best lab for monitoring Cpn titers

Hi there, 

I'm looking for a recommendation of a lab to determine my levels of Cpni, to keep in line with Dr Stratton's suggestion to "continue to monitor titers every several years".  http://www.cpnhelp.org/emerging_stratton_protoco

I am based in Australia.

My current lab only provide info as to whether the following are postitive or negative or borderline:

IgGi<

IgA

IgM

My understanding is that the Vanderbilt lab closed down.

regards,

What more do you need than these measurements?.....................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

My understanding is that it is difficult (maybe impossible) to eradicate CPni, just reduce its levels. I'd like to be able to measure the reduced level, then maintain that reduced level. If my level went up substantially, I could do a pulse or a few months of CAPi to bring it down. 

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Doing Thibault protocol (NACi/minoi/roxi/tinii/nattokinase)...but considering morphing to Stratton protocol

this is an excellent lab located in Germany but serving Australia and other countries

http://www.infectolab.com.au/Pages/default.aspx<

http://www.infectolab.com.au/Pages/Coinfections.aspx<

thanks MHW. 

I'm cognizant of the fact that two very experienced CAPi-ers had a regrowth of infection after many years work to bring it under control. I am thinking of:

Jim K: http://www.cpnhelp.org/checking<

Astrodiana: http://www.cpnhelp.org/astrodianas_story_cure_fr#comment-86217

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Doing Thibault protocol (NACi/minoi/roxi/tinii/nattokinase)...but considering morphing to Stratton protocol

hwebb, Before you judge regrowth or relapses, please be aware that not everyone followed the protocolsi as they were designed.  Astrodiana's version did not conform to the Stratton or Wheldon protocols.   

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Plus, I have only ever been tested for the pathogen once and I am not bothered about what my current reading might be.  The fact is that I am unbelievably better than I was thirteen years ago, when my neurologist said to David that he had bettter find a nursing home for me and make a new life for himself. 

Cpni starts off as a respiratory infection but I have had no respiratory infection in tht time,maybe because I take 1000g of NACi most days......................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

H,

I sent some blood to infectolab & the result came back negative. the healthscope test in AU showed i was positive. Healthscope i think have 4 ratings -, , boarderline, + , ++,

So infectolab were wrong/compromised sample due to shipping...?

sorry to complicate things! I like you thought that it would be good to have a more sensitive test. after all the research i thought that sticking with the local test &  ticking a rating sheet of your symptoms & checking things like serum B2? (pick an indicator that goes DOWN when your immunei system is working hard). Perhaps serum ferritin is a good thing to watch.

For waht that is worth..

Mark

With cpni, your immunei system ISN'T likely to be working hard, though!  Blood tests don't see cpn infectionsi because our own bodies don't see cpn infections (and therefore our bodies aren't creating antibodies or fighting the infection). 

The nasty stuff sneakily hides INSIDE our blood cells, rather than floating around where our body could recognize and attack it.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Mark,

My CPNi was found in my blood at Infecto lab as I must have had an active infection. I also had my immunei system tested for CD57 level and it showed that my immune system was extremely compromised. I am not sure if you had this test done. It is normally done for chronic LYME infection indication but lately researchers believe it explains more than just chronic LYME disease. It seems to be linked to other autoimmune illnesses. I am not sure why your CPN was not caught by Infectolab; it is a hard one to test for. Have you emailed them for an explanation of the two differing results? They were pretty good with phone and email when I had my tests  done there. However, Dr. Swarzbach, who interpreted my tests, is no longer there. He has his own new lab = Arminlabs.

Best wishes for figuring out what is going on.

MHW,

My CD57 was normal !

Armin was helpful - i think the elispot tests your immunei response. (i had none)

My wife had low immune response.

so the local pathology test (in australia) is measuring a different immune system parameter to the infecto elispot

all very interesting if you understand it all (which i dont!)

Mark

Great discussion - thanks so much for all who are contributing. It was extremely tricky getting diagnosed with CPni in Australia a few years back.

Australian Biologics mixed up my sample, and had to test 3 times (telling me a different result each time). Initially they told me my PCRi test was negative. They thought I was so devoid of harmful microbes that they used my sample as a control when testing someone else. As a "control" my sample tested strongly positive to an array of nasties (even without the addition of an amplification agent). To their credit they called me back to get a fresh sample and retest. The retested with an amplification agent...and I again tested negative to CPn and other nasties.

I had symptoms strongly suggestive of a CPn infection, so did the NACi test. The response was strong and jugular-centric (I felt them fill and stay under pressure for days). I obviously had a lot of Elementary Bodies [so I would have an immunei response I guess??]. 

I commenced CAPi. As time went on, I realised I never got a copy of my results from Healthscope...though had spoken to a GP and the lab itself. I went back and got a copy...only to find I'd been tested for Ctrach not Cpn. They had tested for the wrong chlamydial species! I got retested through Healthscope...and sure enough I was positive. And I'm still of the same status after a couple of years of CAP.

Have had lots of symptom relief on the treatment, but the disease seems to have progressed in my right eye in particular. I'm very concerned, and am looking to make the treatment a little more intense. Have been reading of Sarah's promising results with biotin...which sounds very encouraging

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Doing Thibault protocol (NACi/minoi/roxi/tinii/nattokinase)...but considering morphing to Stratton protocol

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