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Cpnhelp.orgEmerging information about Chlamydia pneumoniae in disease & its treatment. Passing help forward! |
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Sarah's blogRoll on the New YearSubmitted by Sarah on Thu, 2009-12-24 13:06.Past the winter solstice, next new year and then spring. Season's greetings, everyone, from someone recovering from a totally un-MSey accident, with two black eyes, the latest thing; two bruised knees and one arm in a sling. So roll on the new year! But you might care to look at this in the meantime: http://www.avenues-of-sight.com/09-09-Sarah.html ..................Sarah An Itinerary in Light and Shadow Extraordinarily good news.Submitted by Sarah on Fri, 2009-09-25 13:19.All you people with MSi who have nearly given up looking at ThisisMS, look at this and click on the video at the bottom of page one! Its okay because its in the Antibioticsi forum. http://www.thisisms.com/ftopic-8081-0.html................Sarah An Itinerary in Light and Shadow Two updates in very close succession, part two (illustrated) - A Decade of LanternsSubmitted by Sarah on Sat, 2009-09-19 13:39.In 1999 I painted this, called "Lantern." It is painted in oils and measures 24 x 32 ins. I had already had MSi for about fifteen years but it was very benign and up until then I had very little residual deficits. I was still able to hill-walk many miles and a few years previously, I had cycled by myself all round the south of France and down into Italy. 1999 marked a turning point, however. In December of the previous year I had gone down with what I assumed to be influenza but after that I just couldn't clear it, I developed asthmai and found from then on that I just couldn't run. In fact, I couldn't walk more than a few miles. I had no difficulty in painting, though,
Two updates in very close succession, part oneSubmitted by Sarah on Fri, 2009-08-28 09:41.Six years ago I started taking doxycycline, closely followed by roxithromycin. I have not had an adverse MSi event since then and in addition I have had many improvements, the main one being for me, the return in function of my right arm and hand, meaning that I was able to resume my career as an artist. Two years ago I finally finished treatment and after that time I have still continued subtle improvements, however, I tend to still classify my EDSSi rating as 2, because my motor skills can vary so much throughout the day. I have said for the last two years that my main enduring problem was not being able to lift my right foot very far, making it impossible to get easily on and off my bicycle. Sarah's Stupidity becomes David'sSubmitted by Sarah on Mon, 2008-12-01 14:52.Despite the many warnings about falls, many given by myself, last Thursday, about lunch-time, I ended up falling in the hallway, knocking my head against the corner of something and lying unconscious in a pool of blood. Luckily David was getting a cup of tea from the kitchen, heard me fall and came out straight away. Spreading the word in the art worldSubmitted by Sarah on Sat, 2008-11-01 09:34.I have noticed that one of the most read pages on my website is one of my MSi pages, so to subtly further the word about C Pn, I have made this page on the Saatchi Gallery Online site. I have heard of so many artists: painters, writers, musicians and so forth who have developed multiple sclerosis, never mind all the other C Pn related diseasesi.............Sarah An Itinerary in Light and Shadow David Wheldon - warningSubmitted by Sarah on Thu, 2008-09-04 07:40.Ha, bet that made you look! David has asked me to say that we are currently having broadband problems. From me not being able to connect for over a week and David only intermittently, I installed a new network but only I could go online. I moved the hub through to his room to bypass interference from all the neighbouring networks and all seemed to be fine for a day. Now he can't go online again, but my connection is fine most of the time, so please bear with him for a few days if you are expecting an email reply..................Sarah
New Pathways MagazineSubmitted by Sarah on Sat, 2008-08-16 12:15.
In January of this year, Ella and Michèle had an article published in New Pathways magazine. You can now download the magazine here: A Tale of Two Artists.......................Submitted by Sarah on Sun, 2008-06-29 10:21.............In the early years of the tweny first century.
Multiple Sclerosis, Iguanas and Wrong FootSubmitted by Sarah on Fri, 2008-04-11 07:30.Yesterday I found this link, a blog written by a retired child psychiatrist in an English hospital who writes as Am Ang Zhang, born in Shanghai in 1947. He has written a book called "The Cockroach Catcher" about a fictional doctor's reflections as a child psychiatrist. The page of his blog is about something many of you will have read before: “Ignoring the Evidence:» Addendum to the PreviousSubmitted by Sarah on Tue, 2008-03-18 13:52.Addendum to the Previous....................... What an idiot I can be: I had spent much of the last year in a state of gloom due to more than just the appalling incessant rain we were experiencing. The main reason was that I just didn't like painting with acrylics and I dreamed of taking up oils again. I was reluctant to not because I was worried about the harm it would do me but because I thought it would worry David too much. His telling
Sarah's painting blogSubmitted by Sarah on Sun, 2008-03-02 14:22.I have been lying when I said that I preferred acrylics now and that I couldn't stand the smell of oil paint mediums any more. I was trying to convince myself that this was the case and was getting quite upset by it all. Since DW said a few days ago that he saw no reason why I shouldn't paint in oils, so long as I take plenty of antioxidantsi and set the air filter in my studio working I have been a different person. I am in the process of putting all my acrylics into storage and replacing them with my vast collection of "Old Holland" oil paints, which I couldn't find at first.
The truth about NACSubmitted by Sarah on Sun, 2008-02-24 09:50.Before anyone else says that NACi is an essential part of the CAPi treatment, please remember that I went for about eighteen months without even knowing the stuff existed. About six months into intermittent treatment I started it at 2400mg straight off and got a runny nose for a few days, that's all. Maybe I would have had a rougher time earlier on but I can't now say. My Four Year BlogSubmitted by Sarah on Sun, 2007-08-26 16:55.A new signature for a new year! An Itinerary in Light and Shadow Finished Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent. Still slowly improving with no exacerbation since starting. EDSSi was 7, now 2, hopefully will soon be less. Sarah  change of signatureSubmitted by Sarah on Tue, 2007-05-22 08:22.I have changed my signature to denote the fact that there is no real difference between the way chlamydia pneumoniae infectionsi are treated at Vanderbilt or by David. Some people seem to think there is, but all the research was done at Vanderbilt.
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