Anti-biotics not working/kidney liver probs?

Just back from visits with MD and naturopath. It seems that my creatinine is continually low and I am having trouble processing uric acid. Knees are swollen/painful to 3X the size since December with no relief.

Plus, it seems alot more bacteria/parasites etc. in my blood as per live blood cell test today/ recurring UTIi/Ear infectionsi/

The opinion seems to be that the abxi are not working well/if at all for me anymore and are perhaps not doing my liver/kidneys any good.

Anyone having this problem? Of course, I am terrified to get off it has been a lifesaver. But perhaps a break is needed?

If you have Methylation problems

I found a clear and explicit You Tube video which explains all about MTHFR mutations, many of which underpin the development of MSi.  It can be a complex subject to understand, especially if you have brain fog.<


Skipping pulse this month

Just too stressed right now.

Controversial New Push to Tie Microbes to Alzheimer's Disease<

Just published in Scientific American, this mentions cpni:

"The editorial, signed by 31 scientists around the world, argues that in certain vulnerable individuals—such as those with the APOE ε4 gene variant, a known Alzheimer’s risk factor—common microbial infectionsi can infect the aging brain and cause debilitating damage. These microbes may include herpes simplex virus 1 (HSVi-1), the ubiquitous virus that causes cold sores as well as Chlamydophila pneumoniae and Borrelia burgdorferi, the bacteria that cause pneumonia and Lyme disease, respectively."

Best & Highest Regards,

Tom C

Epstein Bar

Many people with MSi have the Epstein Barr virus. Perhaps it's making the IJV's weak and possibly causing them to collapse. Please tell me you thoughts on this.

On day 2 of Pulse #7


recovering from 45 and a bit of good news!

Ok so some good news - and can control my bladder again which is great - no more nappies !  I can leave the flat now and drink coke light with vodka again.  The walking,balance still to return but this has given me some hope.  Of course I will post as soon as I have any more good news, love Sxi<

VALCYTE (Valganciclovir 450mg)

Hello everyone,

I would like opinions on the drug Valcyte. Dr. Montoya at Stanford perscribed it for me. Dr Powell, and Dr. Stratton think it is worth trying. I am concerned about the side effects on the central nervous system, so please send me your thoughts on this. Dr. Montoya said it may reduce inflammationi in the brain, and it will also help with my Epstein Barr lab test titer which is a little high at 1.09. (IGGi should be less than .90)

I couldn't bear restarting the Abxi, and I never saw a glimmer of improvement in 3 years.

I am interested in fecal transplants from a healthy donor. I took a lot of Abxi during my childhood due to various illnesses. This may likely have had a detrimental effect on my gut bacteria.

Chlamydia p. implicated in causing Alzheimer's

Researchers Identify Virus and Two Types of Bacteria as Major Causes of Alzheimer’s<

Pulse #28

Now that I have a brand new supply of tinii and roxi and I have all sorts of suff out of the way - my London visit and my weekend break in the West country - I can start a new pulse. This time it'll be a full pulse.


There are others out there doing remarkably well and I fear that if I don't crack on, I will soon be overtaken. This is only my 2nd pulse this year and we are already well in to March.

so 45 in process

so on day 2 of pulse now, feeling v bad - can report a little progress, - bladder a bit better can drink coke again which is great - used to go staight through me.  carer got me some adult pampers, that has certainly encouraged me to get a grip!  Anyway still living in hope and getting some positive signs.  Keep on with the battle!  Love S

Tini Pulse 13 (9th full 5 day pulse)

Well a little late pulsing nd then late making a mention here...

Had a thoroughly dreadful time lately - but it is pollen season so may be more immunei related than treatment.... I'm sleeping a lot and achey all over...

Having said that I noted yesterday that given my horrid state my brain function is maybe less fuzzed than normal - seems to be since the biotin dose increased... Anyone else feel that?

Finished my pulse a few days ago now... 

New member who can use some help

Hi everyone,

I am new here. 

Let me introduce myself first. I am a 31 year old female from Belgium whom is home sick for 6! years.

In 2007 I got diagnosed with CVS. And ofcourse, nothing they could do except the wellknown GET and cognitive therapy, the rest I probably don't need to explain to you...

2 years ago I went further and got tested for Lyme, I was positive, with many Co's. I have persistent CPNi for many years... Recently I got again a flare up and positive IgMi for cpn... Doctor's do nothing. My Lyme specialist prescribed me in the past some antibioticsi for it but it was clearly not enough. I had doxyi, azi, tetralysal, minocycline, clarithromycine, pulsed for 8 months and now 4 months later again I have a positive CPN... 

Bad x Good: What's the relationship between Cpn and human microbiome?

Hello everyone,

It's been a while since I am much interested in the probiotic subject, and feel grateful for the knowledge the microbiology world has offered to all of us. The objective of this post is to ask questions that may have not been asked,here, before and that could open more gates to a substantial debate, and get useful information for the website and ourselves.

Pulse 2 (4/02 - 8/02) -- Pulse 3 (22/02 - 26/02)

Pulse 2&3 completed. I feel a lot better when I am pulsing. i am sleeping a lot more. I am going through a lot of changes which I can not quantify here. 

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