The various postings, albeit, so supportive, continue to cause mayhem. I feel inflamed and there's no way I would attempt to walk without my walker.

My doomed marriage, divorce proceedings, moving out and finding a place to live have overwhelmed me and are continuing in this way.

I continue to wait for that "glimmer" of improvement.

It's Saturday morning and following a morning from hell with symptoms ranging from constipation to diarrhea and on and on and on. I can't walk without walker and even that is just more difficult always,

I'm going to stop DW's protocol. It hasn't worked for me. I'M JUST getting worse day by day -No glimmers.

Attempts to talk me out of it will be read.I feel doomed.

I have been advised that colon detoxing is a good thing for MSⁱ sufferers, at least biyearly.

It's confusing , when one is following DW's protocol.Doesn't one negate the other?

Of course, the advice given is NOT from one following DW's protocol.

Has anyone done colon detoxing. BlueStar Naturals is just a name given to me, not an endorsement.

Please advise and offer opinions as to colon detoxing at this time. I am not intermittent and have been following DW's protocol, in earnest for a year.

Thanks

Doctor is doing webinars , neurosurgeon 35 years, seems like the real deal. I do want to trust his advice but I would listen to you guys a lot more readily. My one and only doctor advised me to post my queries on web. She is a fine doctor.

I said I'd post as soon as available.

My last vit. d was 75nmol/L a number of months ago.

My latest level is 123nmol/L. Reference range is 75-250 nmol/L.

25-hydroxy vitamin Dⁱ.

So it seems much better but I feel worse.

Now, take another rifampin. When will I ever improve?

I just finished my consult with doctor.She is suggesting that I try diflucan 2 weeks on, 2 weeks off and still keep on with DW's protocol.

Has anyone ever done this? This doctor has also spoken, at length to Dr. S.(Vanderbilt), on my behalf.

Please, please, please reply?????????????????

Monday morning report

STILL following DW's protocol. Maybe I'm doing something wrong, however, without this web, there is no one here to even advise.

Every day seems like a mere repeat of the day before. Both feet remain pained . I cannot balance and I cling to my walker.In fact, I sort of hang over my walker, at this point.I always feel bloated. My hands remain with pins and needle feelings.

This protocol doesn't seem to be working. Where is a glimmer of hope?

Do I just go back to conventional neurology or give up? Loaded question, I know!!!

It's 6 AM. On awakening , I have some stiffening on arising from bed, use my walker with ease and immediately become aware and reminded of my abdominal area feeling tight and bloated. I continue , however, remain concerned as to what these symptoms denote?

Do other folks doing the CAPⁱ either with MS or any other afflictions experience this?

Should any other inclusions to my protocol be tried and if so why? I will listen and pay attention. This doesn't necessarily mean I'll follow advice given.

As I've said before, I for the most part ,am trying to be my own doctor.

I will listen to DW but even that's uncertain. I bet DW accepts that and has heard it before.

The same applies to Stratton and Sriram.

I have been told repeatedly that one must be on the right combo of antibioticsⁱ in order to achieve at least a measure of success.

I have been on tons of antibiotics since 2002 but this post is for antis. 2006 and 2007.

Tetracycline, roxithromycin, tinidazole for a few monthe. The tetracycline almost did me in.

Next, biaxin, minocycline, tinidazole.Somewhat better.

Lastly for this posting roxi, bactrim, tinidazole 2007.

On to IV rocephinⁱ.Stopped after 4 months.

Then DW's protocol as of Feb. 2009. I seem and have posted ,that I seem to be getting worse all the time. I still continue with DW's protocol and hope.

No interferons since 2002 and now I remain too disabled to even qualify for their proposed benefits.

I suppose the title of my post defines what I'm asking.

I have read the research on both of these, however, as usual I am uncertain.

Stratton highly recommends inclusion of charcoal to his protocol.

Others will not use it, claiming that it  bloats and constipates. I seem to be bloated and constipated anyway. Seems like a problem for those ,like me, afflicted with MS.

Does anyone use both? I guess less charcoal than Stratton uses in addition to chlorella and how much?

I hope everyone understands.

I truly am sorry I have ever become involved in chronic lyme disease diagnosis to everything  in between, including CAPⁱ, which I  am starting to think , I am too late to derive any benefit from,anyway.

I remain so lonely. Even the antidepressant I have been on since July seems to have done nothing. I'm quite sure, my doomed marriage has also profoundly hurt me.

Can anyone even relate to what I'm saying?

So, I keep dropping CAP antis. and supplementsⁱ but no glimmer of hope, at all.

When to stop and if to stop is my usual question?

I continue with the protocol. If I had more strength, I would make my posts longer or at least, more often.

I can truthfully say I have not seen a glimmer of consistent or nearly consistent improvement .

As a reminder, I have secondary progressive MSⁱ and over the years (10) I have done many things, with hopes of at least stopping progression or at least stabilizing my very poor status. I cling to my walker, however, I use it only if its necessary to move from one place in my house to another. I don't have to work cuz I couldn't if I had to. I am grateful for alot.

I posted pretty much the same thing on someone elses blog but not sure how many will see this so I'm posting separately and hoping for responses.

So many of us on CAPⁱ get worse on a continuous basis. I'm included. That's for sure.

How can we remain sure the getting worse means that it's working?

I seem to need constant reassurance to believe this.

I have sadly been preoccupied with divorce proceedings so I haven't been using any charcoal for a while now. I know Stratton recommends its usage. I posted a few weeks ago that charcoal in Toronto is virtually impossible to attain.

I would go back to charcoal usage, however, I would so appreciate hearing from fellow sufferers.

Did the use of charcoal help at all? If so, how much is(was) used as well as both negative and positive side effects. Help me out!Thanks

This will be short for now at least.

I am for today only no - NACⁱ or antis. I will report what happens soon.

I will go back to regular schedule tomorrow

I know about resistance, etc. etc. etc.

I figure if I don't experiment, I'll never know. Hope that makes good sense.

A rather brief query. I live in Toronto and was encouraged to add charcoal to this regime.

I did this for a period of time.

There does not seem to be any charcoal available and it does seem to be unavailable from the walmarts of toronto to all of the reputable health food dispensaries. Why, you might ask?? I did and was basically told it's been unapproved for usage.

I'm not saying that with my charcoal usage any positive. profound differences were noted but hey at least I was trying - in this country, to no avail.

I would be appreciative for any feedback.