Lynn's blog

Need a Word of Encouragement

A word of encouragement?? I haven't checked in for quite a while. Been doing ok, but have been undergoing Vitamin C IV treatments for 4 weeks followed by Rifampin 150mg twice a day for 4 days.  My energy is zapped and the Rifampin feels like poision to my body.

Charcoal and headaches???

Charcoal and headaches...

Could taking the charcoal be causing me severe unrelenting headaches and difficulty sleeping?

Overall, depression is better with the changes i made. F/u with doc next Friday. Hoping for labs! Will probably start pulses.

Thanks for all your help and suggestions! 

Lynn

What to take for depression associated with CFS?

I need any information anybody can give me on overcoming depression associated with CFSi. I am currently taking 40 mg/ day Nortriptyline, 300 mg/day Wellbutrin, 75 mg/day DHEAi. I'm on a lot of anti-oxidants too.

Still experiencing moderate to severe depression. Most days, severe depression. What will help? Anything? Does Vitmain D help? I have to hold down my full time job and the depression (along with the fatigue) is REALLY taxing me and my motivation and could cost me my job if I can't find something to help.

Any thoughts or suggestions would be greatly appreciated.

Thanks, Lynn

 Cpni, Mpn, CFS, CAPi - Doxy, Erythromycin, NACi<

Restless Legs??? Need answers quick please!

Restless legs?? Need answers quick please! I was out last night with my friend when all of a sudden I felt like I was going to have a seizure.  I have felt this way on and off since starting the protocol so I know it's part of the cpni (besides having a hx of these sizures which i now know is Cpn related seizures). Had not had feelings of a seizure in a couple of years before CAPi protocol. Anyway, after that I realized that I felt I could not stand up. My legs were so weak and I started having the sensation that ants were crawing inside legs. Haven't had restless leg syndrome since last winter with EBVi. And it got really bad last night.

Best day yet! Quick update...

Best day yet! Quick update on my health... I'm in 2nd week of NACi 600mg, Doxyi 200mg, and Erythromycin 250mg and I actually had a decent day. Had stamina for about 6 full hours of work today and I've been online a while tonight. I was only nauseated once today and was able to knock it out with some good ole' fashion compazine. I've been stuffy for several days and sneezing, but not so bad that I can't deal with it! Much better than the NAC flu!

I'm tiring now, but actually feel like I can say I felt better today than I have since starting CAPi. I'm trying not to set myself up by reminding myself that tomorrow is a new day, come what may, and not to get discouraged if this doesn't last.

Dr. Mergian in Memphis TN, anyone seeing him besides me?

I heard that some of you may possibly be seeing my doc here in Memphis, so i thought i would check and see?? He's excellent, MD and toxicologist, treating me with CAPi<i<.

If your in my neighborhood and would like to let me know, please do!  If you are trying to find a dr. and you're close enough to Memphis, I would highly recommend him. It may take a while to get in, but it's well worth it.

Need to talk to someone soon

Need to talk to someone soon.  I'm feeling a little desperate at the moment.  Don't know how to IM, willing to learn or willing to just e-mail back and forth. 

New kid on the block: Glad to find you!

Hello everyone-I'm so glad to find this site and others who understand what I'm going through!  I have suffered for at least 17 years with various illnesses that I now see may all be related to CPni.  My most recent addition to the plethora of illnesses I've experienced is severe tinnitus">i with 5-10% hearing loss. I recently had to purchase hearing devices, $3000 worth to drown out the ringing noise as it was driving me insane, literally! Finding out about CPn has made me feel like I have found a gold mine, thanks to my doc, (MD and toxicologist) that knows how to think outside the box. Sure has given me renewed hope. I actually found out I had it after my friend was diagnosed with it.  I had referred him to my doc as he had been experiencing CFSi and ADD symptoms.

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