I want to update my blog while I can. My vacation was great and I was able to keep covered up and enjoy the beach. I am leaving again this weekend - so counting pills and doing laundry. I am still taking 400 mgs doxyi + diflucan. I am keeping a journal as I am up and down but managing to get out. For Barbara: My spasticity is much improved and I am giving credit to the meds. I am on the stationary bike - keep in mind a very slow speed, can't get bike to light up also had to use hands to pull up legs to keep going. Just this week I was able to bike with no hands. I starting screaming to husband and daughter "look, no hands"!!!!! I also was pedaling hard enough to get lights flickering - I'll take it.

My friend and PT told me she tried to call me as ABC had some type a report about Lyme outbreak in MI just this week. I am sorry I missed it. I see my doctor Thurs. and plan to go up north for vacation on Friday. I have done pretty well on increased doxyi and diflucan. I have been more tired and had one really bad day emotionally but overall pretty well. I am also using vicks, oil and foot baths in epson salts and peroxide. I have been drinking 8 glasses of water a day - its hard as I live in the bathroom but I think it has to be helping with die off. Improvements - my toes almost look normal - 80 % better. I can't believe it!

I took Igenex Western Blot and saw new doctor yesterday. I have lyme. He is also is concerned about yeast- thinks endometriosis (prior problem) is a yeast related problem. He was happy I found the Wheldon protocol. He has put me on fluconazole for 60 days, told me to up doxyi to 400 mg. He also gave me injectable B-12. He wants me back next month and told me to avoid sun. Told me I need to drink 8 glasses of water a day. Tea doen't count. Avoid sugar and alcohol.... I did have rash 1994 - diag. as shingles but not sure now if it was - it was different than my last episode of shingles. 1. it was on chest 2. no pain Here we go.............

I am 1 week post pulse and still feeling bad. I added pyruvate this month, 4 gram before abxi and 4 after and it seemed like things were better until flagyli. I do not know for sure as I was taken off abxi for a month prior so maybe I just had more bugs to kill. I am achey, sore, swollen up, problems standing, walking....Legs feel like they are on fire when in bed - got up about 4 times last night for relief, as getting up seems to help. I'm taking aleve, extra c, extra b-12, epson foot soaks, glucose, just took 2 zyflamend ( something new to try). We have 8 more days of school. Soccer practice tonight which I dread as its going to rain - we missed last Tues. as I was too sick to get her there and could have called friends but get tired of asking for help.

I planned to call Doctor today to see if liver was ok and resume abxi. Did not have to make the call as they called me and said resume abxi! I plan to jump right back in since I have already been on all 3 at once unless a more experienced person tells me to go slow. I am taking doxyi this weekend, zithi beginning Mon. and next pulse after my mom's 80th (May 17) Since I have been off - that toxic feeling has gone away but I have been very tired. For me it has been an emotional rollercoaster. Twice I have got up in middle of night and almost passed out - hot sweat, dizzy. This happened right after I went off all meds and once again this week. Very weird. We checked blood pressure and it was fine.

Last month my liver enzymes were elevated and my MD told me to get off all abxi. I went off and up'ed my NACi with no problem. My therapist friend came over and gave me exercises to do daily. She also wants me to try to get on stationary bike. I did get on bike with help from my husband. I could only bike 1 minute - and not fast. I got back on the next day and bike more like 5 and got off and was able to pick up leg a little easier for a little while. I plan to get on again tomorrow to see what I can do and keep trying - I plan to record how far I go everyday. I also bought a yoga tape and do the exercises I can do as well as a pilates - haven't watched it yet.

My daughter woke up yesterday and first thing out of her mouth is "Mom, you call old PT and do whatever you can do to get her back in your life, because you are not moving good". I said, I will call her - I called, she said I am not going to be able to get the type of script she needs but she will just come to my house and work with me once a week". She will give me a few things to work on. This is the best news I have had all month. She was making improvements in my gait. I am not feeling great - My liver enzymes up and my doctor had me take a break. Went off all abxi. She told me to stay on baclofen. I will have my blood draw Fri. and my appointment on 4/25.

Just an update. I completed pulse 17 and the pulses do seem easier to tolerate. I do not feel good after, very stiff, walking bad, feet swollen up, husband has to get me out of bed every morning as I am too stiff to bend legs and move. My feet hit floor and I start shaking - legs jumping like crazy. My husband is afraid he is never going to be able to go on a vacation alone. I keep telling him this too will pass but it hasn't. I have oral pred. that I was given when I burned my arm and thinking of a 3 day burst to knock this out of me - I am going to wait until the weekend.

I have not posted in a while but need to before I forget as things change. The good news is I am feeling good enough to have 2 parties here Sat. and Sun as my daughter turned 8. We had her friends party on Sat. and a family party on Sun. and I did well and went to PT the following Monday. So energy is great. PT going well, stronger, trunk better, back better, able to stand up straighter and balance much better.

I am at pulse #15 and this was a hard one to start up but I did it. I was feeling so good that I kept making excuses to not start like My sister is in town from Texas and I am being fitted for an AFO so maybe I should hold off.... That being said, this was the easiest pulse to date almost like it never happened. I had runny nose, stomach upset, ached a little, stiff at times and teary but I was walking around with walker feeling very strong day #1 post pulse. I wasn't so tired I couldn't function. The one change I made was adding back NACi (only 750 mgs)which I stopped again because I was having bad reactions. I added it back a few weeks ago after reading willows blog. I had few reactions - like a runny nose - I could not believe it.

I am in the midst of Pulse # 14 and feeling the usual not so good achey, tired, and so stiff I can't bend my legs. Physical Therapy is going good - I am so much stronger than I was 6 weeks ago. We continue to work on posture, balance, getting up off the ground, strengthing all muscle groups and almost a reprogramming. I find with repitition I am able to do the exercises correctly. For example, lifting arm weights straight up in the air. At first I am unable to straighten out left arm.

Just an update - pulse 13 is underway and I have noticed a few changes: My leg pain at night is no longer waking me up - this went on for a good month. I would wake up in so much pain I would have to get up, take aleve, go online - I am sleeping like a rock now, catching up. I hope it doesn't return to soon as I am enjoying my sleep but at least I know it will end. Burn - My arm is still wrapped up but it has stopped ozing just yesterday. This took over a month. I will continue to keep it wrapped as it looks like someone poured acid under my wrist. My best friend overnighted me a hot tea solution that requires not having to pour hot water - it is great. My nutrionist sister wants me to drink 4 green teas / day and I think its helping with detox. I feel better.

I am posting my MRI report and plan to add to thisisms soon.

I got my MRI results and it was great news - no new or active lesions and one lesion decreasing in size. My neuroi was talking Tysabri if I was worse (scary for me as I am not sold) - if stable to continue what I am doing. I have a new therapist for PT and she is great! Its now pretty tough and I am in poor physical shape and worn out tonight so keeping this short. I will talk more later just couldn't wait to let everyone know!

I had my MRI on 9/30/07 and I should have my results in a few weeks. I was in that machine for 1 hr. and 10 mins. and I always say - "this is the last one I am going to do". I will post my results when I get them. I started my pulse after our last soccer game on 10/04. It is going as well as usual - achey, joint pain, swollen legs... I am going to make some pulse soup as I do not have an appetite as well.