Day 2 of pulse 24.  Nothing remarkable to report, the pulse is going much the same as most of  my prior pulses have gone.  I have a bit of heaviness and burning in my legs but otherwise feel about the same as I did before the pulse.  This being the second day, that could easily change come Monday when the work week begins again, as does my work schedule.

I stopped INHi about three weeks ago and have been having less inflammationi.  What I had before made it really difficult to function on some days, I just wasn't able to get around the way I was before INH and since getting off of it.  I think the combination of abxi was just too much.  I even did two pulses while on continuous INH.  Better to scale back a bit.

I've read about a supplement that others here have taken in the past.  I decided to give it a try, thinking that if nothing else, it will help clean up endotoxini in my system.

The supplement is GliSODin.  From what I've read, it seams to be an antioxidanti enhancer, possibly in the way Alpha Lipoic Acid seems to be.  I'm unsure about how beneficial it will be but I decided it's worth trying.

I'm interested in any experience you may have with it, thanks.you may have with it, thanks.

I had been thinking about things and realized I had some unresolved, unanswered questions that I hadn't asked. I could post this in the forums but there are several questions and it makes sense that I blog about it since they may not all be of interest to everyone.

Okay, now that the prefacing is over, my first question is about timing of things and how it affects me.  More specifically, each morning I wake up and take a few things before I do anything else.  I have what seems like a porphyric reaction to it although I don't know or understand why I would, it isn't food.

One of those days already.  I got up, very unsteady but thought it would improve as I woke up.  Nope, it didn't.  I kept going anway.  I knew that I best hold onto things if I'm going to get around and so I did, as much as possible.

Well, that had limited success as you might imagine.  I have a small set of stairs walking out of the building where I live, concrete stairs.  I managed to trip and fall from the top to the bottom in one fell swoop, ending the event by cracking my skull on the concrete ground at the bottom.  Fortunately, it wasn't too bad as I was trying to minimize the fall as it went.  No blood that I can feel or see, so I may get out of it with just a bump.

Okay, I finished my 23rd pulse on Friday and then just did the regular daily medications over the weekend.  Perhaps I should say regular weekend medications as my last dose of azithromycin was Friday.  In any case, I thought I would recap some things I noticed during the pulse and things I've noticed over the weekend.

What I've noticed is not any improvements in my symptoms...unless you consider having more pain and discomfort an improvement.  Pain...that's a relative term.  It's more like inflamation and soreness then pain per se.  Hard to describe how it feels but I think many of you know what I'm referring to - a hotness in one's extremities (my legs mostly). 

Yes, it has been seven months since I began taking Rifampin although it seems more like eight.  It's entirely possible my count is off, it's not terribly important that it would be off by one.  In any case, I'm now on the most intensive CAPi I've ever been on.  I'm now taking Doxyi, Azi, INHi, Flagyli, and Rifampin, along with NACi all at the same time this week.  I started my 23rd pulse on Sunday night, a day and a half later then I generally try to schedule the start day/time (Saturday mornings).

I'm into my fourth day of a 5 day pulse. I forget what count this is, maybe the 22nd or 23rd? I know that April signified my official 2 year anniversary since starting the CAPi with NACi and Doxyi, way back when.  And here I still am, no better then when I began and sometimes worse.

Now, that being said, I haven't given up on anything.  I think that maybe I'm just starting to really figure things out about the CAP and how it can work for me.  What I mean by that is this...

Up until recently, I've been going through the motions, being very diligent to take NAC and abxi on a set schedule.  I still am; however, now I think I've found something in myself that I wasn't aware of before, a reaction I wasn't noticing.

I thought I would post something about where things are at the moment. I began taking INHi over two weeks ago. I haven't noticed anything dramatic but there are differences, though subtle. I don't know if it's my imagination or a genuine difference, but things are a little different. I stress a little.  It might just be that I want things to be different so much that I'm making in different in my head.

...yes, a CAPi junkie, lol

I've been taking INHi now for a little over a week.  I think it has evoked a reaction as I have been having more trouble getting around.  I probably have slipped from a 4.5 EDS up to a 5 at this point since I really can't walk far at all, maybe 100 meters before having top sit down.  Taking the INH doesn't produce any noticeable immediate reaction, it's more of a general state that I've been in all week and most of last.

So what am I on now?  Doxyi, Azi, INH, Rifampin.  I also take Annoto tocotrienols in the afternoon before my second dose of Rifampin and dose of INH.

Yes, I broke into my stash of INHi from last fall and took my very first dose of INH tonight with my second dose of Rifampin for the day, hence the Rifampinianaut. Isoniazid is the full name of INH and I just couldn't bring myself to label myself the Rifampiniazid. Of course, if one want's to be completely accurate, I would have to also work in Doxycycline, Azithromyocin, N-Acetyl Cysteine, and Metronidazolei. Hmmm....the Metroxyzithricetylfampiniazid, lol!!! O-kee, D'O-kee, I think not, lol

I'm on the cusp of my next pulse, which provided I get all the necessary meds in time (shouldn't be a problem) will begin on Saturday.  I'm thinking about next steps, again.

I've been taking Rifampin for over 6 months now and don't have a noticeable reaction to it any more.  I'm sure that if I tried to notice a reaction by taking it without water or something, I might notice, but generally speaking, nothing is noticed now.  Consequently, I'm givng thought to adding INHi now, as discussed in the past.  I already have a month's supply of it and could begin it with my pulse on Saturday.

It's been a long time since I've been around on the site but decided today to write something, so that I could record where things are and have it to refer to in the future.  I'm sad to say that I'm no better off now then I was 4 months ago, at least as far as I can tell.  There are brief periods where I feel really good but that's nothing new, I've had that since before starting the CAPi almost 2 years ago. 

However, I do have to recognize that I'm still relatively early in the use of Rifampin, having started it in late August.  I'm on the end o my 7th month of using it.   Well, maybe early isn't the right term but I don't have a darth of experience with it although that's in process.

Yes my friend, pulse 18 has begun.  I started Saturday morning, a week late from when it "normally" would have started.  I delayed due to the fact I was traveling last week and didn't want to deal with pulsing while out of town.  I'm not entirely sure it would have made a difference either way as the traveling experience was bad enough. 

I thought I would write and just put something down.  I'm at a loss to write anything productive or constructive right now and as such, I'm not sure what to write.  I've had posting a blog on the back of my mind and thought I would go ahead and do it.  I know that I can expound on a lot of things though how useful my doing that is questionable.

One thing that has crossed my mind recently is the question of how I'm doing.  I've thought about this, I always think about this.  I know it's very early to know what impact Rifampin will have on my overall condition.  So far, it has made things harder, though I don't know for certain that it's just Rifampin, it could be many factors. 

I began pulse 17 this morning with a little bit of angst.  I'm taking a trip at the beginning on November and have been a little concerned with the idea of pulsing while on my trip.  I've come to the conclusion that I'll delay a week and pulse the following weekend.  That's probably a good idea since if I stay on schedule I'll be pulsing over New Year's Eve which I would rather not do.

Anyhow, pulse 17 begins this morning.  I have little news to report, things continue as they have.  The ups and downs of walking continue though I remember that during pulse 16 there were more ups than downs so I'm hoping that pulse 17 will follow suit.