Another day, another trip to the pharmacy. Darken the door of the drug store and 100 dollars doesn't go very far. I purchased a refill of Azith, more CoQ10 and a new bottle of D3 and some glucose. 150 dollars later... But, what money can't buy is the peace of mind that tell me that I am finally doing something, finally putting up a fight, finally making some progress against something that I had resigned myself to living with for the rest of my life. My husband is already blown away with my improvements as are the other family members that have been following my health over the years. I do a two km walk every couple of evenings with my husband, downhill on the way there and steep grade uphill the way back. It has been getting increasingly less difficult to make that walk.

Flagyli and me are not friends. It's official. I took it for two days to which I suffered intense nausea despite charcoal and glucose. It was manageable considering the other things that sometimes happen. It's what occurred after I stopped taking it that has me concerned. I did read the warning about possible dark thoughts, but what I was not prepared for was the inappropriate emotional responces that I would come to experience. I flew off the handle several time with extreme innappropriate rage, fear and crying fits. I am very discouraged to think that it might be that way for me. I will drive the support of my family away for sure not to mention humiliating myself despite my attempts to explain that I am not in control of my words, actions and emotions.

I decided to take the plunge and popped my first flagyl. I feel nothing at this point but I doubt if I would with one dose. I will take another single tablet tomorrow and call it the boxing day dose. TTFN

I am having some trouble understanding how to take the flagyl. I have read the protocol and it is not making sense. 

"Two or three months into the treatment regimen, or when the patient is experiencing few problems with reactions, three-weekly cycles of intermittent oral Metronidazolei are added."

The three weekly thing has me thrown. What does that mean? 

"During the first cycle metronidazole is given only for the first day."

Do you take the dosage of 400 mg three times a day for your first dose? It says take it for one day but it does not state the dose. 

The last week I ventured out and bumped up to the full Doxyi abxi and so am now doing 200 mg Doxy per day and 250 mg of Azith three times a week. I have felt a real elevation in shortness of fuse when it comes to anger and frustration. It is causing some real problems in my relationship as my husband is offended and angered in return. It is possibly causing serious damage and that frightens me as I don't have what it takes to deal with fallout from that or what that may lead to. I feel like someone else is living in my body and that I can't control my outlook and my anger. Not sure if I will be doing this on my own eventually and that is my worst fear as well because I don't have what it takes to do it on my own.

In the last year or so, my kids have told me that they have felt that my "give a damn" got busted. I guess the country song gave words to what they felt had been happening to me. Yesterday, my youngest told me that she feels that I might be getting my "give a damn" back. We were planning supper at the time and she said that I never used to think that far ahead before I started to take the treatment. Sounds subtle, I know, but she has a point. I have found my frustration level has gone through the roof these last few days. I attribute that to the possiblity that as my mind become sharper, so does my tongue. LOL. Actually, it's more like I feel the full brunt of my disablity now that things seem more real.

I have been taking Doxyi since May 1st, 100 mg. I have added Azith on May 12th. I was fine with the Doxy for a couple weeks, then it started to cause some terrible nausea even vomitting for the hour after taking it. I was taking it on an empty stomach initially with no problems. I have started to take it with food but I am concerned that it will make the drug less effective. The pharmacist told me to take it on an empty stomach. My husband was suggesting that if it is die off maybe over time I will not have the vomitting reaction to it. I was wondering if I should continue to take it on empty stomach or should I take it with food and if I do take it with food, does that reduce it's efficacy?

Today is another big day. I will start Azith today. I haven't had too much trouble with the Doxyi, some burning stomach and moments of real weakness but primarily emotional upsets. I had a really rough mother's day yesterday. Spend a lot of time feeling sorry for myself in tears and know that I felt unusual inside. I find some improvement in my feet, much less pain and swelling at this point. I have been on the suppliments for six weeks and the Doxy for 12 days. So today I will add the Azith. I hope to be able to keep my act together as it is time to work in my greenhouse more, I have 100's of seedlings that need their mommy.

I am just into the CAPi, just five days on Doxyi 100 mg after a month on the NACi and suppliments to set the scene. Nothing is happening to write home about physically other than a bit of old symptoms getting a little more obvious but manageable. The only thing that I am struggling with is a feeling of sadness and loneliness. Last night I cried myself to sleep. I am surrounded by activity so it seems entirely unfounded. My husband is away quite a bit but he always has been so that is not new. I am quite tearful bordering on depressed. I hope I am not slipping into a tough emotional state. Can anyone comment on this?

Day two on Doxyi. I am feeling fine, just felt really sleepy after I took the dose and my feet burned for a couple hours. A muscle in my calf keeps twitching like crazy, otherwise I feel the same as before I took it. I managed to babysit my grandson for four hours and make supper and do a bit of paperwork. I made a schedule for suppliments and abxi and meals. I doubt if I can adhere to that to the letter as we do have a pretty busy household. I guess the idea is to make sure that you keep the proper time between certain suppliments, food and Doxy at this stage.

I took my first dose of  Doxycycline about a half hour ago. Can anyone tell me if there is a place on this site that talks about what to expect when starting Doxy 100 mg treatment? I want to watch for things. I feel really slow mentally as well as my feet are burning and they haven't burned since starting the NAC a month ago. Thanks for your help.

At my appointment today, my doctor was telling me that Doxyi and Azith should not cause any problems and Flagyli only makes a few people feel "funny" but that is very rare. I explained the concept of die off effects to him and he looked at me with a very puzzled look on his face. He said that if it is true that people on the abxi feel very lousy on Flagyl, why doesn't everyone feel lousy on it as most people have Cpni in varying degress. He wondered why people get these die off effects on this abxi and not his patients that he prescribes Flagyl to for other reasons. I unfortunately could not answer him, can anyone answer that?

I posted several weeks ago that I had gone to see my GP and that he said he would write me a prescription for whatever I wanted but he wanted to read the documentation that I had brought him first. He said that he would call once he had spent some time reading the information. My husband and I were so happy but after not hearing from him for three weeks we started to wonder if he was going to be onboard anymore. My daughter got sneaky and made an appointment with him for me for today and so I went in and saw him again. He asked me a lot of questions about my current health and checked on all my reflexes, sensations in different areas that are problematic as well as strength in these areas too. Guess what?!

I have a 21 year old daughter that recently had a baby. After the baby was born, she complained of alot of symptoms that sounded rather like the MS that I have been living with for years. The MS first reared it's ugly head for me after child birth. I was told it was the stress on my body.

I have been wondering what the chances are that she is infected with Cpni and have wondered for a couple years if she will develop MS. She has had respiratory conditions over the years, most recently both her and my other daughter developed what Dr calls excertion induced asthmai. Can anyone speak to those concerns?

Also, why would MS be aggrevated by physical or other types of stress considereing the Cpn factor?

I wanted to speak to the topic of credibility with this blog. I have been bombarded for 15 years by wellmeaning relatives and friends with every herbal, new age, shamanistic, health hut therapy that has shown "promising" evidence of a cure for MSi. It has been a massive pain in the butt to say the least. I have examined some of the theories with somewhat of an open mind and discovered money and greed was the prime motivation for most of these approaches. I have always remained skeptical because I have had my own theories all along on why I was ill and none of this rang true.