hdwhit's blog

Where's the excitement in that?

Well, it's time to start pulse #11.  Unlike the last few pulses, I'm not going to be on the road while I do this one.  The tension of being out of town and wondering if I was going to have a reaction that would leave me spending the night in a hospital emergency room just added to the "excitement" of each trip.  Being home for a pulse may make the week anticlimactic.  I'll let you know if anything interesting happens.

I'm unrepentant

Well, first the good news.  I didn't get to find out what the Emergency Rooms looked like in Arkansas.

The better (or worse, depending on how you look at it) news is that after next to no reaction to my last few pulses, I am having significant side effects this time:

I guess I'll get a failing grade in "Planning & Scheduling"

Well, it's time for pulse #10.  I'm also scheduled to leave on a trip tomorrow.  I thought about postponing the pulse out of fear of resuming my old bad habit of "touring the nation's emergency rooms", but for the last several pulses I have actually felt best during the pulse, so I decided I would go ahead.  If it turns out to be a bad decision, I will let you know what the Emergency Rooms look like in Hot Springs, Little Rock, Searcy and/or Salem, Arkansas. 

Also, I went ahead and added atherosclerosis to the index terms since I've also got it although I'm doing this for the M.S. 

You're all against me...but I'm encouraged by that

A full week after pulse nine and no physical symptoms of a reaction at all, but starting Thursday, a creeping sense of unease began which by this morning had blossomed into full-blown paranoia.  I slept through the night most of this week so I didn't get my middle of the night dose of charcoal.  I guess I'll have to start setting an alarm to wake me up in time to take it. 

CAPi for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zithi (3 x week) ceased 3/2008, restarted 5/2008, 150 mg Roxi (2 x day) starting 3/2008, ended 5/2008. Ninth pulse metronidazolei completed 6/7/2008.

Will the third time be the charm?

Well, metronidazolei pulses seven and eight produced no noticable reaction.  I start pulse number nine today (I leave for Houston tomorrow; hopefully I won't end up in Hermann Hospital's ER - lately I've managed to break that annoying habit I had developed of touring the nation's Emergency Rooms).   Maybe this pulse will bring the return of Dame Endotoxini, Mistress of Pain.   It's not that I want to suffer as a consequence of a pulse, but the reaction was at least confirmation that the CAPi was killing something other than a whole bunch of intestinal flora. 

Just so you don't think that I do is complain about NOT being miserable

Went out into my back yard the other day and cleaned up all the limbs that had been blown off the pecan trees by the recent storms that passed through North Texas.  I wasn't paying particularly close attention to the fact that one of the limbs was already pretty wrapped up in poison ivy.  

What's a guy got to do....?

What's a guy got to do to get a date with Dame Endotoxini, mistress of pain, following a pulse?  Was it something I said?  Was it something I did?  Was it all that charcoal? 

Still, I'm five days after pulse number eight with no adverse reaction to speak of.  This is now two pulses with no post-pulse reaction.

Well, if nothing else, by going "stag" to the flagyl pain party I can serve as proof that flagyl doesn't have to flatten you. 

 

CAPi for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zithi (3 x week) ceased 3/2008, restarted 5/2008, 150 mg Roxi (2 x day) starting 3/2008, ended 5/2008. Eighth pulse metronidazolei completed 5/10/2008.

I had forgotten how to spell "Eighth" not sure if that's bad news or not

Eighth pulse (250 mg, 6 per day, 5 days) completed today - and the best part is that I didn't have to go to the Emergency Room at Shands Hospital (Jacksonville, Florida). 

CAPi for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zithi (3 x week) ceased 3/2008, restarted 5/2008, 150 mg Roxi (2 x day) starting 3/2008, ended 5/2008. Eighth pulse metronidazolei completed 5/10/2008.

I've been stood up!

For months now, Endo(toxin) and I have had a once-a-month rendezvous in which she would find some new way of causing pain and discomfort.  I'm now six days past pulse #7 and I think I've been stood up.

It's not that I really miss feeling like an uninvited guest in the former East Germany for a few days, but something like this really makes you wonder whether the antibioticsi are doing anything anymore.  I can't believe the CPni have waved a little white flag and have decided to go quietly. 

Hmmm. Do you suppose they're just regrouping for a spring offensive?

 

Pliva 333's cannot be used to hijack an MD-80 that is grounded by the FAA

Finished Pulse #7 today. 

Also, I was really blessed since mine was one of only a handful of American Airlines flights leaving Washington D.C. that didn't get cancelled. 

Now we wait for the post-pulse "fun" to begin.

By the way, the pain I had been feeling in several of my fillings pretty much went away after the third day of the pulse so maybe I can blame that on the bugs rather than tooth decay. 

CAPi for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zithi (3 x week) ceased 3/2008, 150 mg Roxi (2 x day) starting 3/2008. Seventh pulse metronidazolei completed 4/11/2008.

Thomas "Babe" Levy got nothin' on me

Those of you who identify the character (or remember the movie "Marathon Man") will be able to identify with this.  

Just the Facts

Sixth metronidazolei pulse, 1,500 mg per day (as 6 x 250 mg tablets taken 2 at a time) for five days, was completed on March 15, 2008.

In Washington, DC this week.  Hopefully, I will be able to break my former habit of touring the nation's emergency rooms.    

"Confirmation is nice", he groaned as he felt about the dresser drawer for his grandfather's Colt .45

"Confirmation is nice", he groaned as he felt about the dresser drawer for his grandfather's Colt .45 intending to do himself some mischief.  But he was so fatigued from the effects of the toxins poisoning him that his hand lacked the strength to pull back the slide.  With a deep sigh, his arm dropped back onto the bed and he decided it was probably just easier to just go on living.

Porphy's Complaint

If you have followed my treatment blog, you will understand that I have been just aching to use this subject line.
 
Today is day 10 post-pulse and apart from some really severe (but short-lived aches) on the evening of the 26th and the ubiquitous anxiety/paranoia, next to nothing.
 
I routinely do the "Poor Man's Porphyriai Test" (getting the sunlight can be problematic in the winter) and the results have consistently been "negative", but in the last few days I have gotten obvious "positive" results (substantial darkening after o

Waiting on Endo

Sammuel Beckett waited for Gaddot. 

Mick Jagger was waiting on a friend. 

I'm waiting for Endo(toxin) and the reaction to my fifth pulse he is supposed to bring.  I finished my fifth pulse (1,250 mg Flagyli per day for 5 days) on the 19th.  Aside from some really mild, really short-lived reactions on the 22nd, Endo has been conspicuous by his absence.

I'm not complaining, but it is unnerving that so many other people on this site seem to have such severe reactions to flagyl pulses and for the most part I have had so little.  It makes me start to doubt whether this is really working in my case.

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