liltiger's blog

24th tini pulse 20th full 5 day pulse

Well I guess that means around 2 years of this hey?

Started a couple of days ago... Still feeling worst for the week before I pulse...

 

23rd pulse 19th full 5 day

This one i did forget

November 23-27th

22nd pulse 18th full 5 day

Forgot to post these lately(or may have lost one I think)

October 27-31

21st pulse 17th full 5 day pulse

Forgot to post this - ooops...

Back October 1st to 5th I did this pulse...

Still feel at my worst immediately before a pulse...

Still taking pyruvate most days - skip it some days as I sleep late and do not want to wait 1 hour for breakfast and antibioticsi...

20th tini pulse 16th full 5 day

Well just started this morning...

Slightly sore ankles again before starting this pulse... and sore thigh muscles just a bit this last month or so... but in general the leg pains are much less...

Also, when I rmember to take it, the pyruvate does change the quality of pain and generally leave me less "off" feeling but I do get sweats after taking antibioticsi...

Still unsure if I should think about doing antibiotics as 2 weeks on 2 weeks off - I def feel MUCH better off the antibiotics now. When I started the antibiotics made me feel off but did give me some relief from the grinding pain... 

My head space is improved - although I quickly go off if I have to keep going at all. At least I can get some brain function patches if I rest up.

19th Pulse - 15th full 5 day pulse

Day 3 .... 

Still feel worst pain wise when I'm due to pulse... brain fog worst when pulsing...

Tini Pulse 18 - 14th full 5 dat pulse

Up to 4th day... not much to report on this one...

Tini pulse 17 - 13th full 5 day pulse

One week until the house and nursery are sold.... I started this pulse 2 days ago... so far not so bad - but the pyruvate does seem to increase the pulse effects a little...

Tini Pulse 16 - 12th full 5 day pulse

Well we are heading for the countdown on the move north having signed a contract on the property... Getting short on plants having sold them at bargain prices... Time to clean up and pack up...

I've been doing fairly well... usual HR issues when I'm up for a bit... usual pain in joints, muscles, fingers, toes, hair etc... Some stomach pain back again - but minor on the scale of things and perhaps because I was showing friends around the area and ate out more than usual - so I probably ate more chemicals than I'd normally consume when I cook...

Had an interesting situation with pyruvate - but I'll make a seperate topic for that

LT

Tini Pulse 15 - 11th full 5 day pulse

I figured I'm sore anyway so why not just pulse again...

Once again I've been quite tired lately... sleeping until 9-10am regularly and wanting to sleep in the afternoons a lot(I try not to so as not to disrupt my sleep patterns)...

Wrists/forearms/ankles and soles of feet very sore(cannot easily walk when I get out of bed type sore)... needing to take anti-inflammatories a bit to stop from crying... HR 130 just sitting or walking from one room to the next.... getting high nineties now sitting at computer - so time for a break! Off to my couchy goodness place...

Tini Pulse 14 (10th full 5 day post)

Well I've just finished that pulse 2 days ago...  Lots of foot/ankle pain this pulse....

Woke this morning feeling almost normal(well brain worked pretty well and I was only a little sore) which wore off 2 hours later....

Still running HR at 130 or more just walking from one room to the other...

Getting 110 right now from typing on a computer...

Planning ability ZIP, constantly out for count(forget what I'm doing for a few hours to a day or two)... Meant to write this 7 days back and forgot... remembered twice but not long enough to make it to computer without forgetting why I was getting there... Arrrggghhh... If anyone finds my brain please return it...

Tini Pulse 13 (9th full 5 day pulse)

Well a little late pulsing nd then late making a mention here...

Had a thoroughly dreadful time lately - but it is pollen season so may be more immunei related than treatment.... I'm sleeping a lot and achey all over...

Having said that I noted yesterday that given my horrid state my brain function is maybe less fuzzed than normal - seems to be since the biotin dose increased... Anyone else feel that?

Finished my pulse a few days ago now... 

Starting Tini pulse 12(8th full 5 day pulse)

A little late as we have been pretty busy... Selling up the nursery and moving to the North East USA... 

Soon(hopefully if we find a buyer) it will be farewell to Florida...

I had one stunningly good day this month... Felt like a real person almost... managed to organise thoughts well enough to plan my actions for the day... then managed to actually execute them.... Only a few hours but at the end I was normally tired not "hit the wall exhausted"...

I guess that counts as a glimmer for a CFSi/ME person? Always hard to tell as function is up and down a lot anyway...

11th tini pulse

Just finished yet another pulse of tinii... still very tired and HR up and down for little reason(like standing or walking or just sitting too long without elevating legs)... Slept until 11pm Sunday(day 3 of pulse) - sound asleep no dozing until just before I woke... 

Thinking to swap all doxyi and roxi doses to evening meal as they make me quite unwell during the day - If i manage to forget them(eg early morning shipment of plants leaving has me in nursery at 7am) then I feel good until i take them... then bang- dizzy/hitting wall/wantin g to fall over etc etc...

10th tini pulse

Started my 10th tinii pulse back on 2nd December. 

Was really really tired during the day time last week and lots of pain again. Heart rate very high just walking around(just started monitoring it to try to control crashes). 

Less dizziness lately except for when I'm about to hit the ground(coincides with very high Heart rate)

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