I did a 2 day Tindamax pulse Mon/Tues this week.  This is the last pulse I plan to do for awhile as I'm going to begin taking Valcyte and will create a new blog for that.  I think I may try using the pyruvate protocol once I get stable on the Valcyte and maybe after the initial herx/die off from it rather than the tinii pulses during the next few months.   

I have been feeling rather horrid lately, for me, which means I'm pretty much housebound and have moved bed hugging up the list for one my top "favorite" daytime activities lately.  I can do one activity every few days out but then have to return home quickly for a nap.  This started before the tini pulse but I think it's increased some now.  

Jim says, HERE  "But you may need to take a break from the CAPi until your enzymes normalize" and I noted on the HHV-6 Foundation's board folks seem to do the Valcyte therapy alone and then many relapse.  I see that some are using doxyi alone to treat CPni after Valcyte but that viral titers have elevated after treatment.  I'm thinking one may need to correct the bacterial infection with CAP WHILE TAKING VALCYTE so that the viral henchmen don't return with avengence.  So with that in mind, here are my questions:

Can this be aftermath of Tindamax pulse, secondary porphyriai from heat/sun or a combo of both? It all began Thursday afternoon (13 days after tinii one day pulse) but I was having a lot of stress dealing with the cable and phone companies prior.

Hi all,

I was wondering if I could get some feedback/comments/suggestions before I make a choice. The Valcyte has been put on hold due to pharmacy needing more info before filling the order so that's not in the mix, yet. I'll be adding Valcyte, later, if/when I can get my script filled.

But I was wondering on whether I ought to try improving how I feel first (w/calcium pyruvate) or start the tinii pulse first.

Hi All,

It's taken 3 blood draws due to lab errors and over a month to get the final results. I still think there are some lab tests missing from the original order but I'm not even going to bother to try to find that out now after this slapstick comedy of a lab requisition. It's been insane. In fact, when the ID Dr's office mailed me my results I received an empty envelope so I ended up having to pick them up personally from the office. Of course, the ID Dr believes all of these tests to be "normal."

I'm now on full doses of both of the main two antibiotics. So far, so good, however, it's so very difficult to tell right now whether my symptom increase is coming from my extra daily activity, (been doing repairs on a rental) the extremely hot weather we're having here in hell, er, Phoenix right now (was 115 this afternoon in the shade) or is it simply the antibiotics are now catching up with me?

At first I thought I was having allergy symptoms from cleaning the filth and dust in the rental which I do believe is part of it but I'm wondering if some of the symptoms I'm having are actually an increase in NACi flu? Has that happened to anyone as they increased the abxi?

I had a pretty good weekend going on a ride on Saturday. (310 miles!)

I think I've had a little increase in secondary porphyriai again so I'm taking Emergen-C during the daytime and charcoal at night. It's quite mild and seems to come and go so nothing very noteworthy really.

I've decided to add one tab of Zithi today for the week and see how it goes so will do that later on with my evening dose of minoi.

I started taking minoi 100 mg/day on Friday.  Other than maybe a little daytime fatigue and a few aches which resolve with 400 mg ibuprofen, nothing much has happened. 

I'll wait a full week or maybe longer to add the Zithi.  I realize once adding Z, things might get a little more noticeably more "difficult." 

Any ideas, thoughts or suggestions anyone?  TIA 

3/08 NACi 2400 mg, 4/08 Iodoral 25 mg, 5/08 mino 100mg, myco+ CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's

I was shocked that my GP actually wrote me scripts for minoi, zithi and tinii for a full year's worth.

I was so surprised since I had gone in to discuss with him the suggestions from the derm Dr to use Humira which I refused and the ID Dr's thoughts to go back to all of the ancient and old fashioned ways to palliate symptoms of CFIDSi (anti depressants, etc) since he doesn't feel I have an infection. (exactly what Jim said)

Psoriasis has improved and worsened in various areas lately.  Some of the larger lesions have been settling down although if I run my hand across my leg, I can feel small new bumps (new lesions) which are barely visible but they're there. 

In the past my dermatologist has rx'd me very toxic immuno suppressive drugs like Enbrel, Methotrexate and Neoral, which I've been off now for several years due to their side effects as well as trying to HEAL my sickly body, not cause more issues.  

I want to thank all of the responders to my questions on waiting or starting the CAPi before my Dr's appt May 20th with a new infectious disease Dr. 

Since I have enough Zithi and minoi to start, I felt I had already made my mind up regardless of whether or not he's willing or wanting to get me started on a CAP but I decided to wait since I've been off abxi now since Dec 2007 and don't want to alter my blood work with the addition of abxi. 

I have psoriasis and have been on many immuno suppressive meds to treat this. I have no doubt psoriasis will heal with the CAPi. Dr Stratton commented to me on that as well.

At the moment, I'm considering asking my dermatologist to rx me the CAP abxi but I feel I would need to give him some valid science so he would feel this be in his realm of treating me.

Does anyone know where I can find any research articles or literature in regards to CPni involvement in psoriasis? TIA

Sxs – fatigue 4, allergy/cold sxs 8, diarrhea 7, nausea 4, fluish 4, itchy eyes 7

I’m not sure if this is an iodine or NACi reaction or true allergy or cold. It came on rather suddenly yesterday afternoon after I spray painted some patio furniture so I thought at first it was more of a reaction of detox but it seemed to get worse as the day wore on yesterday rather than better.

I read thru the Stratton/Vanderbilt Protocol Update: February 2006 and I have some questions. 

1.  Is this the latest version/update?

2.  My understanding is to begin with one Zithi tab and wait 2 weeks?  

3.  When you take Flagyli, does this become a third abxi in the CAPi that you take along with the Z and doxyi or do you take it alone and stop the others for that time? 

Did MPi for 3 1/2 yrs. NACi 1200 mg/2x day, myco+ I (still) want my life back! CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's

When I change what I believe I change what I do

Ok, here goes.... down the hatch... my first NACi dose of 600 mg. Wish me luck!

I'm still working on trying to find some answers as to whether or not the MPi has the ability to reduce CWD bacterial loadi but while I'm sorting this all out and many other questions about D and my immunei system, etc, I thought I was begin NAC and see what happens.

If I experience NAC flu, I would have to rethink what the MP did and didn't do for my recovery.