evita's blog

Formating

I have problem with the formating of the comments. In blogs when I reply or others reply the reply comes after the comment the reply is for. This is ok. But what i don't like is that the reply in some blogs is always in narrower format and when there are more replies it finishes in the shape of snake - the format is long and narrow (2-3 words in a line). What should I do the column of the reply is of the same width of the previous comment?

Fire

I have been still on intermittent since April 2012. About 6 weeks off and 2 weeks on abxi. The weeks I am off abxi I take terbinafin. The reactions on terbinafin are smaller than at the beginning. What's the most important my walking is still improving. I can walk 100m with trecking poles without stopping and my walking is much faster. In autumn I could walk 5-10 meters without stopping . I think I could walk more now but then I have to go upstairs onto the 1,5 floor so I don't want to risk a problem to get home. But I plan to walk more. What's the best I can breath while walking and I come home filled with oxygen. I can't remember when I felt like this. I think never as I had problem with breathing all my life.

My flat is smaller

Just yesterday evening I realised my flat is smaller. I can get much faster from one room to another with no special effort.

sum up

I want to sum up my 4,5 years treatment. 

My improvements -

How I continue

There is much to write. I have been on the fungi cure for about 2,5 months. I had so many reactions that I was just staring what's going on. 

The first big reaction was in my chest - bad pain firstly for a few days in a spot then 2 weeks without pain and then next horrible pain in the whole right chest came - I couldn't breath in, when I caughed I cried out of pain, the pain was constant and it lasted for 3 days. After the pain was away I was very tired and went to bed in the afternoon. After lying in bed mucus started to get out of my bronchi or lungs? for about half an hour - after each swallowing some ugly old mucus came out. After this I stopped caughing. Before I was caughing every day for maybe half an hour.

MS and fungi

I am here again after the next 3 months on the intremittent. Since my last blog entry I had only one 2-weeks abxi. It was at the end of August and since then no abxi. This sounds nice and I enjoyed the times without abx. I was fine except my problem I always write about - my hips and lower back and then of course my walking as the result of this. I knew I had to start doing something with it. I knew I had also problem with nail fungi which started maybe 15 years ago and after this problem started my walking got worse. So I decided to treat this seriously hoping that fungi may cause my walking problem. I saw a dermatologist who presribed me fluconal firstly. After taking it for first 10 days I went for check up hoping I will have the next dose prescribed.

After 3 months

 I have been on intermittent since the early May. I had 3 a two-week-courses of abxi. Immediately after stopping in early May I got extreme weakness into my legs which I killed by exercising. It was for the first time since I started abxi that I could do some exercising and it helped. Then I got extreme pain in my back, lower back, hips and legs. As I had still a bacteria in the gyn area I persuated my doc to prescribe me amoksiklav. She couldn't believe that the pain might be from the bacteria but I told her nobody knew what the pain was from and then the only way was to test it by taking abx. After starting the amoxi the pain was away within 3 days and also my walking improved. Then everything went not bad and I was improwing slowly. I can walk more, work more.

10 days off abx

My writing is going to be a little confused not organized as so many things happened in these days. Anyway I'll try to write it as clear as I can.

Tickle

Yesterday I finished 6th tinii (total 33 pulses). This pulse was the first tini which I had reactions to. It may be because before I did tini pulses after 5 weeks and this one I did after 4 weeks. But I don't think the reactions where adverse. The pain in  heals I had before the pulse continued during the pulse, also burning in joints and in leg muscles. What was new was the strong tickle in my left foot yesterday. It was really very strong, it lasted for about 2hrs, I couldn't step  on my left foot but I had to laugh from the tickling. Today my feet (also the right one were was no tickle) are more the part of my shoes as if they were sticked to them.

Cpn test results

Today the cpni test result came. It's slightly positive in IgA-active form and negative in IgGi - chronic form. Comparing to the last test results IgG - no change and IgA is dropping. I continue in the treatment roxi and doxyi till next Thursday when I am starting the pulse and after the week when I complete the pulse and ad 4 days roxi and doxy I am starting intermittent - 2 weeks off and 2 weeks on. Is it ok to go intermittent when there is still an active infection?

End of abx?

Today I saw my doc and an unpleasant surprice waited for me. The health care insurance are asking why my doc prescribes me the same abxi and for so long. So she has to stop to prescribe them. 

My next blood cpni tests will be next Monday and she will continue in treatment according to them. But in NO case she will prescribe me abxi as she did. I will have a break for 3 months. So I am trying to get abx somewhere else. I may get them but I don't know for how long. 

I am thinking to go intermittent. 2 weeks abx and two weeks off. Funny thing is I have tinidazol for 3 years. I was twice without doxyi and roxi for 10 days and nothing bad happened and I am still improving. So I think I could manage 2 weeks off.

candida, a bath

I can't believe it's been almost for 2 months since I blogged last! The time passes so fast.

For these 2 months there were days I was worse and the days I was better. But in my worse days I wasn't so bad than 2 months ago. I always could exist doing still more work. The biggest problem was with my hips as always and a new issue was candida.  

Clearing the snow away

I am on the first day of 31 pulse, 4th tinii. The last two days I was fine, my steps were long and I touched the wall only very lightly. When I concentrated I could do a few steps without any support. I know this was many times before but after every pulse the quality of my walking improves but my balance gets worse then till I get used to the improved steps. 

Bad back pain

The things can change very fast. A few hours after I wrote my last blog entry I started to be extremely tired, I went to bed, after an hour in bed my tiredness and wekness was still there. Then I got very strong pain in back. It went from between the backbone and shoulder blade in the right, continued and got stronger above the shoulder blade and to the shoulder. I couldn't lift hand and I couldn't breath in as when I started to breath in I got extremely strong pain in this part of back. I couldn't take ibuprufen as just half an hour before the pain started I took activated charcoal. I only sat on the sofa, leaned my back and found a possition where I could breath a little and was waiting 1,5 hr till I could take ibuprufen.

getting back the strength

I am getting back my walking and strength what I had before the hospital. The pace is - what I gained in months before now I am getting it back in days. Only my upper body mostly backbone is weaker. But I had next bad fall after coming from hospital. My husband filled the kettle with water for tea. As I was in the kitchen when water stopped boilling I wanted to make tea but I didn't notice the kettle was full of water. While I was pouring the boilling water into a jug I poured also some boilling water on my left feet toes. My nerves reacted immediately I lifted my left leg but as I was holding a kettle in my right hand I couldn't catch anything that could help me to stand. Of course I couldn't hold standing on one feet and I fell down.

Syndicate content