Todybear's blog
Treatment progress.
Submitted by Todybear on Sat, 2008-07-05 16:06.Bad experience emotionally with Flagyl.
Submitted by Todybear on Tue, 2008-07-01 12:31.Six months till Christmas, I celebrated by taking first flagyl!
Submitted by Todybear on Wed, 2008-06-25 18:54.I decided to take the plunge and popped my first flagyl. I feel nothing at this point but I doubt if I would with one dose. I will take another single tablet tomorrow and call it the boxing day dose. TTFN
Questions about when to start Flagyl pulsing.
Submitted by Todybear on Tue, 2008-06-17 22:11.I am having some trouble understanding how to take the flagyl. I have read the protocol and it is not making sense.
"Two or three months into the treatment regimen, or when the patient is experiencing few problems with reactions, three-weekly cycles of intermittent oral Metronidazolei are added."
The three weekly thing has me thrown. What does that mean?
"During the first cycle metronidazole is given only for the first day."
Do you take the dosage of 400 mg three times a day for your first dose? It says take it for one day but it does not state the dose.
Bumped up to 200 mg of Doxy and Azith, tension mounting!
Submitted by Todybear on Sun, 2008-06-15 09:17.Adjusting ones life to fit getting better.
Submitted by Todybear on Thu, 2008-05-29 16:49.In the last year or so, my kids have told me that they have felt that my "give a damn" got busted. I guess the country song gave words to what they felt had been happening to me. Yesterday, my youngest told me that she feels that I might be getting my "give a damn" back. We were planning supper at the time and she said that I never used to think that far ahead before I started to take the treatment. Sounds subtle, I know, but she has a point. I have found my frustration level has gone through the roof these last few days. I attribute that to the possiblity that as my mind become sharper, so does my tongue. LOL. Actually, it's more like I feel the full brunt of my disablity now that things seem more real.
I need some Doxy advice.
Submitted by Todybear on Mon, 2008-05-19 10:05.Another step for Todybear
Submitted by Todybear on Mon, 2008-05-12 10:45.Why the gray cloud?
Submitted by Todybear on Wed, 2008-05-07 13:03.I am just into the CAPi, just five days on Doxyi 100 mg after a month on the NACi and suppliments to set the scene. Nothing is happening to write home about physically other than a bit of old symptoms getting a little more obvious but manageable. The only thing that I am struggling with is a feeling of sadness and loneliness. Last night I cried myself to sleep. I am surrounded by activity so it seems entirely unfounded. My husband is away quite a bit but he always has been so that is not new. I am quite tearful bordering on depressed. I hope I am not slipping into a tough emotional state. Can anyone comment on this?
Day Two for Todybear
Submitted by Todybear on Sat, 2008-05-03 18:13.First Doxy taken today
Submitted by Todybear on Fri, 2008-05-02 18:31.I took my first dose of Doxycycline about a half hour ago. Can anyone tell me if there is a place on this site that talks about what to expect when starting Doxy 100 mg treatment? I want to watch for things. I feel really slow mentally as well as my feet are burning and they haven't burned since starting the NAC a month ago. Thanks for your help.
My Doctor had a question.
Submitted by Todybear on Wed, 2008-04-30 18:34.At my appointment today, my doctor was telling me that Doxyi and Azith should not cause any problems and Flagyli only makes a few people feel "funny" but that is very rare. I explained the concept of die off effects to him and he looked at me with a very puzzled look on his face. He said that if it is true that people on the abxi feel very lousy on Flagyl, why doesn't everyone feel lousy on it as most people have Cpni in varying degress. He wondered why people get these die off effects on this abxi and not his patients that he prescribes Flagyl to for other reasons. I unfortunately could not answer him, can anyone answer that?
Big Day for Todybear!
Submitted by Todybear on Wed, 2008-04-30 17:40.I posted several weeks ago that I had gone to see my GP and that he said he would write me a prescription for whatever I wanted but he wanted to read the documentation that I had brought him first. He said that he would call once he had spent some time reading the information. My husband and I were so happy but after not hearing from him for three weeks we started to wonder if he was going to be onboard anymore. My daughter got sneaky and made an appointment with him for me for today and so I went in and saw him again. He asked me a lot of questions about my current health and checked on all my reflexes, sensations in different areas that are problematic as well as strength in these areas too. Guess what?!
Questions about Cpn
Submitted by Todybear on Wed, 2008-04-09 11:14.I have a 21 year old daughter that recently had a baby. After the baby was born, she complained of alot of symptoms that sounded rather like the MS that I have been living with for years. The MS first reared it's ugly head for me after child birth. I was told it was the stress on my body.
I have been wondering what the chances are that she is infected with Cpni and have wondered for a couple years if she will develop MS. She has had respiratory conditions over the years, most recently both her and my other daughter developed what Dr calls excertion induced asthmai. Can anyone speak to those concerns?
Also, why would MS be aggrevated by physical or other types of stress considereing the Cpn factor?
Incredibly credible.
Submitted by Todybear on Sun, 2008-04-06 12:05.I wanted to speak to the topic of credibility with this blog. I have been bombarded for 15 years by wellmeaning relatives and friends with every herbal, new age, shamanistic, health hut therapy that has shown "promising" evidence of a cure for MSi. It has been a massive pain in the butt to say the least. I have examined some of the theories with somewhat of an open mind and discovered money and greed was the prime motivation for most of these approaches. I have always remained skeptical because I have had my own theories all along on why I was ill and none of this rang true.
