clammed_up's blog

Update

Since starting rifampin, my quality of life has gone down the tubes. Dont get me wrong, its not because of cpni itself. Its the wretching from die off/porpheria. Im so tired of my intestines being in my throat that I find myself back in the mentality of "geez body just die already"

And no, Im not depressed, Im desperate to go out and enjoy life and I simply cant. I cant seem to be able to rectify the problem no matter what I take or what I to try to.

Its ridiculous really how this disease has the capacity to just take take take. This soldier is angry.

Otherwise im doing alright. Nothing new or miraculous to report.

Thats all, March on

 

mepron, malarone, protozoal infections

Who here has taken mepron or malarone? I know that facial pain isnt a common symptom of babesia but if my facial pain issues were from the bug bite, maybe its a protozoal infection and not bacterial. My 4 best antibioticsi have been metroi, doxyi, levaquin and biaxin. Gotta wonder if its because i get a mild antiprotozoal effect, especially from metro. However all are also cpni drugs. Im going to try mepron soon. Any idea how many days it should take to notice a relavant efffect? If i dont find it useful after "how many amount of days" should i assume its not working? I dont want to stay off the rifampin unless mepron shows a very obvious effect that this is a protozoal infection.

ONLY IN CANADA the most pathetic country in the world

Drug delivery. ca  is no longer able to deliver to canada  due to strict customs enforcement.

Yet another creul move by our medical system HEALTH CANADA for whatever reason is clearly practising eugenics. The consequences of socialized health care just keeps getting worse and worse. Our country clearly wants the sick to get sicker. I cant believe this is supposed to be called a country of freedom and oppertunity. OUR HEALTH CARE SYSTEM IS A JOKE!

Somebody save me from my vaugus nerve

Today I started a metroi pulse...after only 1 pill this morning... and tonight I feel yucky. Porpheria must be creepin back in.

Now i am on...

doxyi 200

zithro 250

rif 600

metro 1000

Do i still pulse while on rifampin ?

Ive been on rifampin now for what a week maybe? My brain feels nice but since i dropped from doxyi 300 to 200 i notice more numbness feeling in the bottem of my feet. My facial pain is not so great either but generally i do feel much better on this protocol because my brain is more clear and i have good energy to function well and exercize. I can really feel rifampin go into the brain though, and i must say, its a really strange feeling but nice because it provides a pressure relief.

Anyway, am i still supposed to do metroi pulses while on rifampin? I went off continuous metro when i started rifampin. Right now im on doxy 200, rifampin 600 and zithro 250

Thanks

 

A little rain - a poem by me

A little rain - a poem by me

They say when it rains it pours, I guess it was time for a storm.

I long for the warm tropical sun, the beach and the sunset that calls to me endlessly

Knowing what i know now, could i even return without always looking over my shoulder

10,000 things I feel and useless expression for them.

Without an outlet, for the consequence of this, which no one could empathize with

and it wouldnt even be their fault

The desperation to be heard isnt what it used to be, it doesnt matter to me anymore

Nothing else matters except the fight, its tunnel vision.

The minor distractions, the weight, heavy even, can never compare to this brick

Serological cross-reactions between Bartonella and Chlamydia species

 I came across a page by a llmd who says that bartonella supresses the immunei system so much that it cannot produce an antibody to babesia, lyme or bartonella. Thus if someone has bartonella as a co-infection this may be why they are not producing antibodies to lyme or babesia or bartonella itself. So apparently by treating bartonella a person may become seropositive to lyme, babesia and bartonella and even other infectionsi etc etc

So then i did a bit of research on bartonella

I came across an article that said that c pneumoniae antiboties cross react with bartonella infections. Has anyone ever heard of this?

P450 metabolic pathways of drugs

Here is a list of the metabolic pathways of certain drugs. " Substrates" refer to the metabolic pathway that the drug uses.

http://medicine.iupui.edu/clinpharm/ddis/table.pdf

Blog on my thoughts

These are my thoughts tonight...the random feelings and the need to put it on paper

I think I need lipitor. I think I need to chelate my facial veins. My good dr told me that the pain areas i felt on the minocin are a location of where veins reach the face. Are my facial veins artheriosclerotic from CPNi?

If the lipitor dose is 80mg would it be impossible to tolerate (on the liver) while being on roxyi and rif, plus 15 days of metroi??? ( my future combo )And this doesnt even take into consideration LDNi and vitamin Di. Somehow i cant see it possible to toleratre, but i need to do something to reduce my brain lesions. I cant get in there ( to my brain )with the abxi because the die off is too severe and my body goes into a shock like die off when abxi reach my brain. 

My up-ditty-date

I was doing well on doxyi, metroi, zithro for some time but I couldnt get past a certain point. I felt like each dose was just maintaining me but not curing me. My docter and I decided to try out the antibiotic suprax ( used for lyme ) to see how i would react. I got sick on it and with nothing else in the house and it being a weekend, I tried whatever i had in the cubbord ( which was keflex ). When It seemed that keflex was working i asked dr if i could stay on it. I was on metro and keflex

Results:

Bad stupid move. It worked for a while but then body pains started. I figure cpni started to re-multiply and that the reason keflex worked for a while was because it was working on other co-pathogens related to my dental issues and overall complex MSi burden.

back to insanity

Please help me Im overwhelmed. At the very least, let me know what your gut feeling thinks

My situation with these meds is just insane. I dont even know where to begin. I feel perplexed and confused because trial and error keeps giving me answers that leave too much room for reasonable doubt.

I do know that I have cpni in me because ive tested positive for it via pcri and in the past antibody positive as well.

Yet, the problem is that I also have problems in the facial area which respond to keflex. ( keflex doesnt work on cpn)

I am on continous metronidazolei and have been for  a long time and ive been playing with other varios abxi to see what works best.

quick update

Cannot get the past the point of small pressure in center of face. area of concern expands when dose of abxi is missed. Have been on continuous metroi and doxy since oct, went off zithro at the time because of yellowing skin.

This week dr and I did a trial to conform lyme since infection is now localized for some time. Went off doxy and onto suprax... result... got ill, pain area spread rapidly, sore dry eyes and facial swelling.

Going back to cpni protocol and will try another trial and error for staph if possible

Anyway... lyme has been ruled out.. again.. lyme has been ruled out . 

So does anyone know a drug that treats staph and not cpn?

Thanks

 

P.S I hope everyone is well

 

 

Random update

Hello there

Just a random update. I am on continuous metroi at 500 x 2 per day and doxyi 100 x 2 per day and zithro 250 x every other day. I feel fantastic. I have a brain again. I dont know that Im going to get fully better yet, but this protocol has given me such an improved quality of life. For those who dont know me, when i came here, I was unemployed laying in bed in unbareable pain, brain fried, and suicidal. Im about 6-7 months into treatment and I feel sooooo much better. I got increased improvement when I upped the doxy for that one month to 400 and also now when im on continuous metro Ive noticed again increased improvement. Im going to return to 400 doxy soon and take a metro break, but not quite yet because i want to enjoy the peace of feeling good.

Sweet november

Has anybody seen this movie? Its about a girl with chronic illness ( cancer) who is going to die. As a coping stratagy she dates 1 screwed up man per month and dedicates her full strength and unselfish emotional capacity to loving him, being real with him and teaching him to love. At the end of the month , she has changed his life for the better becauase she has helped him see himself and change his narcissistic ways. Finally, she abruptly leaves him on the 31st of each month and moves onto the next subject with the justification that that she has forever changed each mans life for the better.

stressful day

I did a pulse last week. I lasted 3 days and then barfed a bunch and gave up. 400 doxyi is a problem with pulsing but i dont know what else to do because what if this is lyme? Im going to attempt another pulse next month and im going to do a better preperation.

Today i feel really really down, just because this whole situation just sucks. Im tired of being judged by people, because nobody knows why im not working, nobody knows how much i suffer, nobody knows how damn strong i am to go through all this crap, and all i get is looked at like im some unmotivated weak life failure. It kills me because who i am is so far from what ive become and this quality of life that im living is more than any human should have to bare.