Big improvement

Hello all,

Things took an excellent turn for me since I stopped the abxi protocol. The logical conclusion is that I might not have cpni or cpn might be the effect rather than the cause.

Here's what helped:

  • albendazole (2 x 400 mg /day) - took it for 10 days, 20 days to go
  • oregano oil (3 x 180 mg / day)
  • garlic (2 crushed cloves in the morning - with food, 2 in the evening + 2 pills in the evening - they help me sleep)
  • onions - 1/2 in the morning, 1/2 in the evening (with food)
  • rosmarinum officinale - tea (mixed with the juice from one lemon - 1 cup in the morning)
  • clove (Syzygium aromaticum, syn. Eugenia aromaticum or Eugenia caryophyllata) - 6 dried flower buds every 8 hours. I am chewing them until they become a paste (not an easy task)
  • blueberry tea (2 cups per day)
  • sea buckthorn oil - 2 x 35 drops / day
  • pumpkin seeds
  • tomato paste (for lycopene)
  • 3 enemas with lukewarm water mixed with the juice of 2 lemons (each) in the last week; I will do 1 per month hereafter
  • leonurus cardiaca - tea (1 cup in the evening - it gives me 8 hours of excellent sleep, with no diziness in the morning)

The last thing I want to add to this list is curcumin (component of turmeric)

I'm also taking NACi (2 x 600 mg / day), magnesium, calcium, omega 3, vitamin D3, multivitamins, vitamin B12

Since I have an active life now, I feel the need to keep any message short (sorry about this).

I will briefly tell you why I congratulate myself for being skeptical about the CAPi effectiveness for my condition.

1. the improvement is now continue and rapid (the 10 steps forward 9 back pattern doesn't apply anymore, which can only make me happy)

2. areas that had never been reached by antibiotics are clearly being touched by the natural remedies (signs: intense itching at the underarms, self limited red spots on my fingers, as if small blood vessels exploded, transient bruises on my legs, where I've felt pain and strange movements)

3. the gradual disappearance of the feeling that I was having zillions of tiny invaders in my legs and groin area

4. the gradual disappearance of pain (I no longer feel any pain in the groin area)

5. the constantly increasing level of energy (I had my best tennis game today and literally dismantled a colleague who used to tear me apart. 6-2, 6-2, 6-4 was the final result). I believe I will soon be able to swim 2 to 3 miles per day just like before the disease.

6. the gradual decrease in frequency, duration and intensity of the polyuric episodes (now they only last 1 to 2 hours every 24 to 48 hours). A week ago I had a 6 hour episode. Since then it only got better

7. dicreasing urinary frequency

8. brain fog = history

9. the disappearance of the throat and chest irritation

There are 3 questions I will probably never be able to answer:

1. Are some people on CAP feeling improvements due to the supplementsi they are taking rather than from antibiotics?

2. Can the repeated "herx" reactions signal treatment failure rather than improvement?

3. Could massive killing of the normal bacterial flora cause the repeated herx reactions?

I guess this is all for now.

Hopefully next time I start a blog topic it will be to tell you I'm 100% healed.

Good luck to all of you.

 

Comments

Hi tudorGlad to hear you

Hi tudor

Glad to hear you are feeling well.  I am with the comments above. 

I will also add this; I have been taking supplementsi to some degree or another for 30 years.  I started this practice by taking Amway's products after I had EBVi & Hep A at the same time.  Prior to this, I had a rough patch in illnesses when my body was young & able to cope.  You can read about this in my first brain fog post from April of 2007. 

Up to my introduction to the CAPi, thank you Jesus!  I was taking all but a few of the supplementsi on our list.  If you have read my history, you will see that didn't stop me from progressing along in the CPni induced illnesses l acquired over the years, that subsequently, lead me to being bedridden 2.5 yrs ago.

The supplements are supporting my body nicely through this.  I am an advocate of natural healing wherever possible.  For example; the Curcumin anti cancerous effect may well have kept me from getting poorer results in my breast thermography tests.  Both breasts were at one time creaping up into the warning zone area.  Now, they are both at the very bottom of the scale. 

I use thermography as it can pick up abnormality 10 yrs before our "traditional" method which just about killed me.  How would you like your prostatei yanked & jerked & flattened like a pancake before the boys "smile" for the camera.  Anyway, just to give you an idea that my mindset is between traditional & Western medicine.

Good luck with your wellness journey.  If you find some new supplement ideas for our cause, give me a shout!

peace

r

 

CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<

JeanneRoz      I think

JeanneRoz     

I think your post basically says in relatively objective terms what I was thinking in less then objective terms, so thanks for putting it that way.  Frankly, given that the diagnosis of Cpni was never clear in the first place AND the use of the CAPi was never used in the way it should be used, I don't know that any statements made about it in this case have any validity at all.  I may be wrong about that but I'm not about to go back and comb through threads to analyze that question.  

What I do know is that I have followed the CAP religiously for 2.5 years and have measurable improvements in that time.  No ifs, ands, or buts about it.  Given the fact that several doctors are involved in this and there have been studies done and people have already had measurable improvements, sometimes the complete  expungement of all symoptoms, the CAP is the most valid way to tackle a Cpn infection, period. 

For instance, I had a HUGE reaction to the NACi test that can not otherwise be explained through science.  I have had a number of subtle improvements so far.  Others here have reversed their condition, sometimes entirely, sometimes only in part, but modern medical science says that neither is possible.  So, empirically, it's irrefutable.

best, John

RRMSi/EDSSi was 4.5, 5, 6, 6.5, 6.9999, 6.5 on Wheldon/Stratton Protocol beginning 04/12/2006
naci 4x600 mg/day
doxycycline 2x100mg/day
azithromycin 3x250mg/day MWF
metronidazolei 3x400mg/day then 3x500mg/day

Tudor,I think it would only

Tudor,

I think it would only be wise to clarify, for others who have read (or those who may happen upon your posts in the future) THAT: 

1.  Contrary to your signature stating you have been on CAPi since June of 2008 -- you have not.   At least not according to the protocol as it is outlined here. I don't want others to think "hey, he got cured in just a few months on CAP"    You have been "experimenting" with different antibioticsi and herbs/supplementsi to try to feel better.  Not applying the protocol as it is outlined here.   Just a clarification.

2.  You don't really know WHAT you have,.. since your test results from your initial post indicated NO bacteria (other than Campylobacter):

Symptoms/Test results: (per your personal statment listed on this site):

Due to the unusual presentation, doctors believe it's not a classical Reactive Arthritis, caused by Chlamydia or an intestinal bacteria. I tested positive for urinary Campylobacter, which might explain something.

  • constantly low urinary ph (5.0 or 5.5). These values made urologists take genitourinary tuberculosis into account
  • no proteinuria, haematuria or bacteria in urinary cultures (tested for tbc too)
  • normal urine concentration (when tested)
  • dangerously low testosterone levels
  • negative IgGi and IgM for Chlamydia Trachomatis
  • negative for HIV (done twice)
  • negative for Borrelia, Coxiella Burnetti and Brucella
  • no intestinal parasites
  • normal blood tests, except for a mild neutropeniai
  • no hemocromatosis
  • normal glicemia and response to glicemic test
  • normal MRI for pituitary gland
  • normal mineral levels in the blood (magnesium came close to the low limit of normal once)
  • normal overall IgA, IgG and IgM
  • no indication of viral or bacterial infection in blood tests (normal values for leucocytes, monocytes, etc)

And even though WE all know that the tests are not conclusive it doesn't appear you have any typical "symptoms" or reactions of CPNi (ie the NACi test)

3.   I am happy that you believe you have "found" the cure for you.... AND, LOL, anyone who can go out any play tennis, and be as physically active as you state  is obviously not that sick Laughing

4.  Might be interesting for you to come back in about 6 months and let us know how you are doing .

JeanneRoz ~ DXi'd w/ CPNi 4/2007; 6/07 -"officially" dx'd w/CFIDSi/FM; also: HHV6, EBVi, IBSi-C, 100 Doxyi:BIDi<; 500 mg Biaxin BIDi; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 uni

Prostatitis often does not

Prostatitis often does not even have a bacterial cause:

Estimates on the number of males in the United States who will experience prostatitis during their lifetimes range up to 50 percent. Many urologic disease experts feel that from 5 to 10 percent of males will be experiencing prostatitis at a particular time, making it one of the most common urologic diseasesi in the U.S.

Over the years, prostatitis has been subdivided into a number of categories, but today commonly accepted variations of the disease include nonbacterial, acute, and chronic.


By far, the most common type of prostatitis is nonbacterial prostatitis. Symptoms may include frequent urination and pain in the lower abdomen or lower back area. Causes may be stress and irregular sexual activity.

According to Dr. Leroy Nyberg, Jr., director of Urology Programs at the National Institutes of Health, treatments for nonbacterial prostatitis may include anti-inflammatory medications or muscle relaxants, taking hot baths, drinking extra fluids, learning to relax when urinating, and ejaculating frequently. “Some physicians also may recommend some changes in a patient’s diet,” Dr. Nyberg said.

Acute bacterial prostatitis can be the result of bacteria, a virus, or a sexually transmitted disease. Symptoms may include fever and chills, low back pain, frequent and painful urination, weak stream when urinating, and infrequent urination.

Dr. Nyberg explained that these infectionsi often are treated with antibioticsi, bed rest, stool softener, and increased fluid intake.

Chronic prostatitis may be bacterial or the result of an inflammationi of the prostatei. Symptoms may include frequent bladder infections, frequent urination, and persistent pain in the lower abdomen or back.

This form of prostatitis often is treated with medications (often antibiotics), changes in the diet, biofeedback, and nonprescription supplementsi, according to Dr. Nyberg.

http://www.prostatitis.org/<

..............Sarah

An Itinerary in Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.