katman's blog

Best pathology

Today I had my post-op checkup - "spectacular", got the drains and the Iron Maiden (my name for the ace bandage) removed, permission to drive (hot dog!), restrictions - don't lift 50# bags of grain for 4 weeks - not even 25# buckets. Will do. The very best part, though all that was pretty good - absolutely clean path report.

A Committee of One of Three of Many

Today I am eighty days post twenty-six day flagyli pulse and though I have not been around the world, I feel as though I have climbed my share of mountains. I was going to do another long pulse in January but have postponed it for two reasons: the first reason is that I have noticed, as have many of us, that the longer and more intense the pulse, the longer the recovery. It has been no exception with this extended (for me) one. I find this as a signpost for us - don't feel that "this is not working" if you choose to go outside the boundaries of the written protocol. This applies with the regular protocol, also, especially early on when this foe is lining up its defenses. We are writing in blood the new rules.

Not a race (not original)

My being compelled to do a blog is based on the fact that a lot is happening on our site and, as usual, I have to jump right in. I was going to wait until after my extended pulse, (this is my 16th consecutive day) but I don't know when that will be - a thrill in itself!

Recreational Drugs

No blowouts this time and our faithful diesel cruised to the show. But the fair people had forgotten to stop the entries at the usual limit of 300 goats, so we were crowded at 480. We have French Alpines and the basic Alpine philosophy is that the last one left standing is the winner so we were very busy with keeping everyone occupied with something to do. Treats, new hay often, back scratches, peanuts, and for the really determined basher, a little water in the face - the penultimate insult.

I Need a Nail

This is another of those combined blogs, one by author, one by proxy, two by confusion, too confusing? Not for us. We know how to deal with the confusing, the confused, and the unexpected: give flagyl.

I Never Promised You a Rose Garden.....

But a Daisy will do very, very well. This is at Daisy's request and has been on my mind since she asked. I realized it will be long and will need almost daily editing as I think of more improvements, so please forgive me if I bring it up too many times. Just tell me to stop and I will. Daisy asked me to enumerate in one post the improvements since I began this incredible journey. First was return of energy, not all at once but when you are starting from near zero, ANY feels really good. Now my bladder works on demand, though it took a long time.

BBP or BP/GD

As Joyce has said "What a bizarre group we are". The title of this blog stands for: Blog By Proxy - Blood Pressure/Gum Disease. For years Dr R (Richard) has fought bad breath and gum disease with meticulous attention to an heroic dental routine and visited the dentist alternating with the periodontist for a total of 6 times a year. His gums have inexorably receded and bled. Several months ago in a matter of a few days, his bad breath disappeared, becoming almost overnight as sweet as a baby's.

Hoping for a Higher Level

It seems much longer than the 20 days that have elapsed since my adventure in Wyoming. After returning only 3 weeks ago tomorrow, we (Richard and I) began flagyli 2 days later on Thursday night. My own response was the usual short hour until loss of function - a little less than usual - and mental confusion - much more than usual and the lethargy lasting for days. I still have the emotional flatness and great amounts of slow, fuzzy thinking. And the vertigo, something always present, this time in huge waves requiring me to hold on and wait till it passed every time I changed position. Even now, 13 days after ending the pulse, if I move suddenly, I must stop and wait, but briefly now. I look at this pulse in wonder.

Persistence by any Other Name

.....perseverance, defiance, stubbornness, terror, bull-headedness - these all apply. Another level of recovery has come, another mountain has been climbed. Beginning 16 days ago, I clipped goats, packed the showboxes, mowed, did daily upkeep and in general worked like the proverbial dog. (That somewhat mystifies me because our dogs don't work very hard but that will require more thought.) So we got to the show and spent Friday clipping 18 bodies (the legs, heads, and tails were clipped and feet were done), spent Saturday in the ring, except during the famous PPMSi Clan meeting, went Reserve Grand Champion, went out for a well-deserved meal, then sleep.

Blurred Locomotion, Fuzzy Reality

It has happened again - tinadazole is easy for me but the aftermath is no gain. Last year I did three pulses of tinii because of the National Dairy Goat Show - I simply did not have time to be "out of the loop" - (loopy, that is!) so it was an excellent time to try this magical drug that didn't send you reeling to the bottom of the well. After days of waiting for events to occurI realized they weren't going to. They didn't; nothing happened that I could tell, except that my walking became - well - mushy. So I went back to flagyli. I have done nine or ten of flagyl with very clear- cut inprovements since then. Spring came (?) again, bringing 23 kids (one of these days, we will figure out what's causing that!), hours in the barn, classification, etc.

Going down for the 40th time

Before I submerge too far I thought I would do a short blog on the "feel good" time between my 39th pulse and the one (#40) that I began this morning. The message I want to convey is: it did take the 11 days of recovery but then last Saturday, the 19th day post-pulse, began the best days I have had since 2003 and better than many of 2002. As I hoped for, the rather brutal attack on my hips and knee resolved itself and took that pain and some more brainfog and vanished like morning fog being burned off by the spring sun. It has been a really, really good week with many hours of hard work, which I happily welcome. A second point is that I have been able to extend the time between to 24-25 days. My legs spoke last night but in muted voices - I could barely hear them.

2 1/2 years - now this?

For a very long time I have believed that my post-flagyli was a mirror image ot my pulse. This one, number 39, a REALLY good one, made a fibber out of me. Number 38 was abbreviated to 3 days because we had very special company coming from Canada and I sailed right through it. But I think the last two day's targets were saved up and gunned right down at the very beginning of the next pulse. I hereby pull out Jim's old descriptive word - slammed. This pulse took 11 full recovery days during which every step was agony and attacked with real vengeance in addition to my right hip, my left hip and out of absolutely nowhere, my right knee. Suddenly, in a few hours, it vanished. But now my knee bends when I walk!

Too many battles, not enough troops

"Veterans" also take "falls", or the plodding two steps ahead and one back , sometimes a big one.  Last weekend both Richard and I got whatever was sweeping through the populace.  He, being a pediatrician, has been exposed to virtually everything and consequently gets almost nothing.  So, when something gets through his defences, it is a good one, and he had already shared it this time.   We both spent two days and more flat.  He is now up and running while I am kind of shuffling along behind.   I debated putting this  "on paper" but felt it should be noted:  in a matter of hours - about one month per hour - I regressed in my abilities, walking, energy, thinking.   It was as though my body had too many battles going on simultaneously and couldn't cope.  So we coddled ourselves, eating exceptionally well, sleeping lots (fortunately Dr. R. was not on call that weekend) and got better, which probably would have happened in any case.  BUT - my walking came back as fast as it left, reaching the point by Tuesday night that we could begin flagyl (just can't get enough torment).   I still have a really bad cough but this has not descended into my chest, which has always happened since I was a kid, certainly with a cold comparable to this.  However, right on schedule, a day or so after the first flagyl, my right hip and knee  began  a giant ache.  This has been the main focus for the last three pulses, having pretty well cleaned up my neck, right shoulder (not QUITE finished there), my lower back and other various lesser targets.  Amazing, all this. 
Syndicate content