48th Tini Pulse

I will start a 7-day Tinii<i< pulse on April 5, 2016. 

Brain growth

I found this article about Gotu Kola and the benefits it can have in preserving and regenerating brain tissue.<

I'm going to try it out for a few weeks and then I'll let you know how it goes.  If you don't hear from me again ....


Tini Pulse 14 (10th full 5 day post)

Well I've just finished that pulse 2 days ago...  Lots of foot/ankle pain this pulse....

Woke this morning feeling almost normal(well brain worked pretty well and I was only a little sore) which wore off 2 hours later....

Still running HR at 130 or more just walking from one room to the other...

Getting 110 right now from typing on a computer...

Planning ability ZIP, constantly out for count(forget what I'm doing for a few hours to a day or two)... Meant to write this 7 days back and forgot... remembered twice but not long enough to make it to computer without forgetting why I was getting there... Arrrggghhh... If anyone finds my brain please return it...

Intermittent Protocol - Clarification please?

I seem to have 2 versions of the Intermittent Treatment and looking for clarification so I do this right. I have been on Capi for 22 months.

First one here seems to say that you do a couple of weeks and then off for a couple of months. Second one seems to say that you are on for two weeks a month.

Frozen back

Just wondering if anyone has the same dull pain in the lower to waistline of the back?  What should I do has anyone had any success getting rid of it?

Anti-biotics not working/kidney liver probs?

Just back from visits with MD and naturopath. It seems that my creatinine is continually low and I am having trouble processing uric acid. Knees are swollen/painful to 3X the size since December with no relief.

Plus, it seems alot more bacteria/parasites etc. in my blood as per live blood cell test today/ recurring UTIi/Ear infectionsi/

The opinion seems to be that the abxi are not working well/if at all for me anymore and are perhaps not doing my liver/kidneys any good.

Anyone having this problem? Of course, I am terrified to get off it has been a lifesaver. But perhaps a break is needed?

If you have Methylation problems

I found a clear and explicit You Tube video which explains all about MTHFR mutations, many of which underpin the development of MSi.  It can be a complex subject to understand, especially if you have brain fog.<


Skipping pulse this month

Just too stressed right now.

Controversial New Push to Tie Microbes to Alzheimer's Disease<

Just published in Scientific American, this mentions cpni:

"The editorial, signed by 31 scientists around the world, argues that in certain vulnerable individuals—such as those with the APOE ε4 gene variant, a known Alzheimer’s risk factor—common microbial infectionsi can infect the aging brain and cause debilitating damage. These microbes may include herpes simplex virus 1 (HSVi-1), the ubiquitous virus that causes cold sores as well as Chlamydophila pneumoniae and Borrelia burgdorferi, the bacteria that cause pneumonia and Lyme disease, respectively."

Best & Highest Regards,

Tom C

Epstein Bar

Many people with MSi have the Epstein Barr virus. Perhaps it's making the IJV's weak and possibly causing them to collapse. Please tell me you thoughts on this.

On day 2 of Pulse #7


recovering from 45 and a bit of good news!

Ok so some good news - and can control my bladder again which is great - no more nappies !  I can leave the flat now and drink coke light with vodka again.  The walking,balance still to return but this has given me some hope.  Of course I will post as soon as I have any more good news, love Sxi<

VALCYTE (Valganciclovir 450mg)

Hello everyone,

I would like opinions on the drug Valcyte. Dr. Montoya at Stanford perscribed it for me. Dr Powell, and Dr. Stratton think it is worth trying. I am concerned about the side effects on the central nervous system, so please send me your thoughts on this. Dr. Montoya said it may reduce inflammationi in the brain, and it will also help with my Epstein Barr lab test titer which is a little high at 1.09. (IGGi should be less than .90)

I couldn't bear restarting the Abxi, and I never saw a glimmer of improvement in 3 years.

I am interested in fecal transplants from a healthy donor. I took a lot of Abxi during my childhood due to various illnesses. This may likely have had a detrimental effect on my gut bacteria.

Chlamydia p. implicated in causing Alzheimer's

Researchers Identify Virus and Two Types of Bacteria as Major Causes of Alzheimer’s<

Pulse #28

Now that I have a brand new supply of tinii and roxi and I have all sorts of suff out of the way - my London visit and my weekend break in the West country - I can start a new pulse. This time it'll be a full pulse.


There are others out there doing remarkably well and I fear that if I don't crack on, I will soon be overtaken. This is only my 2nd pulse this year and we are already well in to March.

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