As I posted before, I went off CAPⁱ August 20. I have been feeling really good. I am working 22-28 hours per week at a bank and it is going well. My cognative functions have surprised me. I get tired but still go for my 2-3 km walks, downhill away and uphill back home, each evening with my husband. We are amazed at how things have changed. Before treatment, walking and working would not have been an option. I don't know why some ppl respond well to treatment and some don't. A real mystery. I thank God that my body responded well. Going to see dr soon to see if I can wow him with my progress. I doubt it, he is unwowable. Oh well, my husband and I are wowed!

Thought that I had better check in and tell you what's been going on with me.

As of August 20, having been on the full protocol for 16 months, I opted to go off the treatment. For a number of reasons, one big one that I prefer to keep private. I haven't decided if I will go intermittant but if my health takes a turn for the worse I will definately go back on the treatment.

For those who have been reading about my progress, I have a report that will amaze even the cynic in you.

Spring has finally sprung in Manitoba Canada! We were getting snow flakes as recently as last week and the risk of frost is still threatening us some evenings. My poor husband and family are relegated to hauling in flats and flats of my greenhouse contents everytime it threatens frost and my kitchen becomes a impassible jungle. Anyways, this last couple of days, my oldest daughter and I got the garden all planted with the exception of the bedding out plants. Maybe I will risk that next week.

Just finished number eleven. I didn't have any nausea or much else, mostly felt really lazy. I did a three km walk the week before I pulsed. I have tried to walk every day, but it's so cool out lately! I have found that pushing my grandson in his stroller keeps me walking straight and helps with the balance once I start to get fatigued and tippy. It looks better to push a baby then use a cane in my opinion.

I embarked on my tenth pulse yesterday and am feeling pretty much normal thus far. With the exception of a crappy sleep and waking with a headache, all is well.

I started a part time job last week after being out of the work force since 2006. It is going OK except now I have to be much more organized here at home. I have an interview next week for a full time position and so will need to decide if I can manage full time yet. I still have a lot of trouble with my legs. Spring has been the worst time for the MSⁱ in the past years so am obviously wondering how this spring will be. May 1st will be my one year anniversary of starting the Wheldon Protocol. I am really considering going intermittant soon as I do not seem to be getting any die off effects anymore.

Another pic of my baby grandson. His name is Logan. I thought someone would get a kick out of looking into the face of sweetness. I know I do.

My baby grandson on his first birthday. He was two pounds when he was born so he has made some serious progress! He is a joy! I call him my baby fella.

Interestingly enough, I am on day five on ninth flagylⁱ pulse and feeling fine. I was VERY sleepy for the first three days of pulse but that seems to have resolved. I went out for ribs with my husband the third day in and ended up losing my supper, but I think it was too rich for me. I don't eat meat very often and that night I did ribs and dessert. Not a good mix for me. I don't think it was related to porpheria at all.

I also think that part of my wakefullness today is due to stress energy because my baby grandson was hospitalized over night with possible pneumonia; still waiting to hear from my daughter on how he is this morning.

Hey all, embarking today on ninth pulse.

I have had a good month. My legs are still weak and reach failure, but my husband said that not as fast as they used to. We just had our sixth anniversary and went on a day date. Throughout the day we did quite a bit of walking and I did well until mid afternoon. By that time I was ready for dinner and a movie cause once fatigue hits, they don't really re-energize until the next day.

I would like to find some discussion that people have had on when to go intermittent. Looking for information on how to know when it's time etc. I find that the search pulls up too much and one doesn't find specifics. If someone knows of a specific discussion I would be grateful to read it. Thanks

Since my seventh pulse, (granted it was only a two day pulse due to a bad cold decending) I have felt pretty good. I really can't find too much wrong with me these days except my very weak legs. I have not have had much improvement at all in my legs except the first couple months on the CAPⁱ. After a pulse or two, the gains that I had made, regressed almost completely. Generally,  I feel refreshed and energized in the mornings, then try to get some things done, and before I know it, my legs are "gone" again. So I just have to face the facts that I may have to wait a long time to regain my legs. It has been about three years since they went bad so recovery may take some time.

I don't know what happened, but I have landed a terrible cold/flue and I am completely laid flat. I feel so very ill with aches, completely stuffed up and weak as water. Why am I telling you this? I was already three days late with my pulse so started it two days ago; pretty much the same time the flue hit me full force. My two daughters have it as well as my mother and father in law. My husband is away for the week so he has avoided it for now. I have taken two days at 1500 mg of the metroⁱ and have had to deal with the nausea along with all the dreadful flue symptoms. Should I continue with the pulse or does someone have some advice on how to approach my situation. I am so weak and full of cold that I just don't know how I can deal with the pulse. Any advice?

With Christmas in a couple of sleeps, I find myself thinking about those that are shut in and ill this season. My heart grieves for those who move through sickness and pain on their own and I am grateful for the people in my life that care for me. I wish I could share my home and family with those of you that are alone and lonely this Christmas. It's hard to laugh when you hurt, it's hard to smile when you are suffering. It's hard to sing when you are sick. I hope and pray that if you are alone, you will be comforted by the kindness of strangers, by the thoughts and wellwishes of those who care. Wishing you health and strength and a song in your heart.

To all who celebrate this season, blessings to you and your loved ones!

Love Todybear

After seven months on the protocol I am finding myself getting discouraged, yet again. My husband, my chief cheering squadron, has showed me my initial list of symptoms and has read and reread to me about Sarah's own personal journey seen through David's eyes. These stories are not without relapses and events so he reminds me that I cannot expect only improvements with no tough times.