effiesue's blog

IGG titer keeps increasing.

I received lab results in the mail today and it turns out that my IGGi for cpni is now 1:512.  I see the doc that I am trying to get to script antibioticsi for me tomorrow.  I have my fingers crossed.  I hope you will cross your fingers for me too. 

I am currently taking NACi 600mg and all the supps.  I have had some relief of my fatigue but it still waxes and wains.  

I am hoping the NAC is helping to increase my antibodies. 

Fingers crossed.  


Got my first serum test level back.

My IgGi titer to cpni is 1:128.  What does this mean?  It was done by Physician's Laboratory Services in Omaha. 

Please help.  

Just starting to have hope.

I am 32 years old and I live in Omaha, Ne.  I have had mono (EBVi) 3 times in my life though Dr's tell me I must be mistaken because that is not possible.  I have also had chronic fatigue since college or prior.  I thought I had it all figured out when I was confirmed to have Elhers Danlos Classic type about 5 years ago. EDS is a genetic syndrome that makes me have really stretchy skin.  I am also loose jointed.  Many people with EDS have chronic fatigue and postural orthostatic tachycardia. 

I thought all of that accounted for many of my symptoms but now I am starting to believe that my symptoms come from Cpni.  More later. 

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