blogs

20th tini pulse 16th full 5 day

Well just started this morning...

Slightly sore ankles again before starting this pulse... and sore thigh muscles just a bit this last month or so... but in general the leg pains are much less...

Also, when I rmember to take it, the pyruvate does change the quality of pain and generally leave me less "off" feeling but I do get sweats after taking antibioticsi...

Still unsure if I should think about doing antibiotics as 2 weeks on 2 weeks off - I def feel MUCH better off the antibiotics now. When I started the antibiotics made me feel off but did give me some relief from the grinding pain... 

My head space is improved - although I quickly go off if I have to keep going at all. At least I can get some brain function patches if I rest up.

Tryprophan

Hi,

I have been meaning to post this question for a long time.....say a year and a half! What is trprophan? I can't find any information on it. Is this a typo? Is it meant to say trptophan? 

It is mentioned in the section about porphyriai and diet:

http://www.cpnhelp.org/secondary_porphyria_what_<

"3. Avoid Red Meats Red meats, including beef and dark turkey as well as tuna and salmon contain tryprophan and should be avoided as much as possible."


Anyone Use Rifabutin or Rifampicin on Sjogrens?

Been using Minocycline for 3 years on Roadback.   Have tried combos with Amox, Clarithromycin, Roxithromycin, Flagyli, Tinidazole.   So far holding only.   Read some info that Sjogrens is caused by H Pylori, tough to beat.   There is a new drug coming, in Phase 3, uses Amox, Rifabutin and Prilosec, high doses, with 90% cure r ate.   Has anyone used this or used a combo with Rifabutin or Rifamycin with any success?  Thanks all.

Liz

50 done,srill not beter

So done 50 now using rampherin..not noticed much differemde but will continue for the moment.  So hoping ro be better= this has become a long and difficult journey . The abitics definateliy helped which motivates me to continue with this nitemare.  I'm sure my father has cpni, wihich he goet from his mothers I've got ms and just wish the medical connunity  would take a bit ot notice of this.  Anyway too tirrd to wright more - Beat tp all, love Suzanne


19th Pulse - 15th full 5 day pulse

Day 3 .... 

Still feel worst pain wise when I'm due to pulse... brain fog worst when pulsing...

Mitochondrial dysfunction, MS, CFS, ALS, Chronic infection and CPn infection

Here is a very interesting piece of research about Mitochondrial dysfunction and chronic infection, tying together many disparate chronic diseasesi.  Also ways, apart from antibioticsi, that you can improve your mitochondrial dysfunction.
"Many chronic diseases and illnesses are associated with one or more chronic
infectionsi, dysfunction of mitochondria and reduced production of ATP.

Chlamydia Pneumonia for CFS and fibromyalgia: 6 Month Recovery

TO: ANYONE LIKE ME!

I write this post not long after finishing the antibiotic routine. I am writing this for other people who are perhaps like me. When I first came here I could see there were many very sick people on this site and although I was quite unwell, I was not in the extreme category. So, this may be worth reading for other people who feel they are in a similar situation to me. 

SYMPTOMS BEFORE BEGINNING TREATMENT (JAN 2016)

An article relating to lyme/co-infections/MS

Lost my post I think - try again.

Just an article that I found good realting to MSi - spirochetes/ lyme/ co-infectionsi<

http://www.medscape.com/viewarticle/574944_3<

I haven't blogged in awhile...

Yet again...no real improvement...but...no further progression.  So, I'm going to call the protocol succesful.  I'm sure, if I'd get off my but and exercise a bit, improvements would come.

I did, however, have one of those episodes Aug 2.  I'd been feeling a little off for a couple days.  Low grade fever in the afternoon.  Monday, chills in the afternoon.  Went to bed, couldn't get up again.  Finally, about 5am, I struggled to my feet and then collasped (gracefully) to the floor.  Had to call the care attendants to pick me up.  No damage.

Turns out there was indeed a bug of some sort going around the building. 

Everything seems back to normal now.

Cpn protocol prescriber in Detroit, Michigan, USA

Does anyone know how I can get the medication?  My doctor won't prescribe without cpni infection proof.     I am extremely discouraged.    How is everyone on this site getting the meds?  I live in the Detroit, Michigan, USA area.   

I was diagnosed with secondary progressive msi in 2001.    

Doctor in Melbourne Australia??

Hi all, I'm new to the site and wondered if anyone could recommend a Melbourne based doctor willing to thoroughly test for CPni and administer abxi protocol? Having trouble as my docs are skeptical..

With thanks!

pulse 27

Hi there,

I just finished pulse 27 a few days ago.  As usual I was very tired for a few days...

Hoping that something good will result from this pulse.

Pulse #33

Pulse #33 here we go ...

Yes, I am rather late this time but then I have had very little energy; rather like a wet rag.

I have been rather depleted lately, so I haven't even logged on for a while. Having just started a pulse, it was necessary for me to log on in order to post. I went out into Swansea yesterday but today I am back to just basically doing almost nothing.  Here in the UK, the popular and universal get-out seems to be Brexit; I don't think I'll be blaming my lack of energy on that.  Hopefully, in a week's time I'll be singing from the tree tops.

Wink

G.

Tini Pulse 18 - 14th full 5 dat pulse

Up to 4th day... not much to report on this one...

Syndicate content