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How did you feel?

pulse 7 is, by far, the hardest yet! i haven’t measured my BP, but i feel very faint and tired, my breathing is not easy and my shoulders ache. If i were a quitter i’d stop, but i’m not. I know Sarah described her fourth as the worst and i know we’re all different, but could anyone tell me their worst?

Pulse 7

Day1 of pulse 7 and, so far,  i can feel the abxi! Which, i guess, is a good sign!

But, in truth, i wanted to post about vitamin B12, and, strangely, just saw Rica’s  response to a different post,, mentioning her intake of it.

Pulse # 48

Very late starting this one. I could try and blame Father Christmas. Twelfth night has been and gone. So, here we go: pulse 48 with tinidazole

New Year - New Life

I completed the Wheldon Protocol for MSi several years ago. 

Since then, my follow-up MRIs have all been "remarkably stable".  I don't hide the fact I did the Wheldon Protocol without medical supervision from my doctors - in fact I shave the documents and the MRIs under their noses any time they will let me.  Still, only my primary care doctor (who is an O.D., not an M.D.) is willing to believe the treatment had any effect on the disease. 

That's too bad for the other patients who could be helped by it, but great news for me.

NAC as a partial cause of high uric acid?

I have higher uric acid over the past 2 years am and looking for the cause (s). Diet is fine. I read that NACi in larger doses can cause this...

I am not on abxi anymore, but have maintained the NAC dosage in the Wheldon protocol. Is there rather a "maintenance" dose of NAC to take instead?

I would like to try that to see if urate levels go down.

Thank-you Mack.

I’d like to thank Mackintosh, in particular, for defending this site from interference.  She could teach all our governments a thing or two!

Thyroid and MS ... and Bint!

Well, Christmas is over, again and, as usual, i couldn’t be more pleased, it was lovely, but i always exhausting, busy and expensive, although since we began giving quite large donations to different charities instead of some presents, it’s easier and feels so much less wasteful.

immune system

If the brain is in control as stated by scientists at the university of virginia in june 2015 then how is it called auto immunei, it dont make sense to me, the brain is directly connected to the lymphatic system according to these scientists by vessels not previously thought to exist, only bacteria would impede it from doing its job , after all 10 trillion bacteria cells versus 1 trillion human cells is apparently what we have,, think we are heavily outnumbered, can we still rely on Thunderbirds for assistance, anyone know?. Robert.

immune system

if the brain is directly connected to the immunei system by vessels that have previously not thought to exist, then why is diseasesi called auto immune disease, when the brain is in control, what am i missing here, can anyone comment on that.Robert

Happy Christmas, Everyone!

He,p!

  1. Exlwejs  sxjust a question to anyone who can put my mind at rest!

i’m cutting  back the 4  modFiniil (provigil) i tKe each day for fatigue, as it ,owerso blood pressure and ialrsDy havs those symptoms. EHowever, i feel dreadful.  Typing this is so hard, so many mistakes. i feel dreadful,  nauseous and dizzy,  worried of leaving a anything on the stove, and so very  very tired.  

Pulse is a bit low, but  BP is ok. Anyone else?

Jane

Here we go again!

I’ve checked, and this is definitely pulse 6 and I finish tomorrow.My BP feels low (i’ll check when i have the new batteries) and i’m expecting the hypotension to be psychosomatic, which concerns me. Why am i prone to self imposed suggestion?  

Prior to dxi, i realised reds and greens had become muted, i didn’t lose all colour perception, but, suddenly, these colours are vivid again! overall everything is even more blurry than before ... good, because i love being a guide dog owner and, truly, don’t mind that my reflection is in soft focus! 

Just popped my last rifampicin

Hey ...

I have been popping them since last February and I have just popped my last rifampicin. That's it. No more rifampicin. No more religiously waiting for 2 hours after food or an hour before. No more extremely dark urine. Finished.

I shall still continue to take my other antibioticsi ... until they too run out. I haven't done a count up but I guess that will be in the middle of the first quartile of next year. In the meantime, I think I need to get plenty of milk thistle down my gullet and give my liver a winter break.

G.

Update December 2017 (over a year later)

This is a futher update, 18 months after my previous 'recovery post' which was 6 months after commencing CPni protocol.

Interestingly, my story took some futher interesting twists, which I want to share, because it may apply to others. 

Unfortunately, I thought I was better, but I was not. After the antibioticsi, many symptoms had resolved, but the chronic fatigue and pain got worse and i had terrible brain fog and headaches. I felt utterly desperate. 

To cut a very long story short, I discovered the root cause of my illness was exposure to highly toxic mould, which was in my house. What i now know, is that the onset of my chronic fatigure and pain (fibromyalgiai) coincided with house renovations which created a bloom of toxic mould in the subfloor.

Some improvement!

I'm killing time, so will tell you about the news from my guru! i'm very superstitious, so waited a while to share, besides which, I've been feeling terrible....! Julia massaged my leg, helping my drop-foot, which feels like it stems from my knee. Both legs are affected, the left is the most bothersome, and the problem is intermittent, but, extremely, frequent. However, I slur less and less, in fact now only slur when I'm shattered. i've seen Julia, as a herbalist, masseur and friend, on and off, for a few years now. When my husband saw her last, she confirmed what I knew, that of her MS clients I'm the only one who's improving, that I haven't degraded in the time she's known me, that my speech has become clear and that I'm doing something right!

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