off the antibiotics now. When I started the antibiotics made me feel off but did give me some relief from the grinding pain... 

My head space is improved - although I quickly go off if I have to keep going at all. At least I can get some brain function patches if I rest up.

Tryprophan

Hi,

I have been meaning to post this question for a long time.....say a year and a half! What is trprophan? I can't find any information on it. Is this a typo? Is it meant to say trptophan? 

It is mentioned in the section about porphyriai and diet:

http://www.cpnhelp.org/secondary_porphyria_what_<

"3. Avoid Red Meats Red meats, including beef and dark turkey as well as tuna and salmon contain tryprophan and should be avoided as much as possible."


Anyone Use Rifabutin or Rifampicin on Sjogrens?

Been using Minocycline for 3 years on Roadback.   Have tried combos with Amox, Clarithromycin, Roxithromycin, Flagyli, Tinidazole.   So far holding only.   Read some info that Sjogrens is caused by H Pylori, tough to beat.   There is a new drug coming, in Phase 3, uses Amox, Rifabutin and Prilosec, high doses, with 90% cure r ate.   Has anyone used this or used a combo with Rifabutin or Rifamycin with any success?  Thanks all.

Liz

50 done,srill not beter

So done 50 now using rampherin..not noticed much differemde but will continue for the moment.  So hoping ro be better= this has become a long and difficult journey . The abitics definateliy helped which motivates me to continue with this nitemare.  I'm sure my father has cpni, wihich he goet from his mothers I've got ms and just wish the medical connunity  would take a bit ot notice of this.  Anyway too tirrd to wright more - Beat tp all, love Suzanne


19th Pulse - 15th full 5 day pulse

Day 3 .... 

Still feel worst pain wise when I'm due to pulse... brain fog worst when pulsing...

Mitochondrial dysfunction, MS, CFS, ALS, Chronic infection and CPn infection

Here is a very interesting piece of research about Mitochondrial dysfunction and chronic infection, tying together many disparate chronic diseasesi.  Also ways, apart from antibioticsi, that you can improve your mitochondrial dysfunction.
"Many chronic diseases and illnesses are associated with one or more chronic
infectionsi, dysfunction of mitochondria and reduced production of ATP.

Chlamydia Pneumonia for CFS and fibromyalgia: 6 Month Recovery

TO: ANYONE LIKE ME!

I write this post not long after finishing the antibiotic routine. I am writing this for other people who are perhaps like me. When I first came here I could see there were many very sick people on this site and although I was quite unwell, I was not in the extreme category. So, this may be worth reading for other people who feel they are in a similar situation to me. 

SYMPTOMS BEFORE BEGINNING TREATMENT (JAN 2016)

An article relating to lyme/co-infections/MS

Lost my post I think - try again.

Just an article that I found good realting to MSi - spirochetes/ lyme/ co-infectionsi<

http://www.medscape.com/viewarticle/574944_3<

I haven't blogged in awhile...

Yet again...no real improvement...but...no further progression.  So, I'm going to call the protocol succesful.  I'm sure, if I'd get off my but and exercise a bit, improvements would come.

I did, however, have one of those episodes Aug 2.  I'd been feeling a little off for a couple days.  Low grade fever in the afternoon.  Monday, chills in the afternoon.  Went to bed, couldn't get up again.  Finally, about 5am, I struggled to my feet and then collasped (gracefully) to the floor.  Had to call the care attendants to pick me up.  No damage.

Turns out there was indeed a bug of some sort going around the building. 

Everything seems back to normal now.

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